BloodStream Media

“The challenge is getting people to believe - and act on - the data.” FLOW with Dr. Bannow today. bit.ly/theflowpodcast #howsyourflow #menstrualhealth #hematology

@wfhemophilia working group member Sarah from Basingstoke breaks down why psychosocial care matters as much as treatment. bit.ly/thebloodstream… Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease #bleedingdisorders

“We are not catching up quickly enough.” Hear more on this month’s FLOW. bit.ly/theflowpodcast #howsyourflow #menstrualhealth #hematology

Silvina from Argentina draws on her work with the @wfhemophilia working group to share how psychosocial support helps families turn fear into understanding. bit.ly/thebloodstream… Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease

“Things can be better than they are” Amen. Hear more on this month’s FLOW with Dr. Bannow. bit.ly/theflowpodcast #howsyourflow #menstrualhealth #hematology

@wfhemophilia Always a pleasure to have Glenn on the show to share the deets about this amazing gathering for our community! 🎉

🎙️ What’s ahead for the #BleedingDisorders community at the #WFHCongress2026? Glenn Pierce, MD, PhD,VP, joins the BloodStream Podcast to preview key sessions. Listen to the full episode: bit.ly/4sNqxRX

Mohsena of Mauritius, a member of the WFH (@wfhemophilia) working group, joins BloodStream to explain why treating the whole person is where real resilience begins. bit.ly/thebloodstream… Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease

Rocky Williams knows the phrase “I’m fine.” Sometimes it really means “I’m dealing.” But Rocky aims higher. bit.ly/thebloodstream… Presenting Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease #bleedingdisorders

🩸 You can’t always see a bleeding disorder. Someone may look healthy while managing: • internal bleeding • joint damage • chronic pain • regular treatments Invisible conditions deserve visible awareness. That’s why Bleeding Disorders Awareness Month matters.

When people with a bleeding disorder need access to care, if shouldn't matter if they're male or female, says columnist G Shellye Horowitz. buff.ly/Dh7VXYd #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

Tyler shares his journey to diagnosis, from his first deep vein thrombosis at 17, experiencing multiple blood clots throughout college, and finally being diagnosed with PV during his PhD program. bit.ly/mpnpodpodcast #raredisease #polythycemiavera #bloodstreammedia

This week: Rocky Williams dives into the the critical role of psychosocial support + what BioMarin’s Roctavian pull means for the hemophilia community. bit.ly/thebloodstream… Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease #bleedingdisorders

Did you know there is a story about treating heavy periods in the Bible?? Flow with Dr. Bannow is available now! Produced by @bloodstrmmedia Supported by @TakedaPharma bit.ly/theflowpodcast

Tyler offers insights on finding your "new center" after diagnosis, staying informed about your condition, and maintaining your goals and ambitions while adapting to life with PV. 🎧 Listen Now! bit.ly/mpnpodpodcast #raredisease #polythycemiavera #bloodstreammedia

🩸 Why Bleeding Disorders Awareness Month Matters Millions of people live with bleeding disorders. Yet many remain undiagnosed. When we talk about bleeding disorders, we help people get the care they deserve. Together, we raise awareness. 💙 #BleedingDisordersAwarenessMonth

Great news! The World Federation of Hemophilia’s Shared Decision-Making (SDM) Tool is now available in Croatian. This resource helps people with #hemophilia and healthcare teams work together to make informed treatment decisions. 🌍 Explore it now: bit.ly/4b5XT8E

🔬On the heels of last week’s Rare Disease Day event, it’s hard not to be inspired by the amazing work being done every day by our scientists at NIH. Now more than ever, there is hope for a healthy tomorrow, even for those battling rare conditions like myositis or cystic fibrosis. #RDDNIH

Tyler Parsons, a postdoctoral researcher at Washington University MPNs and polycythemia vera (PV) patient shares his decade-long journey to diagnosis. 🎧 Listen Now! bit.ly/mpnpodpodcast #raredisease #polythycemiavera #bloodcancer #bloodstreammedia

Jill Welle shares how every blood cell and every voice matters. From the power of the Red Cell Revolution to the invaluable insights gained through sharing information, she shows how connection strengthens advocacy and builds lasting friendships. JustListenPod.com

Cassandra Trimnell on the Red Cell Revolution: connecting advocates, sharing knowledge, and pushing for change across rare blood disorders. Every voice matters, and together, we’re stronger. 🎧 Full episode now live. pod.link/1488189351 Spomsored by @AgiosPharma