East Sussex Parent Carer Forum - ESPCF

❗️East Sussex has received the OFSTED call! An area SEND inspection of local services has been announced. Complete the parent carer survey here: ofsted.smartsurvey.co.uk/s/AreaSEND-Par… You can do so anonymously. It closes at 9am on Tuesday 12th November - not long, so please spread the word. 🙏

Summer newsletter out now! It contains important results from our recent surveys: communication while waiting for CAMHS assessment/support, and our general parent carer survey 2023-24. Plus loads more. espcf.org.uk/espcf-newslett… #EastSussex #SEND #parentcarers

We're in Eastbourne at the @Care4theCarers annual conference, celebrating parent carers & talking about the challenges we face. We're also running a workshop with @AmazeSussex on the transition to adulthood for young people with #SEND. #CarersWeek #EastSussex #parentcarers

Come along to @thepelham on Friday 14th June, 10am to 12 midday, for our #SEND info & coffee morning with the support group ImPACT. Drop in & chat about your situation, peer to peer support, SEND paperwork, signposting to legal info. All parent carers in East Sussex are welcome.

We'll be at the Kings Centre in Eastbourne on Tues 11th June for the @Care4theCarers conference, talking about transition to adulthood for young people with SEND: the support available in East Sussex & the issues facing you and your family. Register here: eventbrite.co.uk/e/annual-carer…

🙏A huge thank you to all our brilliant volunteers: the parent carer reps, steering group members, those working behind the scenes, and everyone who shares their experiences with us. Your knowledge and dedication is invaluable and we're so grateful to you. #volunteersweek

❓🤔Can you help strengthen the voice of parent carers & SEND families and improve outcomes for children in #EastSussex? Check out this exciting & flexible opportunity to come & work with us: espcf.org.uk/engagement-wor… #specialeducationalneeds #disabilities #parentcarers #children

New update on East Sussex commissioning, including new brokerage programme, short breaks hours, and feedback on smaller/'sole trader' providers: espcf.org.uk/commissioning-…

❗️Sussex parent carer forums call for urgent action to tackle alarming situation facing SEND families with children and young people on the neurodevelopmental pathway.

❗️ East Sussex parent carers, please complete our short poll if your child or young person is on a waiting list for autism or ADHD assessment, or for mental health support: forms.office.com/e/pjnbRdsz6G #parentcarers #SEND #CAMHS #EastSussex

☃️ ESPCF winter newsletter out now! With news about our joint #PDA position statement; #CAMHS parent carer group progress; #neurodevelopmental pathway report; annual survey; the government's review of elective home ed guidance. And much more. 🌐 espcf.org.uk/espcf-newslett…

@AmazeSussex @space_holding @SEDSConnective @AspensCharities @SportsDefiant @ACoRNSussex @chaileyheritage #specialeducationalneeds #disabilities #SEND #EastSussex #parentcarers #childrenandyoungpeople

📢Parent carers: Tell us your views on special educational needs & disabilities (SEND) services and support in East Sussex, in our first ever annual parent carer survey: forms.office.com/e/FceCpdWAGM Survey closes midnight 17 December 2023. We need to hear from you!

It's Carers' Rights Day 2023! Find out more: carersuk.org/news-and-campa… And know what you are legally entitled to: mobiliseonline.co.uk/carers-rights #carersrightsday #parentcarers #specialeducationalneeds #disabilities

Would you like to join the Ross Care Service User Engagement Forum and be involved in shaping better services? Register via - forms.gle/44TiKPiyg5UytB… @NHSSussex @EastSussexCC @RossCare @EEspcf @Care4theCarers

Got questions about masking? Check out Amaze's quick guide for parent carers: loom.ly/NfBNTbg We worked with people with lived experience of autism/ADHD & masking to adapt a leaflet for B&H schools that was co-produced by BHCC, Seaside View, Amaze, PaCC & B&H pupils.

🚕 Read our recent update on home-to-school transport, following our meeting with the transport hub at East Sussex County Council: espcf.org.uk/transport-octo… We talked about: 🟢Familiarisation visits 🟢ID badges 🟢Application process 🟢Communication #SEND #transport #parentcarers

Thank you to the parent carers who gave feedback on the East Sussex PDA position statement. A new version is coming very soon, with updated info including internal and/or masked or variable presentations of PDA, and a link to @PDASociety Read more here: espcf.org.uk/pda-position-s…

@FifiDeLyonBliss It's a difficult read, but we're hearing from other parent carers how much it helps just to know you aren't the only ones, and it's *not* your fault.💜

The testimony which broke my heart. Thank you so much for sharing 🫶🏻 #autism #PDA #AutismAwareness #ebsa @EEspcf espcf.org.uk/ebsa-for-me/?f…

A powerful account of a family experiencing EBSA - emotionally based school avoidance. Please read if you feel you can. We're so grateful to this parent carer and her son for sharing their story. 💜 espcf.org.uk/ebsa-for-me #EBSA #schoolavoidanceawarenessweek #schooltrauma