Betsy Pilon

The pipeline that drives discovery - new knowledge and treatments for diseases that affect us all - is collapsing in the United States. New NIH funding opportunities are down 91% this fiscal year.

“I have to reschedule our meeting because my community is currently experiencing a(nother) mass shooting event. My neighbors and friends work and worship there. My kids are on lockdown.” Land of the free.

Therapeutic hypothermia in infants <36 weeks gestation: proceed with caution nature.com/articles/s4139… @Ped_Research

In honor of Children's Dental & Oral Health Month, we're sharing a new resource from a team at Boston University School of Dental Medicine lead by our Medical Advisory Board Member and HIE parent, Matt Mara, DMD, EdD. Full resource on our blog: 🔗 Tinyurl.com/ChildrensDenta…

🔎 Explore our latest visual abstract, part of our monthly curated publications list! 👶🧠 Profiles and Predictors of Neurodevelopmental Outcome at 5–6 Years in Children With a History of Acute Provoked Neonatal Seizures Check out the full list of highlighted articles from January and recent months! 👉bit.ly/45el9fM #Neurodevelopment #PediatricResearch #NeonatalSeizures #BrainHealth #ChildHealth #MedicalResearch #NewbornBrain #VisualAbstract #ParentResources

8th grade ELA/science lesson combines this with Flowers for Algernon. Love when my kid references posters from @PASMeeting about the limitations of mouse studies and translation to humans.

What a week — from the FDA to Newborn Brain and back home. I can’t wait to see what’s next, but first I shall sleep for the next 7+ hours. Bon nuit! 🇮🇹✈️🇫🇷✈️🇺🇸✈️ #INBBC #ADEPT10 🧠🐻‍❄️🫂🩵☀️

NIH director admits after being grilled by @SenSanders: 1) The best way to stop the measles epidemic is to vaccinate your kids against measles. 2) no single vaccine causes autism. RFK Jr is wrong.

We are pleased to announce Hope for HIE has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). Read the full press release: hopeforhie.org/hope-for-hie-a…

@DrNeilStone To be fair, it’s no small feat to bring vaccine-preventable diseases back.

The much-anticipated @AmerAcadPeds COFN guidelines for #TherapeuticHypothermia published yesterday. Here is #HopeforHIE's position statement: tinyurl.com/AAPcoolingstat…

We’re pleased to feature an in-depth, expert-led session on 9 February focused on sleep in the neonates and its critical role in early development and long-term outcomes. Register to join #INBBC 2026 online or in-person: bit.ly/INBBC_REGISTRA…

Join Hope for HIE on Monday, January 26, at 12:00 PM ET for our Parent-to-Parent Pop-In hour, where you can connect 1:1 with our Peer Support Mentors for immediate support in a safe and supportive setting. 🔗 Register: Tinyurl.com/ParentToParent… #HopeforHIE #HIEsupport

We invite you to share your unit’s experience with holding during cooling for infants with HIE (hypoxic ischemic encephalopathy) to support others as they seek to implement this practice. stanforduniversity.qualtrics.com/jfe/form/SV_eK…

@OligoclonalBand Excited for it! 🧠🎉

I can't recommend this webinar loudly enough - seriously, these people are doing some of the most important research in child neurology right now, and can teach you (and me) how to do it too

Join us for The Art of Listening: Qualitative Research in Child Neurology on January 29 at 4pm CT! 🧠✨ Dive into qualitative methods, hear from expert panelists, and explore how listening transforms research in child neurology. Register here: ow.ly/ohy850XU9L1

@NewbornBrains @saveourbabiesuk The promo info is not the same as the graphic.

Don’t miss out on Day 3 (10 February), for this debate symposium at #INBBC 2026 features distinguished experts discussing cooling in late preterm infants from multiple evidence-based perspectives. Register here: bit.ly/INBBC_REGISTRA…

Y'all have gone and done it. All of us Great Lakes aficionados know you don't mess with Mother Superior. 🌊🌊🌊🌊🌊

As we reflect on a year of growth, research, and shared momentum at Hope for HIE, one thing is clear: hope grows when it’s shared. ☀️🩵🧠 Read our latest newsletter to learn more about what we’ve accomplished—and where we’re headed in 2026. 🔗 conta.cc/4pqPVej