CurePSP

Your local leaders can help raise awareness for PSP, CBD and MSA — they just need to be asked. CurePSP's guide shows you exactly how to make it happen.📋 psp.org/moa-resolution… #CurePSP #Advocacy #RareDisease

Ready to make a difference? 👟 Join us for the Run For Hope 5K & 1-Mile Walk at the 2026 #CurePSP Spring Community Weekend in LA! 📅 May 2, 2026 🔗 give.curepsp.org/SCW2026 #RunForHope #BecauseHopeMatters #RareDisease

🌍 The 2026 @CurePSP Spring Community Weekend is coming! Join us for a weekend of education, connection and community—including the Run For Hope 5K Trail Run & 1 Mile Walk. Hotel block available for attendees; book early! 🔗 Details & registration: give.curepsp.org/SCW2026

Registration is open for Neuro2026: The PSP & CBD International Research Symposium. Join global experts in London on Nov 5–6, 2026 to advance the future of PSP and CBD research. Register now: give.curepsp.org/Neuro2026 @PSPAssociation #CurePSP #PSPA #Neuro2026 #PSP #CBD

Funds raised through the Southwest Florida PSP Support Group Walk fuel programs that bring care, connection & progress to families with PSP, CBD & MSA. Every step & dollar supports caregivers, education & research. Join us: give.curepsp.org/MarcoIsland2026

Introducing the Louder than Words: CurePSP Voice Program, assisting people with PSP, CBD and MSA preserve their voice and stay connected through free voice banking + AI technology. Learn more: psp.org/voice-program #CurePSP #VoiceBanking #AssistiveTechnology

⏰ Abstract deadline: Feb. 18, 11:59 PM EST—just 1 week left! Share your tau research with global experts. ISTAART members: Feb. 23 Submit: alz.org/tau #TauResearch #Tau2026

Introducing the CurePSP Prepare to Care Workbook 📝 A practical, easy-to-use resource designed to help individuals and families living with PSP, CBD or MSA organize essential information, prepare for appointments and support coordinated care. 🔗 psp.org/resource-libra…

⏰ Last reminder! Applications for the #CurePSP Student Fellowship Program close January 31, 2026. Ensure your research proposal is polished and submitted by 5pm ET. Contribute to advancing knowledge in #PSP and #CBD. 🔗 psp.org/iwanttolearn/s… #Research #CurePSPFellowship

✈️ Travel Assistance is available! #CurePSP offers grants up to $1,500 to help care partners & individuals living with PSP, CBD or MSA with travel expenses. ⏰Deadline Jan 25, 2026 📨 Notifications: Feb 16, 2026 Apply here: give.curepsp.org/SCW2026

Join us for a weekend of connection, learning and community at the 2nd Annual #CurePSP Spring Community Weekend, May 1–2, 2026 in Los Angeles. ☀️ 🔗 Learn more & Register: give.curepsp.org/SCW2026

Congress must pass the CONNECT for Health Act (S.1261/H.R.4206) and the Telehealth Modernization Act (H.R.5081) to prevent future disruptions to telehealth access for our community. #HealthPolicy #CurePSP

Telehealth is essential for people living with PSP, CBD & MSA—especially for access to neurologists and specialty care. Without Congressional action, key Medicare telehealth flexibilities expire Jan 30. 🚨 Take action: mstr.app/da8dd5da-740a-… #CurePSPAdvocacy #Telehealth

🔬 Applications are open for the CurePSP Student Fellowship Program! Students and trainees can advance #PSP & #CBD research and make a lasting impact. 🗓 Deadline: Jan 31, 2026, 5 PM ET 🔗 psp.org/iwanttolearn/s… #CurePSP #Research #CurePSPFellowship #Neuro

⏳ Final Reminder: The #CurePSP Biomarker Accelerator Program is accepting Letters of Intent for research advancing biomarker discovery to improve diagnosis, clinical care and research for PSP. Deadline: Dec 15, 2025, 5 PM ET 🔗 psp.org/biomarker-acce… #Biomarkers #Research

The financial impact of PSP, CBD & MSA goes far beyond medical bills. #CurePSP’s research survey aims to capture both direct & hidden costs to better inform advocacy and resources. Help us spread the word: 👉 surveymonkey.com/r/YXWG6W #HealthEconomics #Neuro

CurePSP invites you to apply for the Student Fellowship Program! Shape the future of #PSP and #CBD research by submitting your application today. 🔍 🗓 Deadline to apply: January 31, 2026, at 5 PM ET 🔗 psp.org/iwanttolearn/s… #CurePSP #Research #CurePSPFellowship #Neuro

Join our Ask the Expert webinar on Dec 9 with Dr. Tao Xie & Dr. Michiko Bruno discussing healthcare access disparities in PSP, CBD & MSA. Learn how their findings will improve care for underserved communities. Register: us02web.zoom.us/webinar/regist… #AskTheExpert

Applications are open for the #CurePSP Biomarker Accelerator Program! Funding supports research advancing biomarker discovery to improve diagnosis, research & care for PSP. 🗓️ LOIs due Dec 15, 2025, 5 PM ET. 🔗 psp.org/biomarker-acce… #Biomarkers #Research #Neurodegeneration

⏳ Last chance to apply! CurePSP’s Pathway & Pipeline Grant Program supports early career researchers leading cutting-edge PSP & CBD projects. Deadline: Oct 15, 2025, 5PM ET. 📎 #page-section-research-grants" target="_blank" rel="nofollow noopener">psp.org/for-researcher… #BecauseHopeMatters #CurePSPGrants #ResearchGrants