Cystic Fibrosis

This is our poster being displayed tomorrow at #PEN25, showcasing the amazing work of our patient-led CF group 💜. Huge thanks to everyone who has taken part and shared their voices – this wouldn’t be possible without you! 🙌

Sarah M Media1 youtube.com/shorts/KuYU6KX… via @YouTube 💜 Thanks to Sarah for this video! Our next online CF group meeting is Thurs 6pm – a space for patients to connect, share & shape care. Tomorrow we’re at a national award #PEN25 – showing how patient voices improve care.

💛 Are you an adult living with cystic fibrosis who has also experienced cancer? – researchers at Leeds Beckett Uni want to hear your story. 📞 45–60 min flexible interview (phone/video). ✉️ rebecca.spencer@leedsbeckett.ac.uk | 📞 0113 812 4139

💙 Big news from J06! We’re raising funds for a TOSCA machine — vital for monitoring oxygen levels overnight. Help us make this a reality for the adult Cystic Fibrosis ward. Donate or share today! 🌟 @CFLeeds #CysticFibrosis justgiving.com/page/leedscf1?…

🎉 Last week, the CF Patient Focus Group won LTHT’s Patient Experience Award! A huge thank you to all the patients who’ve helped shape the group — your voices are at the heart of everything we do. Together, we’re improving patient experience across the board 💙👏 #PatientVoice

⁦@CFLeeds⁩ physio Dean has been awarded an IRIS award today for his amazing collaborative work. Well done Dean! ⁦@LeedsHospitals⁩ ⁦@LTHTRespiratory⁩

🌟 Please join us in welcoming two new faces to J06!
👩‍⚕️ Lauren, our new CF diabetic nurse specialist, brings a wealth of experience in diabetes care.
💛 Kyra joins us as a clinical support worker—super friendly and ready to meet everyone!
We’re lucky to have them! #Welcome

⁦@CFLeeds⁩ had a fantastic time at the European Cystic Fibrosis Society Conference last week 🫁🇮🇹 The Leeds adult team learned lots, presented posters and even featured on the programme #goteam

Dr Clifton presenting @CFLeeds poster on a patient questionnaire exploring access to dental services — offering a valuable perspective on oral health in adults with cystic fibrosis.

A huge thank you to anyone who has completed a survey over the past year- we are listening and we are putting your comments to the wider CF community at conference this week #ecfs2025

Dietitian Alice presenting her poster on patient experiences with fibre gel, based on findings from her questionnaire — offering valuable insights.

CNS Rita presenting her poster on the flushing solutions used for totally implanted venous access devices (Port-a-Caths) in CF centres across the UK — highlighting variations in practice and the need for standardised care

Hello from Milan! Nine members of the @CFLeeds team have come to the 48th European CF conference. So much inspiring content and a great opportunity to share our experiences too.

After 30 incredible years, today we say goodbye to Julie on her last day at ⁦@CFLeeds⁩ . From housekeeper to ward clerk, she’s been the heart of J06. It won’t be the same without her. Thank you, Julie – and happy retirement!

The Christmas raffle has been drawn! Congratulations to all those who won prizes, we will be in contact with you to arrange collection of your goodies🎁 Thank you to those who donated prizes and purchased tickets! Merry Christmas everyone and a happy New Year🎉

Today marks Housekeeper Tina’s last shift after 11 years of dedicated service. Tina has been the heart of ⁦⁩ – always hardworking, cheerful, and a source of endless positivity. We’ll miss your warmth and energy, Tina! Wishing you a well-deserved, fantastic retirement.

🎄🎉 ⁦@CFLeeds⁩ Christmas Raffle is here! 🎉🎄 Grab your tickets for just £1 a strip & take a shot at naming the bear for £1 a go! 🧸 A huge THANK YOU to everyone who donated prizes 🙌 All funds go toward Christmas presents for inpatients & year-round comforts! ❤️

Exciting news! 🎉 Dr. Christine Etherington has been shortlisted for the Outstanding Adult CF Care Award at the @cftrust 60th anniversary awards! She met Richard Madeley at the online ceremony and is honored by the patient nominations. Congrats, Christine! 👏 #CFawards

@CFLeeds Had a fantastic time attending the Transpennine Cystic Fibrosis meeting! A valuable opportunity to learn about the future and challenges of CF care. Huge thanks to Dr. Rowland Bright-Thomas, Dr. Fran Gilchrist, and PARI for organizing such an insightful event! #CF

🎄🎟️ Christmas Raffle for Adult Cystic Fibrosis 🎟️🎄 Help spread holiday cheer! Funds raised will go toward Christmas gifts & comfort supplies for CF patients. Grab your tickets at J06 or at clinic. Thank you for your support! ❤️ #CysticFibrosis #ChristmasRaffle #SupportPatients