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Hello! We’re the Canadian Autoinflammatory Network (Réseau Auto-inflammatoire Canadien), a non-profit dedicated to empowering autoinflammatory patients of all ages in Canada. Here’s a quick 🧵on us: (1/4)
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Canadian Autoinflammatory Network
353 posts
Canadian Autoinflammatory Network
@CdnANetwork
A Canadian not-for-profit dedicated to empowering autoinflammatory patients, families and researchers.
Canada Katılım Temmuz 2022
497 Takip Edilen245 Takipçiler
Canadian Autoinflammatory Network retweetledi
Celebrate #RareDiseaseDay by watching the on-demand recording of our #SpeakerSeries #webinar, "#Matchmaking for #RareDisease Diagnosis."
Discover the power of international data sharing and collaboration from matchmaking pioneers.
Stream it on-demand: phenotips.com/speaker-series…
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Canadian Autoinflammatory Network retweetledi
Please donate to support the program, & send messages to honor Dr Kastner via the official onine donation link. ISSAID & TARN are co-sponsors. We welcome other orgs & institutions to support the symposium-This can be done w/ ISSAID or our org. Thanks! 🧡 givebutter.com/c/autoinflamma…
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Canadian Autoinflammatory Network retweetledi
Living with a systemic autoinflammatory disease: burden of disease and effects on quality of life—an international patient survey:
Great Paper @AAlliance_SAID
pdf.sciencedirectassets.com/789400/AIP/1-s…
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Canadian Autoinflammatory Network retweetledi
Discussing the Transition from Pediatric to Adult Rheumatology Care with Dr Yan Yeung, ORA Vice-President and President-elect @takeapaincheck at the Unity Through Rheumatic Diseases 2025!
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Canadian Autoinflammatory Network retweetledi
Canadian Autoinflammatory Network retweetledi
So proud of these trainees presenting their work at #MCHRD2025 today. Their dedication to child health research is inspirational. @MacUPediatrics @machealthsci @mac_peds @anneklassen @kabeattie @CAFsociety @mch_childrens @McMasterCHR @hamhealth
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Canadian Autoinflammatory Network retweetledi
Thank you #MCHRD2025 organizers for allowing me to share this work! @CAFsociety @Dr_Gorter @kabeattie @MacUPediatrics
McMaster University Department of Pediatrics@MacUPediatrics
.@MacUPediatrics rheumatologist Michelle Batthish (@m_batthish) shares insights on her research into the transition to adulthood in pediatric patients. #MCHRD2025 #ChildHealth #Research #ToolKit
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Canadian Autoinflammatory Network retweetledi
February 28 is #RareDiseaseDay, but every day we #CareForRare.
Help us raise awareness about how rare rheumatic diseases affect children, teens, and young adults across Canada. Together, we can make a difference.
Learn more at cassieandfriends.ca/careforrare
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Canadian Autoinflammatory Network retweetledi
🌍 Exciting news! The RDI-Lancet Commission on Rare Diseases has officially launched! Co-chaired by CRDN's own Dr. Kym Boycott (Canada) & Dr. Roberto Giugliani (Brazil), it brings 27 experts from 6 continents to improve healthcare for PLWRD. Learn more: rarediseasescommission.org
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Canadian Autoinflammatory Network retweetledi
CORD @raredisorders calls on federal parties to commit to a national strategy for rare diseases. Federal strategy is overdue.
CORD@raredisorders
Canada is the ONLY developed country without a national strategy for #RareDiseases, affecting 3M Canadians. It's time for federal leaders to step up by creating a strategy that improves care, research, & access to therapies Full Letter👉 bit.ly/3PyLNt6
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Canadian Autoinflammatory Network retweetledi
White Coat Black Art avec le Dr Brian Goldman
Ian Stedman, membre du conseil consultatif de l’IG des IRSC et du réseau canadien des maladies rares (RCMR) :
Il a diagnostiqué sa maladie rare grâce à Google. Il espère maintenant que l'IA pourra faire la même chose pour d'autres
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Canadian Autoinflammatory Network retweetledi
White Coat Black Art with Dr. Brian Goldman
Ian Stedman, member of #CIHR-IG Institute Advisory Board and Canadian Rare Disease Network (CRDN):
He diagnosed his rare disease using Google. Now he hopes AI can do the same for others
tinyurl.com/5hd6uxfe
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Canadian Autoinflammatory Network retweetledi
He diagnosed his rare disease using Google. Now he hopes artificial intelligence can do the same for others. @CHEO using #AI to help diagnose #RareDisorders, by @phildrost cbc.ca/radio/whitecoa… via @cbcwhitecoat @NightShiftMD
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Canadian Autoinflammatory Network retweetledi
🎥 Missed our recent townhall? No worries – the recording is now live: youtube.com/watch?v=ffUB1z…
We also want to hear from YOU! 🫵
Take a moment to review CRDN's proposed strategic plan and share your thoughts with us.
🔗survey.ucalgary.ca/jfe/form/SV_4Y…
YouTube
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Canadian Autoinflammatory Network retweetledi
Excited for what November has to offer? 🌟
Discover a variety of events happening both in Canada and globally with the CRDN Events Calendar!
📅 Check out the CRDN Events Calendar: canadianrdn.ca/events/
💡 Submit your details here: canadianrdn.ca/events-contact…
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Canadian Autoinflammatory Network retweetledi
Devenez un patient chercheur grâce au programme de certificat virtuel Patient & Community Engagement Research (PaCER) de l'@UCalgary.
Pour en savoir plus, consultez le site bit.ly/PaCERprogram.V… souhaitez poser votre candidature? Envoyez un courriel à currie@ucalgary.ca.
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Canadian Autoinflammatory Network retweetledi
Exciting News!💥
Become a patient researcher through @UCalgary's virtual Patient & Community Engagement Research (PaCER) certificate program!
Learn more at bit.ly/PaCERprogram
Interested in applying? Email currie@ucalgary.ca by November 15, 2024.
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Canadian Autoinflammatory Network retweetledi
📅 Mark your calendars!
Join us on October 31st from 12-1 PM MST for the CRDN Townhall, where we'll dive into the latest updates on our strategic plan co-development.
Don't miss out—register today: canadianrdn.ca/join-the-crdn-…
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Congratulations to these amazing physician-researchers who are leading the way in Canada & have secured funding from @CDA_AMC for a CAN-SAID registry! Such wonderful news!!!
@KLBrownLab @LoriBTucker1 @QdQwerty
cda-amc.ca/drugs-rare-dis…
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Canadian Autoinflammatory Network retweetledi
#OpenAcademy2025, launching under @ERDERA_org, is now accepting applications!
Developed with expert trainers, the programme is specifically designed to give you the skills and knowledge necessary to achieve concrete, real-world results. 💪
Learn more➡️ go.eurordis.org/vRJTTI
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