EDS Today

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EDS Today

@EDS_Today

Nonprofit - Ehlers-Danlos Syndromes. Sadly, many never receive a proper diagnosis or treatment within their lifetime.

Katılım Nisan 2009
483 Takip Edilen5.6K Takipçiler
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EDS Today
EDS Today@EDS_Today·
VEDS Study is now open to (ALL)children under 18, and those who have lost their lives. Their next-of-kin can enroll them. They can still be counted, have a voice, and make a difference for others (in their memory)💔😪Thank you! bit.ly/2WmsLMc #vascularEDS #ehlersdanlos
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EDS Today
EDS Today@EDS_Today·
There’s a misleading, inaccurate quote that should be corrected. VEDS is “NOT” typically diagnosed in childhood. It’s often misdiagnosed or diagnosed after death….if they even know to look for it, at all! “The eye cannot see what the mind does NOT know.”
Aytu_BioPharma@AytuBioPharma_

Aytu BioPharma Announces FDA Clearance of Investigational New Drug (IND) Application for AR101/Enzastaurin in Vascular Ehlers-Danlos Syndrome accesswire.com/677123/Aytu-Bi…

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Aytu_BioPharma
Aytu_BioPharma@AytuBioPharma_·
Aytu BioPharma Announces FDA Clearance of Investigational New Drug (IND) Application for AR101/Enzastaurin in Vascular Ehlers-Danlos Syndrome accesswire.com/677123/Aytu-Bi…
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EDS Today
EDS Today@EDS_Today·
Happy Thanksgiving from our table to yours...wishing you all the best!
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Aytu_BioPharma
Aytu_BioPharma@AytuBioPharma_·
“It’s a monster that’s sleeping right now.” Thank you, Annie, for sharing your #VEDS story with us. Visit our website to hear her full story, learn about our upcoming clinical trial, and to find out why we’re #ChargingForward4VEDS: bit.ly/3BUa3xX
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The VEDS Movement
The VEDS Movement@VEDSMovement·
The VEDS Movement is saddened to hear of the passing of Trevor Jones. Our condolences go out to his family, friends, and anyone touched by his journey in life. Please help us to continue to spread awareness of #VEDS in our effort to save lives. buff.ly/3G7rNIc
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EDS Today
EDS Today@EDS_Today·
👏🏻 thank you too!
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The VEDS Movement
The VEDS Movement@VEDSMovement·
Get October declared as VEDS Action Month in your area! Find out how here: buff.ly/2XSLSAi
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Aytu_BioPharma
Aytu_BioPharma@AytuBioPharma_·
Aytu BioPharma Announces Formation of New Scientific Advisory Board to Support Development of AR101 for Vascular Ehlers-Danlos Syndrome irdirect.net/prviewer/relea…
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EDS Today
EDS Today@EDS_Today·
@AmyYasbeck4real Absolutely, he was/is beloved...forever! You’re in our hearts 😘❤️😪
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Amy Yasbeck
Amy Yasbeck@AmyYasbeck4real·
Can you all retweet this??? That would be Sweeeet!!!
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