Cushing's Support & Research Foundation

New post on CSRF: Sandra M. - Embrace the Journey csrf.net/patient-storie…

New post on CSRF: Lauren I. csrf.net/patient-storie…

New post on CSRF: CSRF Interviews One of Its First Members: Neddy Zaleski csrf.net/patient-storie…

New post on CSRF: Bridget H. csrf.net/patient-storie…

New post on CSRF: Cushing's and Blood Sugar - What's the Connection? csrf.net/doctors-articl…

New post on CSRF: Doctors' Answers csrf.net/doctors-answer…

New post on CSRF: Three Takes on the COVID-19 Pandemic csrf.net/coping-with-cu…

New post on CSRF: Medications for Cushing's - Old and New: Part One in a Two-Part Series csrf.net/coping-with-cu…

A breakdown of the new Medicare law, by our partner @PAN_Foundation panfoundation.org/pan-foundation…

We feel seen! Sharon Terry of Genetic Alliance goes hard for rare patients everywhere and makes the ENTIRE case for registries led by patient organizations. forbes.com/sites/ashoka/2…

@ShannonDingle Feel free to email us at cushinfo@csrf.net or leslie@csrf.net to discuss. If you need and qualify for any of the cortisol-controlling medications, no reason you can't have it in your hands within a couple of weeks, max.

@ShannonDingle Can we assist you w/ some correct information about the process of qualifying for & receiving a cortisol-controlling medication? The last decade has brought access & assistance programs to a point where there aren't really barriers today. Korlym is not affected by these politics.

I’m having to jump through hoops to get Korlym approved for Cushing’s disease, non-operable, causing hyperglycemia. Why so hard? The active ingredient in Korlym is mifepristone, the abortion pill. I don’t need it for that, but pro-life folks don’t understand that it’s different.

We are relieved and encouraged when we see efforts like this to educate and connect people to how Cushing's affects everything and everyone in our lives far beyond the clinical data captured in the office setting. @MedStoriesTV medicalstories.tv/title/cushings…

Great information for patients facing transsphenoidal surgery by Drs. Raj Mukherjee and Nick Rowan (Johns Hopkins) youtu.be/rIzWWLJ-B7g

In honor of Cushing's Awareness Day, a patient video from Recordati Rare Diseases. youtu.be/vKGvwLG9KI4

Today is Cushing's Awareness Day! Hug a Cushie, and help us work toward faster diagnosis, better prognosis, and kinder understanding.

New post on CSRF: Michelle B zpr.io/Wg3pJtQYBKhw

New post on CSRF: Kate W zpr.io/zbPL4F3LzrZ4

New post on CSRF: Amanda P zpr.io/XYrYAzpUiYjE

New post on CSRF: Joanna zpr.io/F8FqDJFdyBFk