I am excited to be presenting at the University of Michigan's Learning Health System Collaboratory. Tune in if you want see what 10 years can get you! docs.google.com/forms/d/e/1FAI…
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Cerebral Palsy Research Network
4.6K posts
Cerebral Palsy Research Network
@CPRN_org
Cerebral Palsy Research Network | Community | Research | Education | A diverse community that moves forward #CP research & quality healthcare.
United States of America Katılım Aralık 2011
785 Takip Edilen6.2K Takipçiler
We are extending our work into the NICU with early detection and now a registry for hypoxic schemic encephalopathy (HIE). Join us for a webinar with @HopeforHIE and Principla Investigator @DanielleGBarber. Register at cprn.org/mycp-webinar-s….
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@NCHPAD Love @NCHPAD programs and their partnership. Very "can do" with glowing results from our #cerebralpalsy community members that participate. Learn more at cprn.org/mentor
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Cerebral Palsy Research Network retweetledi
In our latest partner spotlight we caught up with Paul Gross, President, Chief Executive Officer and Co-Founder of the Cerebral Palsy Research Network (@CPRN_org)! Learn more about the great work being done at CPRN and our partnership in the blog below!
nchpadconnect.org/2024/04/05/par…
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Great work! If this can create improved practices uniformly, it will greatly benefit what we can do for the CP community and "protocolize" care more.
Bhooma Aravamuthan MD DPhil@drbhooma
The *NEW* @AANmember Child Neurology Quality Measures set opens for public comment on March 8! Amongst the new measures are 2 I'm esp. proud of: genetic testing for everyone with #cerebralpalsy, and documentation of GMFCS for everyone with #cerebralpalsy
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Thrilled to have hired Joyce Trost, PT, PhD as our Director of Registries! Her track record @GilletteChildrn as their Director of Research will serve our growth and research needs. cprn.org/dr-joyce-trost…
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Thanks for all your hospitality and generosity!
Nemours Children's Health@Nemours
The brightest minds in #CP research united in Wilmington, DE for the annual meeting of the @CPRN_org, hosted by the esteemed Nemours Children's CP Center. Together, we're advancing the frontiers of cerebral palsy research. 🤝💡 #CPRNAnnualMeeting #CPResearchLeaders
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Do you want to be at the center of the fastest growing registry for #cerebralpalsy research? Do you have a PhD in clinical epidemiology, rehabilitation science, or several years of clinical research with a masters level degree? Apply: linkedin.com/jobs/view/3588…
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We are excited to share the details and benefits of our new partnership for both the community members and the research community for #cerebralpalsy. 1+1=(a lot more than 2)!
Cerebral Palsy Alliance Research Foundation@ResearchForCP
Tune in TONIGHT for a convo with leaders from CPARF & @CPRN_org to learn more about our partnership that will benefit people with #CP, parents, caregivers, researchers & medical experts by ensuring that proven science makes its way to more people sooner ➡️bit.ly/CPResearchPart…
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We share in the excitement with @ResearchForCP where our priorities are aligned and are skills are very complementary. We look for to doing great things together for the #CerebralPalsy community -- people living with CP, caregivers and families and the clinician researchers!
Cerebral Palsy Alliance Research Foundation@ResearchForCP
We’re excited to announce that we’re partnering with @CPRN_org to transform the lives of people with #CerebralPalsy! The partnership will generate new findings about #CP & ensure that people with CP and their parents, caregivers & medical teams can benefit from proven science.
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As always, we expect this webinar to be clear, meaningful and well thought out. Join@Dr Bhooma to learn more about more about Adults with intellectual and developmental disabilities!
Bhooma Aravamuthan MD DPhil@drbhooma
This webinar and all others in this series will be posted at our Adult IDD Webinar YouTube Channel: @adultiddwebinars" target="_blank" rel="nofollow noopener">youtube.com/@adultiddwebin…
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Happy to be sharing more #CPStories with today's glimpse into the motivations and impact of @drbhooma who is truly a bright light, a rising star and an incredible leader in the care of people with #CerebralPalsy. cprn.org/cp-stories-ped…
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Gina Kline is powerfully summarizing the importance and opportunities to innovate for the disability economy at the #RemarkableTechSummit. Thanks @RemarkableTech for putting together such a meaningful program about #AssistiveTech that will impact #cerebralpalsy outcomes.
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@jkaufmanconsult @RemarkableTech @petehorsley Love your statement that "the disability community is the only minority group that anyone might join at any time" (hope I didn't misquote) at the #RemarkableTechSummit
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So glad to be here at the @RemarkableTech Summit & have the ability to meet & be surrounded by extraordinary people! Excited to see what happens…MORE TO COME! @petehorsley
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Very excited to be at the #RemarkableTechSummit to see how the CP Research Network can help #AssistiveTech entrepreneurs bring advances to market to help the #cerebralpalsy community. Thanks to @RemarkableTech!
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So excited to be partnering with Steve Wisniewski, PhD, from Pitt's Epidemiology Data Center to be our new Data Coordinating Center PI! Pitt will host our two #cerebralpalsy registries and be our partner in research for numerous studies under development. cprn.org/cprn-partners-…
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@drbhooma @NewbornBrains Any registry data in their work?
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Just had a *GREAT* meeting with Khorshid Mohammad @NewbornBrains. Guys, if anyone is doing things right, they are. Looking forward to potential #cerebralpalsy-related collaborations.
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