CHERuB study

🧠The CHERuB study is officially underway! 🧠 Pleased to share our protocol outlining this national study of childhood outcomes after perinatal brain injury Check it out here 👇 bmjopen.bmj.com/content/14/8/e… @ich_ppp @NIHRresearch @BMJ_Open

🌟A huge thank you to the families who shared their HIE experiences with us🌟 🧠Here’s a short video of our key takeaways and what they mean for families and clinicians🧠 Full paper👇fn.bmj.com/content/early/… #newbornbrains #neotwitter @PeepsHie @ADC_BMJ @UCLchildhealth

We’d love to hear your thoughts! Stay tuned for updates and for more info visit our website 👇  ucl.ac.uk/child-health/r…

This is so important to help children and families get the information and support that they deserve! 💙🤝 We're privileged to partner with amazing charities to make sure these families needs are heard and met @Blisscharity @PeepsHie @M_R_F

🧠The CHERuB study is officially underway! 🧠 Pleased to share our protocol outlining this national study of childhood outcomes after perinatal brain injury Check it out here 👇 bmjopen.bmj.com/content/14/8/e… @ich_ppp @NIHRresearch @BMJ_Open

In just over a week, @Alexoscopy and I are running a marathon in the Arctic Circle @MSM_TOS to raise money for @PeepsHie #HeardOfHIE Please share and donate if you can justgiving.com/page/neonataln… @nmpa_audit @TIMMSleicester @uniofleicester @RCObsGyn @BAPM_Official @HopeforHIE

🌟 Have you been impacted by #HIE? 🌟 Your story matters to us! Please share your #NHS experiences of #HIE in our quick survey 👇 redcap.idhs.ucl.ac.uk/surveys/?s=43C… @UCLchildhealth @PeepsHie @HopeforHIE

🌟 Has your family been affected by HIE? 🌟 We're keen to understand how #HIE has influenced your lives. Share your story by completing our brief survey 👇 For more details, feel free to reach out: @UCLchildhealth @PeepsHie redcap.idhs.ucl.ac.uk/surveys/?s=43C…

🧠Great insights to those difficult #HIE MRI discussions🧠 These were a BIG theme in the @CHERuBstudy workshops & stay with parents esp. when done poorly… 🌟Key takeaway: show images & highlight non-injured brain too🌟 #neotwitter #newbornbrains sciencedirect.com/science/articl…

How good are parents of 2 year old children born #preterm at predicting future motor outcomes? @JenniferZeitlin @Ulrade @noutvanheijst onlinelibrary.wiley.com/doi/10.1111/dm…

🗓️ SAVE THE DATES FOR AUGUST VIDEO SUPPORT GROUP SESSIONS Each group is led by Hope for HIE's licensed social worker, Haley. Families will be engaged in a space of healing and hope, no matter where their journey may take them ⬇️ #NeoTwitter #NeuroTwitter #PedsICU #ChildLife

Is low grade intraventricular haemorrhage in preterm infants benign? Systematic review by @PhilippaCRees et al evaluted the impact of grade 1 & grade 2 IVH in childhood period @mackeithpress #neoEBM #EBNEOAlerts buff.ly/47cTjRZ

📢 Thrilled to share our recent @CHERuBstudy output on neurodevelopmental outcomes of #preterm infants with low-grade IVH at school age 🧠 Our r/v included 12 studies using 30 assessment tools at different time-points 🫣 Highlights below👇 #neoTwitter onlinelibrary.wiley.com/doi/10.1111/dm…

Let us know the questions you think we should study #neotwitter

7/ Essentially to tackle perinatal brain injuries we need real-time longitudinal pop data beyond the #NICU 🌈 ....introducing the @CHERuBstudy Please share the Qs YOU think the @CHERuBstudy should address... #neoTwitter Stay tuned for population-wide insights! 🌍

🧵 What do school age childhood outcomes look like after perinatal brain injury? Let's dive into our latest @BMJ_PO review👇 @DrCBattersby @DrCGale #neotwitter #newbornbrains bmjpaedsopen.bmj.com/content/7/1/e0…

✨Excited to see our r/v being discussed! #neotwitter This blog highlights difficulties communicating amidst uncertainty on the #nicu & applying population #data to individual👶 🤞the #CHERuBstudy working with @Blisscharity @PeepsHie will address SOME of these gaps

Later onset #epilepsy is a real problem for our families. Most happen at the SWC, are traumatic to witness, some require rescue meds, are unpredictable, are unsettling for kids who have them, scare siblings, & disrupt parental sleep, impacting the entire family. #EndEpilepsy