A Call for Urgent Action: Better Trials and Inclusion for ME/CFS Patients in the NIH Long Covid initiative. We have sent this letter to the @NIH Director, Monica Bertagnolli, urging the inclusion of #MECFS (chronic fatigue syndrome) in the RECOVER Initiative, which currently focuses only on #LongCovid. We highlight that ME/CFS has affected millions for decades without FDA-approved treatments. In the letter we stress that, although Long COVID and ME/CFS share similarities, they differ in origin and may require different treatments. We are therefore calling for better trials, greater patient inclusion, and the use of more comprehensive diagnostic tools to ensure progress also for the much-neglected and highly debilitating ME/CFS. The millions suffering deserve this.
