ECHDO

📌 We've moved. Please find us on #Bluesky @ECHDOHeart 👉 bsky.app/profile/echdoh…

🚨 A reminder post that we can now be found on #Bluesky ... 👉bsky.app/profile/echdoh…

👉Introducing ECHDO's Secretary. 💕 𝐅𝐫í𝐝𝐚 𝐁𝐣ö𝐫𝐤 𝐀𝐫𝐧𝐚𝐫𝐝ó𝐭𝐭𝐢𝐫 For the past 16 years, I have been actively involved with Neistinn, an organization close to my heart. 🌟 Read more about Frida here: echdo.eu/our-team #CHD #ECHDO #CHDCommunity

𝐇𝐞𝐚𝐫𝐭𝐟𝐞𝐥𝐭 𝐒𝐮𝐩𝐩𝐨𝐫𝐭 𝐒𝐭𝐚𝐫𝐭𝐬 𝐇𝐞𝐫𝐞.❤️ Every donation makes a heartbeat stronger. Donate to our congenital heart charity, and help us provide vital services for people living with #CHD. 👉 paypal.com/donate/?hosted… 💙 #CHDsupport #DonateNow #HeartStrong

👉Introducing ECHDO's Treasurer. 💕 𝐑𝐨𝐛 𝐍𝐢𝐜𝐨𝐥𝐥 I'm Rob Nicoll and have been on the Board of ECHDO since 2021 Initially as a Director, then Vice President and currently as the Treasurer. Read more about Rob here: echdo.eu/our-team #CHD #ECHDO #CHDCommunity

𝗛𝗲𝗹𝗽 𝗛𝗲𝗮𝗿𝘁𝘀 𝗕𝗲𝗮𝘁 𝗦𝘁𝗿𝗼𝗻𝗴𝗲𝗿! ❤️ It’s #FundraisingFriday and the start of our donation drive! Every heartbeat matters. Your support helps us empower those with #CHD.🙌 💖 Donate via PayPal: paypal.com/donate/?hosted… #CHDCharity #MakeADifference #HeartCommunity

👉 Meet ECHDO's Vice President. 💕 𝐄𝐦𝐢𝐥𝐢𝐞 𝐌𝐢𝐤𝐚𝐥𝐬𝐞𝐧 "I’m from Norway and therefore I will also be representing the Norwegian Association for Children with Congenital Heart Disease." Read more about Emilie here: echdo.eu/our-team #CHD #ECHDO #CHDCommunity

👉 Meet ECHDO's president. 💞 𝐋𝐞𝐧𝐞 𝐎𝐬𝐦𝐮𝐧𝐝𝐬𝐞𝐧 "I am a CHD-patient representing the Norwegian adult CHD association «Voksne med medfødt hjertefeil» (VMH). Read more about Lene here: echdo.eu/our-team #CHD #ECHDO #CHDCommunity

We’re thrilled to invite you to the Global ARCH Virtual Summit this Nov! 🌍📷 Join us as we explore care gaps, collaboration opportunities, and the future of childhood-onset heart disease care #GlobalARCH #VirtualSummit #CHD #RHD #PatientCare

Thank You to all our followers and member for taking part in our “HeartToHeart” Autumn Campaign. ❣️🙏 #HeartToHeart #ECHDO #MentalHealthCampaign2024 #CHD

“𝐇𝐨𝐰 𝐭𝐨 𝐡𝐞𝐥𝐩 𝐲𝐨𝐮𝐫𝐬𝐞𝐥𝐟” There is a range of things that you can do to help improve your mental wellbeing. 💓 Find our 7 helpful steps in our blog post: echdo.eu/content/how-he… #HeartToHeart #ECHDO #MentalHealthCampaign2024 #CHD

📢 Webinar with Dr. Liza Morton 💓 Missed her 2023 AGM talk on medical trauma? We're excited to rerun it on October 13th, 19:00-20:30 (Teams). ECHDO members, check your email for the link! Don’t miss out! #HeartToHeart #ECHDO #MentalHealthCampaign2024 #CHD

Research shows that about 40% of people with a long-term condition have a mental health concern. Read our post on Statistics on mental health: echdo.eu/content/statis… #HeartToHeart #ECHDO #MentalHealthCampaign2024 #CHD

Read Konstantinos' raw and vulnerable personal story with CHD and mental health, as well as his honest opinion about the national health care system in Greece. #HeartToHeart #ECHDO #MentalHealthCampaign2024 #CHD

📌 ECHDO members Webinar with Dr. Edward Callus 7 October. *The link to the webinar has been sent to members via email, if you haven’t received an email please do not hesitate to contact us on info@echdo.eu. #HeartToHeart #ECHDO #mentalhealthcampaign2024 #CHD

Healing Hearts and Minds 💓 This book comes highly recommend, either you are a patient, family member, friend or health care professional. 💞 echdo.eu/content/healin… #HeartToHeart #ECHDO #MentalHealthCampaign2024 #CHD

When Katarina Stano was pregnant with her firstborn, life felt picture-perfect. At 12 weeks the obstetrician detected a problem with their baby`s heart. 💞 👉 Read the full story here: echdo.eu/content/katari… #HeartToHeart #ECHDO #mentalhealthcampaign2024 #WorldHeartDay #CHD

It is official! On behalf of every single person out there living with CHD, their friends and families; ECHDO is proud to announce our very first autumn campaign called “HeartToHeart”. 💓 👉echdo.eu/content/heartt… #HeartToHeart #ECHDO #MentalHealthCampaign2024 #WorldHeartDay

Tomorrow, the 29th of September, in honour of #WorldHeartDay, we are excited to launch our new autumn campaign focusing on mental health in people living with congenital heart disease. Stay tuned and follow ECHDO to know more. 💓 #HeartToHeart #ECHDO #mentalhealthcampaign2024

Hello #HeartCommunity! 👋 We need your stories! We want to hear about your #MentalHealth and #CHD for our upcoming #AutumnCampaign. 🍂 Mental health professionals & loved ones of CHD are invited too. DM us, or email on info@echdo.eu. #Heart2Heart #ECHDO