CureCHM

Congratulations to Jean Bennett, Albert Maguire (@ScheieEye) & Katherine High (@ChildrensPhila), recipients of the 2026 @brkthroughprize in Life Sciences in recognition of their pioneering work developing gene therapy for inherited blindness! tinyurl.com/3n5k57ye

Congratulations to Jean Bennett, MD, PhD, on being named a 2026 Breakthrough Prize laureate in Life Sciences, shared with Katherine A. High and Albert Maguire. Their work led to the first FDA-approved gene therapy for Leber congenital amaurosis, restoring vision and transforming care for inherited blindness. breakthroughprize.org/News/98

We are incredibly grateful to our Team CHM runners who participated in the @parismarathon this past Sunday, April 12! #curechm #teamchm #RunForACause

Rescheduled Date: April 29th. Register HERE: secure.qgiv.com/for/webina/eve…

Have you or a loved one experienced visual hallucinations after vision loss? You’re not alone. This important webinar on April 2 (2:30PM EDT | 7:30PM BST) sheds light on Charles Bonnet Syndrome (CBS). Learn why it happens and what can help. Register to join: secure.qgiv.com/for/virtualeve…

Victorien Faure and Théo Leleu are preparing for their first Paris marathon, for a good cause. midilibre.fr/2026/03/31/vic…

The Choroideremia Research Foundation (CRF) is pleased to announce its latest round of scientific research funding, awarding four new grants to advance understanding and treatment options for choroideremia (CHM). einpresswire.com/article/898316…

More Info About CHM:

SHARE this post to help educate your family, friends, and community about Choroideremia (CHM) and why awareness matters! Make a difference this Rare Disease Day: secure.qgiv.com/for/choroidere… #Choroideremia #CureCHM #RareDiseaseAwareness

Today is Rare Disease Day! 🌍 Over 300M people live with a rare disease. CHM affects just 1 in 50K–100K. Support the ultra-rare CHM community & fund sight-saving research: secure.qgiv.com/for/choroidere… #RareDiseaseDay #CureCHM #SightSavingResearch

Rare Disease Day is Tomorrow! Choroideremia (CHM) is an ultra-rare inherited retinal disease many providers may never encounter. Because so few families are affected, CHM receives far less awareness and research attention. That’s why Rare Disease Day matters. 💙 Help support progress: curechm.org 📲 Tag @curechm and share your CHM story Together, even the rarest voices are heard. #RareDiseaseDay #Choroideremia #CHM

As Rare Disease Day (Feb 28th) approaches, we celebrate the CHM community & CRF’s work! "It’s been awhile since I looked at CHM/CRF… I would strongly encourage all members to TAKE A LOOK!!! Worth it!" – CHM carrier Annual Report: drive.google.com/file/d/1flEjwX… #RareDiseaseDay #Choroideremia #CureCHM

Today, rare disease advocates from across the country are convening at #RRBITC for Rare Disease Week on Capitol Hill, hosted by @EveryLifeOrg. This impactful gathering empowers advocates with the latest policy insights affecting the rare disease community and provides the opportunity to meet directly with Members of Congress to make their voices heard.

2026 Rare Disease Week on Capitol Hill 🏦 #CureCHM #RareDiseaseCommunity #RareDC2026