Dr Adam

All set up and poster tour showcasing @worldpdcongress and even wearing my @fahrbeyond tshirt :) Fahr's Disease: where are we at with this parkinsonism? @uclqsion @FraMagrinelli @kailashbhatia @amitbatla #Fahrs #WPC2026

Got to Phoenix and the @WorldPDCongress Here's to what promises to be a fantastic week

It was great to catch up with @nickhillman from @HEPI_news a few weeks ago in Nottingham. A pleasure to showcase our wonderful campus. It was fabulous to discuss the latest developments in HE & forthcoming HEPI blog piece (3rd July) based on my PhD - studen behaviours #higherEd

Just enjoying breakfast, warm drink, and it would be rude not to have the signature cocktail - Skyline 75, ahead of the flight from Heathrow to Phoenix for the @WorldPDCongress

BRC-supported research identifies new genetic cause of severe neurological disorders uclhospitals.brc.nihr.ac.uk/news/brc-suppo… Thanks to @UCLHresearch for supporting my clinician scientist trajectory

Delighted to be at the #GUSAcadSummit26, an interesting and insightful morning , a pleasure to meet so many fabulous people across the GUS group. @GlobalUniSystem @Arden_Uni @marceloclaure @DawneIrvingBell @duncan_cross

We are delighted to have become a member of @eurordis, we look forward to being better placed to represent the voices of people with #Fahrs / #PFBC

Here starteth the journey to London, see you soon @DawneIrvingBell

This week has been rather productive and successful 😁

A big thank you to everyone who has and continues to support us on this important mission to support people with #Fahrs @QS_RareMD @UCLIoN @pbearneITV @thismorning @GMB @BBCHughPym @eurordis @GeneticAll_UK @JOCampbellMP @NeuroAlliance @ignatius_sancho

@hintondm @dibyeshanand @DawneIrvingBell @suebecks @Jac_Potter @RtHonRobHalfon @bphillipsonMP @jim_dickinson @VirnaRossi @SMarshallYork @ProfEdwardPeck @CTLOxford @sd_elkington @EdenLSE @BradS4 @ProfSallyBrown @paulashwin @DrMarkGriffiths @dr_byrom @cuthbert_kate @ProfWGarnham

Having designed, developed, and led an Academic Professional Apprenticeship @Bianca_Fox82 and I reflect in our @Wonkhe piece on the implications of defunding the L7 provision for Early Career Academics & Teaching quality. wonkhe.com/blogs/thinking… #LTHE #HigherEd

@trentbartonland Cemetery Road, Stapleford. Literally two arrived at the same time and now in convoy. Must be bad traffic today delaying them.

@Adam_Tate1 Can we confirm the stop and direction please ?~ Ade

.@trentbartonland what is happening with the i4 this morning, supposedly two bus have come and gone according to the info board during time I've been stood here since 8:00 yet nothing so far 🤷‍♂️

Back to the GP for more blood tests, arm at this rate is like a pin cushion

Join us Thursday, May 28th at 3:00 PM (UK time) for a session with Dr Balck & Dr Magrinelli discussing the latest in #PFBC (#FahrsDisease). Don’t miss this chance to stay ahead in understanding this #raredisease, space is limited! For your ticket: eventbrite.co.uk/e/latest-updat…

🚨 Flyer out! The next Queen Square Basal Ganglia Club meeting will host Prof. Josep Dalmau and Prof. Bettina Balint on Movement Disorders and Autoimmunity. 📍 NHNN, London 📷 4pm All are welcome. Please 🔁 @kailashbhatia @UCLIoN @UCLIoN_DCMN @MDC_IoN_UCL @neurolib

As Vitamin D was low posing an issue for the trial, I now have a few more. An updated smile, with all 17 thing tablets + sachet. Living with a neurological #raredisease is not always easy, it isn't necessarily visible. You don't know what others are facing in their lives.

Almost all of my daily dosage of medication, 4 more to the addition as part of the Calcifade trial. Let's see what happens. #Fahrs #PFBC @QS_RareMD @UniUtrecht @kailashbhatia @FraMagrinelli @FahrBeyond

Preparing for a day at the National Hospital for Neurology and Neurosurgery for baseline tests for onboarding onto the Calcifade clinical trial, looking at the efficacy of etidronate for #Fahrs Sustenance ahead of that from cafe @LeCordonBleuLDN @QS_RareMD @FraMagrinelli