CURE Epilepsy

Our community makes it possible to unlock the doors holding back progress. We find and fund innovative scientists and projects - ones looking beyond the status quo and rethink what is possible in the world of epilepsy research. (Video made possible by Whitten-Newman Foundation.)

Save the date! UNITE to CURE Epilepsy is April 23. This is a day for the community to drive research forward and accelerate the search for a cure. Thanks to the generosity of Jonathan and Julia Tuteur, your gift will help unlock a $25,000 match. More: bit.ly/4vxbyhg

ICYMI: The first Pipeline of Progress series webinar covered epilepsy meds on the horizon. Watch the recording here: cureepilepsy.org/webinars/pipel… This series is supported by Lundbeck, Stoke Therapeutics, and Xenon Pharmaceuticals.

Es Día Mundial del Síndrome de #West #WestSyndromeDay El #síndromedeWest o síndrome de los espasmos infantiles Es una #encefalopatía, una alteración cerebral #epiléptica de la infancia, grave y poco frecuente🧡 Conócelo y apoya a @FSWest👇➕Investigación‼️ sindromedewest.org

Epilepsy is a neurological condition that causes recurring, unprovoked seizures and affects over 65 million people worldwide. #PurpleDay highlights the importance of advancing research and improving treatment options for people living with epilepsy. In partnership with @cureepilepsy, the Foundation recently hosted a first-of-its-kind workshop on the role of focused ultrasound in treating epilepsy. A white paper summarizing key workshop insights and next steps is now available: fusfoundation.org/posts/foundati…

150 epilepsy orgs are united behind the bipartisan #NationalPlan4Epilepsy Act (S.494 / H.R. 1189). We need your help to move this legislation forward. Take 5 minutes to contact your members of Congress and ask them to sign on. 👉 Take action here: bit.ly/NP4E

This episode of Epilepsy Explains, we explore catamenial epilepsy. Dr. Alexa King answers questions like: 💜 What is it? 💜 How is catamenial epilepsy diagnosed? 💜 When should someone find a specialist? Catch the episode on our website here: bit.ly/3N5u9jb

Save the date! Night of Discovery is happening 9/16. CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing that brings together more than 500 of Chicagoland’s leading business and philanthropic voices. More info: bit.ly/4lBY13m

Sleep is essential to brain health. @CureEpilepsy suggests that improving sleep and daily cycles may help reduce seizure-related brain activity. On World Sleep Day, take time to explore the research: cureepilepsy.org/research-disco… #WorldSleepDay

Join us for a webinar and Q&A all about epilepsy medications in Phase 3 clinical trial. You’ll get clear information, real insights, and a hopeful look at what the future of epilepsy treatment may hold. Register now here: us02web.zoom.us/webinar/regist…

NEW DATA: Today, we announced positive topline data from our Phase 3 X-TOLE2 study in adults with focal onset seizures. We are deeply grateful to the study participants and investigators for their collaboration. Read the full release: investor.xenon-pharma.com/news-releases/…

We have selected 5 organizations to collaborate with for the next round of Rare Epilepsy Partnership Awards! We'll be partnering with @Channeling13995, The Rory Belle Foundation, @YWHAGFoundation, and ZTTK SON-Shine Foundation. We can't wait to see what exciting projects follow!

CDEs standardize ways of describing and collecting data, harmonizing biomedical research. Learn how we fueled the creation, review, and dissemination of CDEs for epilepsy, most recently for preclinical SUDEP research: bit.ly/4kUdOu5

We support initiatives that help the epilepsy community grow, lead and thrive. These programs connect health and happiness by creating opportunity, amplifying lived experience and turning journeys into impact. Congrats, Drew, and best wishes with @CureEpilepsy!

The best seizure action plan is one that fits your real life. Your plan should reflect where you go and who is around you, especially because you may not be able to explain what you need. A plan makes sure the right steps are in place. ➡️ Learn more: bit.ly/4bCGyoD

Rescue meds can stop certain seizures, but only if others know when and how to use them. A seizure action plan spells this out clearly, so that teachers and colleagues can act quickly and confidently. Learn more here: bit.ly/4bCGyoD #SAPAW2026 #SeizureActionPlans

Welcome Drew, 2026 Community Enrichment Program intern! Drew has lived with epilepsy since age 12. This internship will help him reach his goal of making a difference for others in the epilepsy community. Thank you to @sklifescience for their generous support of this program!

Is your seizure action plan up-to-date? Seizure Action Plan Awareness Week is a great time to check! And if you don't have a plan, consider this your sign to consider making one. Learn more about seizure action plans here: bit.ly/4bCGyoD #SAPAW2026 #SeizureActionPlans

Join us at CURE Epilepsy Takes Manhattan, an evening of music, laughter, and stories with Miguel Cervantes and his Broadway friends! Past performers include Tamar Greene (Hamilton), Ginna Claire Masón (Wicked), David Josefsberg (Waitress) & more. Tickets: bit.ly/4a5wv8U

What's changed in the field of #epilepsy #genetics and precision medicine over the past 10 years? Dr. @IngoHelbig reflects on that exact question in a recent blog post. Check it out here: epilepsygenetics.blog/2026/01/27/ten…

Thank you @CureEpilepsy for this honor and for supporting my lab’s work on high frequency oscillations in epilepsy! Congratulations to all awardees! #HFOnews