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If your child has #Craniosynostosis-there is support for you here. A community of parents who can relate and support facebook.com/groups/5445720…
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Cranio Ribbons
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Cranio Ribbons
@CranioRibbons
About Born with a fuse so let's spread the news! Order your Cranio awareness ribbon today! We have a closed private group just for parents on facebook.
Katılım Ekim 2014
97 Takip Edilen259 Takipçiler
We are 10 years old today!!!
Massive Thank you to everyone who has supported the Cranio Ribbons cause (we are not a registered charity) along the way, especially those who helped build the cause in the early days, Amy and Emma 💜💜💜
Happy 10th Birthday Cranio Ribbons 💜💜💜
Haverhill, East 🇬🇧 English
Our little soldier❤️ the bravest boy I know!
Singing makes everything better🤍 @AlderHey @CranioRibbons @eltonofficial
English
💜💜💜
#Craniosynostosis #Awareness #scar #story #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 QME
#Craniosynostosis #surgery #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Cambridge, England 🇬🇧 QME
First 2 packages awaiting collection tomorrow 💜💜💜
#carepackage #support #craniosynostosis #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 English
Amazing before and after results for 2 brothers 💜
#Craniosynostosis #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 English
Stanley, recently had his 4th birthday and is 3 years 3m post op for saggital 💜
#Craniosynostosis #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 English
Amazing before and after results 💜
#Craniosynostosis #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 English
Just amazing.
Oliver - Sagittal 💟 7 years post op. Now plays rugby, gymnastics and loves his swimming. Also very proud of his scar
#Craniosynostosis #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 English
This is Cairo who is now just turning 2 almost a year post op who was born with metopic craniosintosis which affects 1 in 2000 kids
His suture closed in the womb and had to get emergency surgery due to high pressure
#bornwithafuse #cranioribbons #craniosynostosis #awareness
Haverhill, East 🇬🇧 English
This is Pippa she has metopic craniosyntosis this is a condition where the skull sutures have fused together to soon. she is the currently awaiting a her operation dates. She is the youngest of 8 siblings and is a real brave girl
#bornwithafuse #cranioribbons #craniosynostosis
Haverhill, East 🇬🇧 English
Florence had Endoscopic surgery and is doing helmet therapy for 12 months until she is 18 months old and the family are so so grateful that this is now covered by the NHS
#Craniosynostosis #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons
Haverhill, East 🇬🇧 English
Alice is right-coronal and saggital. 8 months post op. 💜
#Craniosynostosis #Awareness #craniosynostosisawareness #bornwithafuse #letsspreadthenews #cranioribbons #cranioribbonsireland
Haverhill, East 🇬🇧 English