CurePSP

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CurePSP

CurePSP

@CurePSP

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

New York, NY Katılım Nisan 2009
1.1K Takip Edilen3K Takipçiler
CurePSP
CurePSP@CurePSP·
Final reminder: Abstract submissions for Neuro2026: The PSP & CBD International Research Symposium will close June 30th. Researchers & clinicians are invited to submit abstracts focused on PSP, CBD & related tauopathies/proteinopathies. Learn more: give.curepsp.org/Neuro2026
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CurePSP@CurePSP·
Neuro2026: The PSP & CBD International Research Symposium takes place Nov 5–6, 2026 in London, UK, bringing together researchers & clinicians focused on PSP, CBD & related tauopathies for two days of neuroscience, collaboration and idea exchange. 🔗 give.curepsp.org/Neuro2026
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CurePSP
CurePSP@CurePSP·
The Hilton London Bankside is the host hotel for #Neuro2026, with all symposium activities in one central location. Enjoy easy access to sessions, dining & cultural landmarks while connecting with PSP & CBD researchers from around the world. 🔗 give.curepsp.org/Neuro2026
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CurePSP@CurePSP·
Abstract submissions are now open for #Neuro2026. Researchers, clinicians and professionals are invited to submit their work advancing PSP and CBD research across basic, translational and clinical science. Deadline: June 30, 2026 🔗 give.curepsp.org/Neuro2026
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CurePSP@CurePSP·
🌍 The 2026 @CurePSP Spring Community Weekend is coming! Join us for a weekend of education, connection and community—including the Run For Hope 5K Trail Run & 1 Mile Walk. Hotel block available for attendees; book early! 🔗 Details & registration: give.curepsp.org/SCW2026
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CurePSP@CurePSP·
Funds raised through the Southwest Florida PSP Support Group Walk fuel programs that bring care, connection & progress to families with PSP, CBD & MSA. Every step & dollar supports caregivers, education & research. Join us: give.curepsp.org/MarcoIsland2026
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CurePSP@CurePSP·
⏰ Abstract deadline: Feb. 18, 11:59 PM EST—just 1 week left! Share your tau research with global experts. ISTAART members: Feb. 23 Submit: alz.org/tau #TauResearch #Tau2026
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CurePSP@CurePSP·
Introducing the CurePSP Prepare to Care Workbook 📝 A practical, easy-to-use resource designed to help individuals and families living with PSP, CBD or MSA organize essential information, prepare for appointments and support coordinated care. 🔗 psp.org/resource-libra…
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CurePSP@CurePSP·
✈️ Travel Assistance is available! #CurePSP offers grants up to $1,500 to help care partners & individuals living with PSP, CBD or MSA with travel expenses. ⏰Deadline Jan 25, 2026 📨 Notifications: Feb 16, 2026 Apply here: give.curepsp.org/SCW2026
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CurePSP@CurePSP·
Join us for a weekend of connection, learning and community at the 2nd Annual #CurePSP Spring Community Weekend, May 1–2, 2026 in Los Angeles. ☀️ 🔗 Learn more & Register: give.curepsp.org/SCW2026
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CurePSP@CurePSP·
Congress must pass the CONNECT for Health Act (S.1261/H.R.4206) and the Telehealth Modernization Act (H.R.5081) to prevent future disruptions to telehealth access for our community. #HealthPolicy #CurePSP
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CurePSP@CurePSP·
Telehealth is essential for people living with PSP, CBD & MSA—especially for access to neurologists and specialty care. Without Congressional action, key Medicare telehealth flexibilities expire Jan 30. 🚨 Take action: mstr.app/da8dd5da-740a-… #CurePSPAdvocacy #Telehealth
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