Down's Syndrome Association

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Down's Syndrome Association

Down's Syndrome Association

@DSAInfo

Supporting people who have Down's syndrome to live full and rewarding lives.

London, UK Katılım Haziran 2009
2.8K Takip Edilen21.1K Takipçiler
Down's Syndrome Association
The DSA's response to a recent, upsetting story, that has been circling the news: We are concerned to read the heartbreaking story in the media about Alex and are reaching out to the relevant authorities to find out how this appalling situation has occurred, and what we as the Down's Syndrome Association can do to support Alex. Please read the full article here to find out more: loom.ly/7NhPOOk
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@LynetteForbes17 @rdgchronicle We are concerned to read the heartbreaking story in the media about Alex and are reaching out to the relevant authorities to find out how this appalling situation has occurred, and what we as the Down's Syndrome Association can do to support Alex.
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We are looking for parents contacts (on behalf of a parent) where an adult who has Down's syndrome, has a diagnosis of Type 1 diabetes. If you can help, please email stuart.mills@downs-syndrome.org.uk Thank you. 🙂
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Today (12 May 2026) is International Nurses Day! 🧑‍⚕️ Today, on International Nurses Day, we say a big 'thank you' to all nurses who help support the health of people who have Down’s syndrome. From GP practice nurses involved in Annual Health Checks, nurses working in acute hospital care, to Learning Disability Nurses who often provide more specialist advice and support, we are grateful for their skill and compassion in helping people who have Down’s syndrome stay well, or providing treatment when they become ill. The DSA has a wide range of resources on all aspects of health and wellbeing, you can read more about these here : downs-syndrome.org.uk/about-downs-sy…
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The recording of our final Schools White Paper webinar, - on is also now available on YouTube: youtu.be/VpuybMobUbY?si… This webinar is designed to support parents and carers of children and young people who have Down’s syndrome to take part in the SEND consultation with confidence and clarity.
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Over recent months, the Down’s Syndrome Association (DSA) has been deeply committed to engaging with the proposals set out in the Government’s Schools White Paper and SEND consultation. We are in the final stages of drafting our response. As with our work on the Down Syndrome Act guidance, our response has been shaped by two equally important sources: long‑standing professional expertise and the lived experience of parents/carers of children and young people who have Down’s syndrome. The White Paper sets out an ambition for a more inclusive, consistent and accountable SEND system. We share that ambition. Families want a system that works early, works fairly and works lawfully, not one they must fight simply to secure basic support. Please read our full response over on our website: downs-syndrome.org.uk/news/news-rese…
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We’re excited to share that we have a limited number of charity places available for the 2027 London Marathon. 🏃 Due to high demand, places will be allocated through an application process. Once applications close, shortlisted applicants will be entered into a ballot. We’re looking for passionate, committed individuals who are excited to make a difference and be part of the team. This is your opportunity to take part in an iconic event while supporting people who have Down’s syndrome and their families across the UK. Please note: there is a £100 registration fee and a minimum fundraising target of £2,500. You can enter here: downs-syndrome.org.uk/get-involved/r…
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Recordings of previous Schools White Paper events that we held recently: 1: Understanding the Schools White Paper: What Families Need to Know. 2: SEND Consultation: Twilight Event for Professionals in Education, Health and Care. These have been uploaded to our YouTube channel for you to watch in your own time, please click here: #EventRecordings" target="_blank" rel="nofollow noopener">downs-syndrome.org.uk/our-work/campa…
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Early communication webinar with Gwendolina Toner: Thursday 7 May 2026 | 1.30 – 2pm | FREE In this short webinar we will discuss early communication development. This webinar is suitable for parents whose child is aged approximately 0-3 years. Please sign-up here: downs-syndrome.org.uk/our-work/servi… *Please check your spam folder for your confirmation and reminder emails. Your confirmation email will arrive 5 to 10 minutes after registration.
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Local elections will be taking place on the 7 May 2026. Please make sure that your voice is heard by making your vote! Local elections are important because it's when decisions are made about the services that we all rely on, including: social care, accessible transport and leisure centres, police, education and roads. Handy information can be found here: myvotemyvoice.org.uk/how-politics-w… You may also find our 'Policy Consultations' resource helpful: downs-syndrome.org.uk/wp-content/upl… #MyVoteMyVoice
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