Bahar - Digital Youth Programme Coordinator

If you're a young person with #cysticfibrosis or a CF connection, join a community of children and young people at @cftrust 's youth Instagram - details below!

📣📣THIS ACCOUNT IS NO LONGER ACTIVE!!! 🤗Please head over to our #Instagram page for support for children and young people with #cysticfibrosis 👇👇 instagram.com/cftrustyouth/ ✉️Email cfyouth@cysticfibrosis.org.uk to find out more about our #youthprogramme

We will be closing down our youth Twitter page on 4th April. But don't worry, you can still follow us on our youth #Instagram page - link below! Our Instagram aims to empower children and young people with #cysticfibrosis or who have a CF connection 👇👇 instagram.com/cftrustyouth/

On the prescriptions, people with #cysticfibrosis have shared the impact having to pay for their daily medicines has on their lives. Read the story in full on our website now. ➡️ bit.ly/3L8Fb3s

Today we delivered over 1,000 signed prescriptions from the CF community to @10DowningStreet, calling on the Prime Minister to urgently review the outdated prescription charges exemption list, drawn up in the late 1960s.

CF Youth is holding their next online Games Night on 14 March, perfect for your little ones aged 8-11. Brothers and sisters welcome. Email cfyouth@cysticfibrosis.org.uk to sign up or for more info. #kidsgaming #gamesnight #cysticfibrosis

This week we're spotlighting Robert, aged 8, who has #cysticfibrosis and joined the youth programme's #artsandcrafts workshop, made art + met other children with cf safely online! Email cfyouth@cysticfibrosis.org.uk to for more info on how to join the youth programme! #MondayMuse

This #RareDiseaseDay we’re focusing on 5 things people with #cysticfibrosis who are unable to benefit from CFTR modulators should know. We won’t stop until everybody with CF can access the treatments they need. (1/6)

Its been over 3 months without streaming so I had to open with the classic Obi-Wan line 😉.

Spotlighting Daisy who has #cysticfibrosis + her lil bro Michael! They joined the youth programme's #artsandcrafts workshop, made art + met other children with cf safely online! Email cfyouth@cysticfibrosis.org.uk to for more info on how to join the youth programme!

Join us next Friday for the next online Games Night of the year, aimed at young people with #cysticfibrosis aged 12-18 and siblings. Game, chat, make friends! Email cfyouth@cysticfibrosis.org.uk to book a place now! #cftrust #cysticfibrosistrust #cfyouth #videogames #gaming

Our Helpline is available to anyone looking for information or support with any aspect of #cysticfibrosis. We’re here Monday – Friday, from 10am – 4pm. Get in touch via 0300 373 1000, helpline@cysticfibrosis.org.uk, or you can DM us on social media.

Next up in our series of staff videos celebrating 2022 highlights, we welcome Ellie from our CF Youth Team 💛 Ellie tells us all about her 2022 highlight: Presenting our Youth Advisory Group research project at the European Cystic Fibrosis Conference in Rotterdam! @CFTrustYouth

Did you see New Year's Eve's episode of Pointless Celebrities? Comedian Tim Key won £1375 for Cystic Fibrosis Trust! Huge welldone for your efforts on the show, and thank you for choosing our charity! @timkeyperson #pointless

If you'd like to know more about the #BuildingBrighterFutures youth programme and the fabulous range of events we have for children and young people with #cysticfibrosis in the new year, email cfyouth@cysticfibrosis.org.uk to sign up! #HappyHolidays

✨️🤓🎮 We were thrilled when BBC Sport wanted to share a story about Izzy talking about the positive impact our #gamesnights have had on living with #cysticfibrosis bbc.co.uk/sport/av/63640… To find out more about the youth programme email cfyouth@cysticfibrosis.org.uk

Looking for some gift inspiration? 🎁 We are delighted to share our Christmas Gift Guide, highlighting some amazing businesses that donate to Cystic Fibrosis Trust. All while raising awareness and making a difference in the lives of those with CF. cysticfibrosis.org.uk/get-involved/f…

Our next event, #Magic Workshop for children with #cysticfibrosis aged 6-10 & siblings is out! They will get a magic show & learn some tricks to impress their friends. Pictured is Joel; he joined our last Magic Workshop. Email cfyouth@cysticfibrosis.org.uk to book your space.

@CFTrustYouth's new event, Magic Workshop for children aged 6-10 & their families is out! They will get a magic show & learn some tricks to impress their friends. Pictured is Joel; he joined our last Magic Workshop. Email cfyouth@cysticfibrosis.org.uk to book your space.

@DYOO_cft is filmed here alongside the wonderful Izzy aged 12, talking about how #videogames have played a big role in the lives of young people with #cysticfibrosis! Interested in joining the youth programme? Email cfyouth@cysticfibrosis.org.uk today! twitter.com/cftrust/status…