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elsadiabetes

@elsadiabetes

The ELSA Study is screening children (age 2-15) and young adults (age 16-17) for type 1 diabetes. Open to families living in the UK.

University of Birmingham Katılım Temmuz 2021
4.6K Takip Edilen1.6K Takipçiler
elsadiabetes
elsadiabetes@elsadiabetes·
The ELSA study reframes early detection of type 1 diabetes as part of a global “Race Around the World,” where international screening efforts act as coordinated checkpoints across continents. From Europe to North America, Australia and beyond 2026 fundraisers start soon #T1D
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Breakthrough T1D UK
Breakthrough T1D UK@BT1DUK·
Want to know what to expect at our Young Person’s Research Pathway in the West Midlands? You’ll get the chance to discover more about new T1D research whilst building your own T1D community with those who truly get it 💙 Perfect for ages 8 to 25 years old! 📅 When: Saturday 18 April, 9:30am to 1pm 📍Where: West Bromwich Albion Football Club, B71 4LF Join us today through our link ➡️ bit.ly/4rZd8pe
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NCA Research NHS
NCA Research NHS@NCAresearchNHS·
Our community research team will be at St Saviour’s Church, Ringley, M26 1FT to offer screening for type 1 #diabetes antibodies in children aged 2–17 years on Saturday 18 April, 10am-3pm
elsadiabetes@elsadiabetes

Type 1 diabetes (T1D) screening is shifting toward early detection via autoantibody tests, enabling intervention before symptoms arise. Key updates include the expansion of the UK's ELSA study to ELSA 2 (ages 2–17) elsadiabetes.nhs.uk @BT1DUK @DiabetesUK @parthnarendran 🧬👨‍🔬

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elsadiabetes
elsadiabetes@elsadiabetes·
Type 1 diabetes (T1D) screening is shifting toward early detection via autoantibody tests, enabling intervention before symptoms arise. Key updates include the expansion of the UK's ELSA study to ELSA 2 (ages 2–17) elsadiabetes.nhs.uk @BT1DUK @DiabetesUK @parthnarendran 🧬👨‍🔬
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Lyla's Law
Lyla's Law@triggersbroom17·
Bit of a long one, but another little win for the #T1D Community today. I received a letter from the Care Quality Commission (CQC), who have been looking at what more they can do within their remit. Their National Professional Advisor for General Practice and Deputy Director of Primary Care and Community Services recently met with NHS England’s National Clinical Director for Diabetes and Obesity. The meeting included a discussion on the difficulties with diagnosing diabetes in children and how our GP assessments are carried out. As a result of this discussion, they are updating their GP mythbuster 1: Emergency care in general practice to recommend that all GP practices should have a blood glucose meter, glucometer strips and lancets to assess a patient’s blood sugar levels, as part of a list of resuscitation equipment readily available. This myth buster will be circulated to all GP providers subscribed to to their provider bulletin. They are also looking at collecting additional national data from GPs, specifically in relation to diabetes. This was my reply to them: "Dear Dr Chopra, Thank you for your thoughtful and compassionate response, and for the sincerity with which you have acknowledged the loss of my daughter, Lyla. It means a great deal to my family and I, that her story continues to be met with such understanding. I am genuinely grateful for the steps the has already taken since my earlier correspondence. The discussions with NHS England and the subsequent update to the GP myth buster, recommending that all GP practices have a blood glucose meter, strips, and lancets readily available, represent meaningful progress. Knowing that this guidance will be circulated nationally offers real reassurance that awareness and preparedness are beginning to strengthen. In the spirit of that progress, I would like to express a hopeful request. Given the importance of early detection in preventing tragedies like Lyla’s, I would be deeply grateful if the CQC could consider auditing GP surgeries to ensure that glucometers are not only present, but easily accessible, with in date strips available for immediate use. This small but vital check could make a profound difference in safeguarding children who present with early symptoms of Type 1 Diabetes. I also appreciate the transparency regarding the handling error in relation to my FOI review request, and the personal apology passed on. While I remain disappointed that the email addresses cannot be shared, I understand the legal framework you must operate within and the reasoning you have outlined. Most importantly, I want to thank you for taking this issue seriously and for the work now underway. Every step taken to strengthen early assessment and awareness in primary care brings us closer to preventing avoidable loss. Thank you again for your time, your engagement, and your commitment to improving safety for children across the country. With hope and best regards, Mr. John Paul Story QiC Diabetes – The People’s Award Winner 2025 FdSc Rehabilitation Work (Visual Impairment)" #LylasLaw #TestDontGuess #ProtectOurChildren #fyp
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elsadiabetes
elsadiabetes@elsadiabetes·
The ELSA study team would like to wish you all a happy Eid Mubarak to you and your loved ones peace, harmony, happiness, good health, success and prosperity🕯️🙏
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elsadiabetes@elsadiabetes·
This afternoon webinar Finding and treating type 1 diabetes early: In conversation with Prof. Parth Narendran, Dr. Rachel Besser and Prof. Colin Dayan. Please join the conversation 1pm - 2pm @6a42dab6-4977-4aa0-8f8a-0584dff9b5d2?utm_source=Facebook&utm_medium=social&utm_campaign=Orlo" target="_blank" rel="nofollow noopener">events.teams.microsoft.com/event/8288d4e7…
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elsadiabetes@elsadiabetes·
Neurodiversity Celebration Week 2026 takes place from 16th to 20th March 2026 A Call for Inclusion: It encourages schools, universities, and workplaces to foster genuinely inclusive and equitable environments where different thinking styles are valued #schools #universities #work
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elsadiabetes
elsadiabetes@elsadiabetes·
Join us: Friday, 20 March, 1:00 pm Finding and treating type 1 diabetes early: In conversation with Prof. Parth Narendran, Dr. Rachel Besser and Prof. Colin Dayan @DiabetesUK @parthnarendran @unibirmingham @BT1DUK Register Friday between 1pm - 2pm be part of the conversation
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