CureCHM

Have you or a loved one experienced visual hallucinations after vision loss? You’re not alone. This important webinar on April 2 (2:30PM EDT | 7:30PM BST) sheds light on Charles Bonnet Syndrome (CBS). Learn why it happens and what can help. Register to join: secure.qgiv.com/for/virtualeve…

The Choroideremia Research Foundation (CRF) is pleased to announce its latest round of scientific research funding, awarding four new grants to advance understanding and treatment options for choroideremia (CHM). einpresswire.com/article/898316…

More Info About CHM:

SHARE this post to help educate your family, friends, and community about Choroideremia (CHM) and why awareness matters! Make a difference this Rare Disease Day: secure.qgiv.com/for/choroidere… #Choroideremia #CureCHM #RareDiseaseAwareness

Today is Rare Disease Day! 🌍 Over 300M people live with a rare disease. CHM affects just 1 in 50K–100K. Support the ultra-rare CHM community & fund sight-saving research: secure.qgiv.com/for/choroidere… #RareDiseaseDay #CureCHM #SightSavingResearch

Rare Disease Day is Tomorrow! Choroideremia (CHM) is an ultra-rare inherited retinal disease many providers may never encounter. Because so few families are affected, CHM receives far less awareness and research attention. That’s why Rare Disease Day matters. 💙 Help support progress: curechm.org 📲 Tag @curechm and share your CHM story Together, even the rarest voices are heard. #RareDiseaseDay #Choroideremia #CHM

As Rare Disease Day (Feb 28th) approaches, we celebrate the CHM community & CRF’s work! "It’s been awhile since I looked at CHM/CRF… I would strongly encourage all members to TAKE A LOOK!!! Worth it!" – CHM carrier Annual Report: drive.google.com/file/d/1flEjwX… #RareDiseaseDay #Choroideremia #CureCHM

Today, rare disease advocates from across the country are convening at #RRBITC for Rare Disease Week on Capitol Hill, hosted by @EveryLifeOrg. This impactful gathering empowers advocates with the latest policy insights affecting the rare disease community and provides the opportunity to meet directly with Members of Congress to make their voices heard.

2026 Rare Disease Week on Capitol Hill 🏦 #CureCHM #RareDiseaseCommunity #RareDC2026

Rare Disease Day is February 28! Help shine a light on choroideremia (CHM). On Saturday, share a post and tag @curechm to grow awareness and support sight-saving research. Make a difference today: secure.qgiv.com/for/choroidere… #RareDiseaseDay #RareDiseaseAwareness #Choroideremia #CureCHM #RareDiseaseCommunity

The Canada CHM Patient & Family Meeting is a free chance to connect with others who understand the choroideremia journey. With 30+ already registered, now is the time to save your spot. “Our CHM community is strongest when we come together in person,” says Kathi Wagner, CRF Executive Director. May 9th | Sandman Signature Toronto Airport Hotel Register: secure.qgiv.com/for/canadachmp… #Choroideremia #RareDisease #CHM

Eric Hartman, Director of Advocacy, is heading to Rare Disease Week on Capitol Hill to represent the CRF and raise our collective voice for those living with choroideremia. Don’t miss Rare Disease Day on Feb 28. Donate: curechm.org

For rare diseases like Choroideremia (CHM), awareness does more than educate — it drives research, funding, and support. When more people understand CHM: • Families find help sooner • Researchers gain visibility • Communities become more inclusive You don’t have to be a scientist to make an impact. Sharing reliable information makes a real difference. secure.qgiv.com/for/choroidere…

Looking to connect with the CHM community this Low Vision Awareness Month? Join our virtual chats for CHMers, families, and friends. Upcoming schedule: facebook.com/CureCHM/events