IDEOM

At last year’s meeting, the Psoriatic Disease Workgroup shared progress on DermSat-11, psoriasis remission, IDEOM MSK-Q validation, and better PsA screening + management with PEST and PsAID-12. More this June at IDEOM’s Annual Meeting! #Psoriasis #PsA

Up to 41% of psoriatic arthritis cases may go undiagnosed, increasing the risk of joint damage. IDEOM highlights how adding PEST + PsAID-12 to the EMR may support earlier detection and better PsA management. jddonline.com/articles/strea…

What does meaningful progress in vitiligo research look like? At last year’s IDEOM meeting, the Vitiligo Workgroup validated key domains in the vitiligo model & used them to develop a new patient satisfaction tool focused on experiences existing measures don’t capture. #Vitiligo

For many patients, itch is the most disruptive part of skin disease. At IDEOM’s meeting, the Itch Workgroup highlighted growing consensus around the WI-NRS as a key measure of patient experience & discussed treating itch as a condition in its own right. #Dermatology #Itch #IDEOM

Evans Kojo Baffoe shares how he found IDEOM and why he’s advocating for better psoriasis awareness, support, and access to care in Ghana and across Africa. Watch his full interview: dermoutcomes.org/resources/pati… #Psoriasis #IDEOM

IDEOM will be at Lisbon GRAPPA 2026 🇵🇹 If you’re attending @GrappaO , we’d love to see you at our open IDEOM gathering to connect and advance patient-centered outcomes work together. Find us there! #GRAPPA #GRAPPA26 #IDEOM #Dermatology

We build patient-centered outcome measures. 2024 Annual Meeting report just published: psoriatic disease work includes PEST + PsAID-12 in 26 clinics to help detect PsA earlier: bit.ly/3N1ouud #DermResearch WG: @JosephMerolaMD, @_AprilArmstrong, Perez-Chada, & Gottlieb

At IDEOM, we don’t just develop outcome measures, we build the ecosystem that makes them meaningful. Patients, researchers, payers & clinicians all have a seat at the table. And yes, our tools are always free to use! #PatientCenteredCare #DermTwitter

CTCL patients say “average itch” misses the point... itch flares. Measuring worst itch + sleep/function impact better reflects lived experience. Shoutout to Jenny Park & @krithikanayudu (IDEOM CTCL Workgroup). #CTCL #IDEOM #PatientCenteredResearch

Sat down with John Barbieri, MD, MBA, Co-Leader of ACORN (IDEOM’s Acne Workgroup), for a quick Q&A on building patient-centered, standardized outcomes in acne research. Check out what he had to say: linkedin.com/feed/update/ur… #IDEOM #ACORN #Acne #Dermatology #ClinicalTrials

ACORN (IDEOM Acne Workgroup) update: building a core outcome set, lesion counts/IGA + patient global; scars & dark marks: ACNE-Q Dyspigmentation now field testing; HRQoL: ACNE-Q/CompAQ; tx satisfaction: DermSat-7. Read more about their work: dermoutcomes.org/workgroups/acn… #Acne #IDEOM

A 2025 JID scoping review found acne scarring & dyspigmentation outcomes rely on mostly unvalidated tools & no validated dyspigmentation PROMs. IDEOM’s Acne Workgroup, chaired by Barbieri, Layton & Tan, is working to close that gap. jidonline.org/article/S0022-… #Dermatology #IDEOM

Chaquira says she’s proud of her younger self for speaking up. Her message now: your story matters more than you know and someone out there needs to hear it. Watch her full story: dermoutcomes.org/resources/pati… #HSWarrior #ChronicIllnessJourney #PatientVoices

An invitation from her dermatologist led Chaquira to IDEOM and to a seat at the table. Today, she’s a Patient Research Partner and Board Member helping keep HS research patient-centered. Full interview: dermoutcomes.org/resources/pati… #IDEOM #PatientAdvocacy #PatientVoices

HS is often invisible, but the stigma isn’t. Chaquira shares how shame, assumptions, and feeling like “the problem” shaped her early years with HS. No one should suffer in silence. Watch her story: dermoutcomes.org/resources/pati… #InvisibleIllness #HidradenitisSuppurativa

For Chaquira, getting diagnosed with HS meant clarity. It helped her stop blaming herself and understand her body, and reminded her she’s more than her condition. Answers can be powerful. Full interview: dermoutcomes.org/resources/pati… #HSJourney #PatientVoices

Chaquira has lived w/ HS for 15 years, nearly 10 of them without a diagnosis. What looked like a simple ingrown hair turned into years of pain and unanswered questions. Watch her full story: dermoutcomes.org/resources/pati… #HidradenitisSuppurativa #HS #PatientVoices

New report from the 2024 IDEOM Annual Meeting highlights progress in patient-reported outcome measures across dermatology. Read more: jddonline.com/articles/repor… #IDEOM #DermResearch #PatientCenteredCare

Happy New Year from IDEOM ✨ Grateful for our patient research partners, physicians, and all collaborators who help advance patient-centered dermatology research. Here’s to another year of progress together! #HappyNewYear #IDEOM #Dermatology

At her first IDEOM meeting, HS images triggered deep emotions. What stayed with her was the support. Patients and researchers stepping in, listening, & making change together. That’s what community looks like. 😊 Full story: dermoutcomes.org/resources/pati… #HSCommunity #PatientSupport