EDiTS Study

Today the 15th of May marks the Global Awareness day of TSC!💚🌍Today the TSC community are coming together to raise awareness of TSC and advocate for it's support and treatment. Join us in sharing your experiences and knowledge of TSC! #TSCglobalday #United4TSC

Today the EDiTS Team are showing their support for #WorldPurpleDay 2024.🧠💜Around 8 out of 10 people with TSC also have epilepsy and it is one of the first signs in a TSC diagnosis. For more details on how best to support someone during a seizure visit nhs.uk/conditions/wha…

Check out the official website below to see what important events have been happening during Neurodiversity celebration week 2024! #NeurodiversityCelebrationWeek neurodiversityweek.com

This week marks Neurodiversity Celebration Week 2024!🎉 We are proud to support this initiative, raising awareness of and celebrating our unique differences, including those 1 in 2 people with TSC that have neurodiversities.✨ #NeurodiversityCelebrationWeek

The theme of this year's #RareDiseaseDay2024 is 'stats', to highlight that despite these diseases being rare, they still have a significant impact on many individuals. Here is a great video from the @UKTSA sharing important stats about TSC. 💚✨🧠

Ella's back again for #RareDiseaseDay! This time, telling us all about the key stats behind TSC #TuberousSclerosisComplex

Today marks #RareDiseaseDay in which we are raising awareness of the 300 million poeple worldwide living with a rare disease. 💚💜 Share your story to help us advocate for equitable access to diagnosis, treatment and care for those with rare diseases! #TuberousSclerosisComplex

Are you interested in having your say in TSC research? We are looking for young adults with a diagnosis of TSC to help us design a research study on how smartphones can monitor the experiences of those with TSC. See below how you can express your interest to our research team! 💡

Exciting week for our EDiTS Team who are currently in Birmingham for the Seattle Club Conference.💡 Charlotte is one of the keynote speakers, where she will be sharing what the early development of TSC and epilepsy can tell us about later developmental outcomes! 🧠🌱#TSCresearch

💜💫Here at King's, the EDiTS Team are wearing purple to help raise awareness for Epilepsy as part of #EpilepsyAwarenessMonth!🎗️#TuberousSclerosisComplex

📢We are still recruiting young scientists aged between 3-5 years old!✨ Check out our new study flyer below and scan the QR code if you are interested in our study on behaviour and development!🧠🌱 #TSCresearch #TuberousSclerosisComplex #TSC

📲We are recruiting for the next phase of our study! Are you aged between 16-30 and have a diagnosis of TSC or support someone who does? 💡If so, we want to hear from you! Have a look at our study flyer below! #TuberousSclerosisComplex #TSC #TSCresearch

We are recruiting for the next phase of our study! -> Are you aged between 16-30 and have a diagnosis TSC? -> Are you a parent/caregiver of a young adult aged 16-30 with a diagnosis of TSC? We want to hear from you! For more information visit - ts2000study.co.uk

📢RECRUITMENT OPEN📢 Is your baby under 10-months of age? We are recruiting typically developing babies under 10 months to participate in the BEE study! Find out more on beestudy.co.uk or email us at beestudy@kcl.ac.uk 🐝

📢 The Early Development in Tuberous Sclerosis (EDiTS) Team are still recruiting families of 3-5 year old children for our study of behaviour and development! 👥🧠 Scan the QR code below if you are interested! edits-study.org/preschool-phase

The Early Development in Tuberous Sclerosis (EDiTS) Study is recruiting young scientists to help us research development and behaviour. 🧠 If you have a child aged 3-5 years and want to contribute, check out our website today to learn how to get involved! edits-study.org/preschool-phase

It's #HelplinesAwarenessDay! We're reminding you about the TSA Support Line - here for everyone in the TSC community, for all question or if you want to say 'Hello'. Contact us by phone (0808 801 0700), email (support@tuberous-sclerosis.org) and webchat. tuberous-sclerosis.org/information-an…

‼️ Check out our new video about the Brain Development in Early Epilepsy (BEE) Study! We're recruiting families of children aged between 1 and 12 months to take part and help us learn more about early-onset epilepsy. 🐝 youtu.be/zQw6P2j7WHI

@AlisonPorter86 Thank you so much for the support Alison, we really appreciate it!

Hannah has participated in this study and even features in this video. The EDiTS team are doing phenomenal work helping to getting a better understanding of early development in TSC