Elle Geddes MD⚕️

#IAmAMedicalGeneticist because finding answers for special children & families is important, because rare disease is the most common disease, because what I can’t treat or diagnose today I may be able to tomorrow, & because it’s not a job- it’s a mission, a calling & a privilege!

What is cool is that this is a method that can be applied to identify potential modifiers for many different conditions- as long as you have well phenotyped groups!

Our new paper on genetic modifiers of cardiomyopathy severity in DMD related Duchenne Muscular Dystrophy is out! nam12.safelinks.protection.outlook.com/?url=https%3A%…

Born with her heart outside her chest, Faith wasn’t expected to survive. Today, she’s thriving—with help from Purdue BME students who designed a custom “turtle shell” to protect her heart and her future. Read her incredible journey → youtu.be/j1K-zU0hx1E

This is a story about protecting someone born with a serious birth defect that includes your heart being outside of your body. This video reminds me what is possible with creativity, academics, teamwork, persistence and, of course, a little Faith. youtu.be/j1K-zU0hx1E?fe…

Dr. Jeremy Herrmann’s mom makes quilts for his heart transplant patients when they leave the hospital. rileychildrens.org/connections/wr…

My 14th Grammy award is a very special one. Being a songwriter, all I want to do is tell stories that touch peoples hearts. Telling this story with Bruno about love is truly a piece of my soul—love is what we all need right now. Thank you little monsters—wherever you go that’s where I’ll follow. Photo Credit: Rankin for The Recording Academy

cnn.com/2025/01/31/hea… CDC websites, datasets taken down as agency complies with Trump executive orders

@RileyChildrens has the only Cardiovascular Genetics Program in Indiana! youtu.be/fpRuTiAQxCk

Get to know the people behind the mission! Each month, we’ll introduce a member of our incredible, hard-working team. This month, meet Cory Kloep, our Chief Operating Officer! secondhelpings.org/staff-spotligh…

Read what my brother has to say in Newsweek about vaccination for avian influenza in chicken newsweek.com/why-us-not-vac…

I apparently accurately remember how to play hot cross buns on a recorder from fifth grade. I am oddly proud of this.

We’re running this ad on Fox News this morning for no particular reason