The Kennedy Ladd Foundation

@DrMakaryFDA @realDonaldTrump

@DrMakaryFDA Then why do you keep blocking access for children with MPS II AND IIIA to 3 drugs proven safe and effective through years long trials with a scientifically proven biomarker. The ultra rare community will no longer stand by and wait for our children to die.

Some FDA decisions are taking WEEKS. Thank you to the dedicated FDA scientists who are making this unprecedented efficiency possible.

@DrMakaryFDA Walk the walk! Rare Disease kids are suffering/dying because the @US_FDA is not using their authority and flexibility given to them by congress! Accelerated approval is not being used.

@timburchett Thank you for a response and your side.

They are lying to you.

Thank you @wbir! Be on the look out for our segment on Live at Five at Four! wbir.com/mobile/article… #withawarenesscomesacure #fightmps1 #prayingforkennedyandlincoln #cure2025 #curehurler2025 #5k #wiffleball #knox #roane #local #run865

Thank you!

@RoaneSportsTN Please help us get the word out about Run for A-Rare-Ness and Wiffle for a CURE that is happening May 8th in Harriman TN! Kennedyladd.org/5k #roane #run865 #5k #wiffleball #cure #local #nonprofit

@RoaneSportsTN @TweetChase_25 Thank you!

This is a GREAT cause to support.

Support us tomorrow by tuning into @wbir Live at Five at Four to hear more about Run for A-Rare-Ness and Wiffle for a CURE! Kennedyladd.org/5k

Are you a @y12nsc employee? Contact LIVEWISE and find how they will support you to run in the Run for A-Rare-Ness on May 8th in Harriman, TN! #5k #wiffleball #withawarenesscomesacure #run865