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#MEcfs is indiscriminate. It doesn't matter how positive, determined or strong you are. Please support the #MillionsMissing
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Sarah Reed
15.3K posts
Sarah Reed
@Cheggers1971
Life changed after unknown virus. #MEcfs #POTS. Campaigner | Christian | Volunteer Listener | Passionate about justice. @sajeimpact | Married to @andyJReed_OBE
England, United Kingdom Katılım Mart 2012
520 Takip Edilen1.1K Takipçiler
Sarah Reed retweetledi
Long segment about #MECFS on BBC Breakfast (15 mins) includes interviews with Dr Binita Kane, Dr William Weir, Karen Hargrave and Oonagh Cousins Mentions symptoms, severity, history, Melvin Ramsay, psychological framing, NICE guidelines, problems receiving care for severe patients, debunked Graded Exercise and pacing.
youtube.com/watch?v=AuqthH…
#MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid
YouTube
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@AndyJReed_OBE @bbcstrictly Thank you. 😍🤩 Feels like all my birthday’s & Christmas’ have come at once!
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Sarah Reed retweetledi
Have you signed the petition calling on the UK Government to urgently fund research into treatments and cures for #MyalgicEncephalomyelitis and #LongCovid?
It closes on 5th July and needs 10,000+ signatures to get a response. Make sure you sign and share!
petition.parliament.uk/petitions/6305…
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@maryeilmicdom Only just seen this & that you’ve been so poorly 😱 I know compassion & understanding will have been doubly appreciated by you. Pleased you’ve been looked after well & praying for a speedy recovery. Take care, lovely x
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That's me home now, tucked up in bed listening to birdsong. Utterly exhausted and immensely grateful for all the hard work, compassion and understanding demonstrated by the cardiology team at GRI. I cannot thank them enough.
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@stuartbrady82 Yes Stuart! You’re the man for the job! 💪🤩 Good luck!
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Sarah Reed retweetledi
LIVE: Join us for a discussion on Covid-19 & the implications of health inequalities, with guests @ProfBambra & Prof Arpana Verma, @sheencr & @Zubhaque as hosts, and @chrischirp on numbers twitter.com/i/broadcasts/1…
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Sarah Reed retweetledi
Yes the science on the seriousness of the long covid crisis is unequivocal - still, crickets. It's important to ask why government is silent but there's a bigger question: Why is medicine silent? Why haven't authoritative medical voices relayed the science to the public, to drs?
Morgan Stephens@morganstephensa
There is economic interest in every facet of not recognizing the vastness and severity of Long Covid. Blood clots, strokes, myocarditis. All results from this virus. How do we know? There plenty of research at this point. Yet, crickets. 🧵 1/6
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Sarah Reed retweetledi
🗝️Points
🔹Many #LongCovid researchers unaware or ignoring looking at #ME to understand #LongCovid
🔹Poor quality methodology being used in #LC like #ME - lessons not being learnt
🔹HCPs ingnoring or unaware of energy management in #ME 4 #LC
🔹No mixed cohort studies
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Important 🧵Peased its being raised in parliament.
Yes, #PwME have had their illness dismissed & ridiculed & treatment has been shocking. Our warnings surrounding #LC have gone the same way yet the government continues to choose to ignore & prefers to tell us Covid is over!
Long Covid Advocacy 💙@LongCovidAdvoc
Baroness Scot's powerful speech in the @UKHouseofLords 'Long Covid' debate 🔹#ME has been neglected, dismissed, ridiculed & under researched for far too long 🔹Not a new clinical entity 🔹No diagnostic test for LC or ME 🔹1/4 mill #ME now joined by 2 mill with #LongCovid
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These Five Women Are Helping Doctors Crack the Long-Covid Mystery - Bloomberg Businessweek (with a lot of help from #MEcfs researchers!) apple.news/AazogssP5TUunw…
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Sarah Reed retweetledi
THREAD on the clinically extremely vulnerable and Covid... please read!
First off, NHS estimates there are *3.7 million people* (6.6% of England population) who are clinically extremely vulnerable to Covid infection. 1/15
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Sarah Reed retweetledi
AND if they had Long Covid, they were *much* more severely affected.
Vaccines have reduced but not eliminated Long Covid - CEV population is at much higher risk from infection both in immediate severity of illness but *also* in long term impacts. 7/15
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Sarah Reed retweetledi
There are half a million more people not working now than at the end of 2019.
The number of people classed as economically inactive because they are long-term sick has reached a record 2.5 million, according to figures from the Office for National Statistics (ONS).
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The wild plan to refreeze the Arctic - The Times and The Sunday Times apple.news/AABQ0BjSwSnyzc…
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“My life as I knew it is unrecognisable… where is the support from the experts? We are the ill people”
This #bbcqt audience member outlines her life-changing experience with long Covid and says she wants to get on with her life but “people are being left with no help”
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@bbcquestiontime Govt has been keen to downplay Long Covid from the start. (We’ve seen the same with #MEcfs ) All health measures have been focussed on acute ‘serious’ illness/ hospitalisations but life changing chronic illnesses are equally serious. No support & now no health protections. Crazy
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Sarah Reed retweetledi
If you have #ME #MECFS and you are in the UK pleeeeease sign up for @DecodeMEstudy , Complete the questionnaire & lets get some proper biomedical research done!!
This is potentially game-changing stuff🤞
Steve Topple@MrTopple
The @DecodeMEstudy still needs at least 7k more #pwME for its study - easy to sign up, just a questionnaire and a saliva sample if you're selected #MillionsMissing
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Sarah Reed retweetledi
NEW: Sources close to Privileges Committee say evidence is so damning that Boris Johnson could be 'gone by Christmas' if he returns.
One Tory MP tells me any attempt to kill the inquiry could 'bring down the govt'.
Yet momentum builds behind Johnson.
itv.com/news/2022-10-2…
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Liz Truss’ leadership style of major U turns seems to be catching on! The fact that MPs are even considering bringing back Boris shows how broken, desperate & lost they are.
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