Elena Filipczyk

I FINALLY made a website for my writing!!📝🎉 If you're interested in the book I'm writing about autistic shame, it would mean a lot to me if you signed up to my email-friend list. I'll send you book excerpts + personal updates on the publication journey: elenafilipczyk.com/about

Memes I made about my illness.

Another win: I did a public speaking gig a couple of weekends ago. Read a piece of my writing (about cholesteatoma and female friendship) to a crowd of ~100 people. Selfies from that night. Post-event, post-shower selfie shows genuine joy on my face bc of the feedback I got 🥺💖

Bad news: a CT confirmed my brain is MIA. Jk. Kind of. Cholesteatoma is back in my left ear and possibly my right. Seeing my surgeon in June. Surgeries to follow. At least I have an answer for my pain, vertigo, fevers, brain fog, tinnitus etc.

@Anthonydownunda Thanks Anthony 💖 I've not had much energy for social media, nor writing outside of my thesis. Though I do have some things in the works and one article done I'm still pitching. Hope to be more active again soon. Thank you for the well wishes 💐

@ElenaFilipczyk I haven't seen you post in so long and see this... god im so sorry. Sending lots of support your way. What a shit time :(

The moment I knew for sure (I already knew). Doctors never call you personally for good test results. Ten years on from my first diagnosis, it looks like my left ear cholesteatoma is back. Worse still, it looks like there's something wrong with the right (my "good" ear) too.

If things get really bad I think I'll apply for a leave of absence from my PhD on medical grounds but that is also a scary option.

Anyway. Waiting is the hard part. I'm working pretty much FT atm and also trying to finish my PhD thesis, while suffering all these symptoms and The Fear of the unknown.

Big moon. 🌕

@BanksiaWarrior 😆😆😆

@ElenaFilipczyk Well, that's.... SCOTTSPLAINING! 🤓

I MESSAGED HIM AND HE MESSAGED ME BACK 😭

I've had a really crappy year this year for multiple reasons. This trip has reminded me what life can be like. 🥹💖

HELLO I GOT A CUTE GUY'S NUMBER TODAY. AND I INITIATED IT!!!! I must have absorbed some of Liam Gallagher's confidence by osmosis, or felt inspired by those two cute guys hugging me and my friend at Oasis.