Cure CMD

📢 An update on Dr. Carsten Bönnemann’s transition to St. Jude Children’s Research Hospital & the continued leadership of CMD research at the National Institutes of Health under Dr. Reghan Foley. 🧬 🔗 Learn more: curecmd.org/post/bonnemann…

LAST CHANCE! If you are attending Rare Disease Week on Capitol Hill representing the CMD community, we want to help support you. Fill out our 2026 Travel Support Application by Friday, February 6th. form.jotform.com/260107431447147

Do you plan to attend Rare Disease Week on Capitol Hill? We want to support you in representing the CMD community! Fill out our 2026 RDW Travel Support Application by Friday, February 6th. form.jotform.com/260107431447147

LAST CHANCE TO ORDER! Our See's Candies Valentine's fundraiser closes 1/30, shop now for your purchase to support our cause! 🍫 curecmd.org/sees-candy

We’re thrilled to join accessiBe’s nonprofit partner community, reinforcing our commitment to accessibility for all. Their accessWidget tool is now active on curecmd.org.. We’re proud to stand with 600+ nonprofits promoting digital inclusion. 🌐

Order by January 30th to get your sweet treats in time for V-Day! 🧡💙 Support our See's Candies fundraiser, every purchase gives back! 🍫 curecmd.org/sees-candy

Attending Rare Disease Week on Capitol Hill? We want to support you in representing the CMD community! Fill out our 2026 RDW Travel Support Application by Friday, February 6th. form.jotform.com/260107431447147

You can get sweet Valentine's treats & support our cause courtesy of See's Candies! Shop our sweet treats shop today & every purchase gives back! 🍫 curecmd.org/sees-candy

The time is NOW to help support NIH funding. Send your Members of Congress a letter to support this critical medical research funding. mda.org/supportNIH

Our Valentine's See's Candies Fundraiser is live! Every item you purchase contributes to our cause. Thanks for your support! 🍫 curecmd.org/sees-candy

It's a crucial period for NIH funding negotiations with bipartisan appropriators debating the final details of a package soon to be unveiled. Send your Members of Congress a note supporting NIH funding. mda.org/supportNIH

Applications are now open for @MDAorg's 2026 Summer Camp. mda.org/press-releases…

Community member, Erika, shares her journey living with CMD in her latest book, It's Normal to be Different: Rolling Through Life With Muscular Dystrophy. musculardystrophyuk.org/about-us/stori…

Rare Disease Week on Capitol Hill 2026 Registration is Now Open! This event brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. 📆 February 24 - 26, 2026📍Washington, D.C. REGISTER: everylifefoundation.org/rare-advocates…

Happy New Year! 🎊

Don’t forget about our $100,000 match opportunity! Get those donations in before end of year to DOUBLE your impact: curecmd.org/2025

Our Season of Giving is well underway. You can truly make a difference for CMD. Help fuel research & hope for our community. Don't Miss Our $100,000 Match Opportunity: curecmd.org/2025

Collaboration between researchers and CMD families is what drives progress. Researcher, Veronica Pini & CMD Dad, David Dildine explain their perspectives. Support progress in CMD science: curecmd.org/2025

In this last video of our Season of Giving spotlight series, Dr. Pamela Barraza-Flores shares how a chance connection led to a game-changing collaboration, bringing new technology into CMD research. Support science: curecmd.org/2025

Congress is currently considering approaches to fund the NIH and secure medical research funding for the neuromuscular disease research ecosystem. Please contact your Congress members and urge them to support strong medical research funding. votervoice.net/MDA/Campaigns/…