Ellen Ewer

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Ellen Ewer

Ellen Ewer

@EllenEwer

BSc, MSc, MCSP, MAPCP. Specialist Paediatric Physiotherapist. Honorary research associate UCL, currently validating ‘The Spider’. She/her.

London, England Katılım Temmuz 2011
117 Takip Edilen174 Takipçiler
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Ellen Ewer
Ellen Ewer@EllenEwer·
Final stage of the Spider validation! We are now assessing if the Spider can measure change over time. Hoping for as many volunteers as our last study (10,000!). So grateful for the HSD/hEDS community and their contribution to research 🦓 @jvsimmonds01 hypermobility.org/research-1/fin…
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Prof Jane Simmonds
Prof Jane Simmonds@jvsimmonds01·
Proud to present the validation of the Spider tool for symptomatic hypermobility on behalf of our research team and patients @EllenEwer @VickiBusbyPT @ShoulderAcademy Inge De Wandele @thecsp #Physio24
Rheumatology Physiotherapy UK@RheumPhysioUK

Thanks @thecsp for cleverly putting the abstract sessions together for #Physio24 👏👏👏 Amazing line up this morning of @jvsimmonds01 @HeidiSiddle and @carissa_jones87 A greatest hits package for us in #RheumPhysio

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Ellen Ewer
Ellen Ewer@EllenEwer·
The next step of the Adult Spider validation is now live! Part 3 is also live - if you are able to complete all 3 surveys we would be so grateful. Links below 🕷️ Part 1: redcap.slms.ucl.ac.uk/surveys/?s=JEM… Part 2: redcap.slms.ucl.ac.uk/surveys/?s=KJN… Part 3: redcap.slms.ucl.ac.uk/surveys/?s=9AH… @jvsimmonds01
The Ehlers-Danlos Society@TheEDSociety

🕷️The Spider has been designed to assess the impact of various symptoms (or problems) experienced by people with #hypermobilityspectrumdisorder or #hypermobileEhlersDanlossyndrome 🟣Researchers need participants 18-65 with #hEDS or #HSD to take part #1692368158243-86c87088-5d46" target="_blank" rel="nofollow noopener">ehlers-danlos.com/research/resea…

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Ellen Ewer
Ellen Ewer@EllenEwer·
@Yrrepmot @jvsimmonds01 @HMSACharity I absolutely agree - researching the cause and treatment options is certainly a high priority, but we do need tools measuring symptoms in order to better understand HSD/hEDS and assess outcomes of treatments to help us know what is successful
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T@Yrrepmot·
@EllenEwer @jvsimmonds01 @HMSACharity I understand the concept. I’m sure it has value. I just think it smacks of orthodox medicine’s obsession with documenting & band-aiding symptoms rather than addressing root cause. I’d rather the money was spent looking at what is going on in EDS and how we might cure it.
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Ellen Ewer
Ellen Ewer@EllenEwer·
@Yrrepmot @jvsimmonds01 @HMSACharity Before we can use the Spider in clinics we need to make sure it works correctly - which is why we are doing this study. We welcome any feedback and opinions. It is exciting to us, as we hope the Spider will make receiving individualised care much easier for people with HSD/hEDS
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Ellen Ewer
Ellen Ewer@EllenEwer·
@Yrrepmot @jvsimmonds01 @HMSACharity 2/3 A completed Spider questionnaire creates a diagram showing the impact of each individuals symptoms, which will help people communicate their symptoms more easily with healthcare teams to make sure that they receive care that focusses on what is impacting them the most
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Ellen Ewer
Ellen Ewer@EllenEwer·
Huge congrats to @SueUnaWard for winning the outstanding platform award for her presentation on her scoping review of clinical characteristics of symptomatic hypermobility at #WorldPhysio2023. So well deserved for such excellent work 👏
Ellen Ewer tweet media
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Ellen Ewer
Ellen Ewer@EllenEwer·
Such an incredible experience - my first World Physio Congress! Delighted to have presented our Spider work, and to learn about all the latest Physiotherapy research. Such an inspiring weekend #WorldPhysio2023
Prof Jane Simmonds@jvsimmonds01

Fantastic to hear about the Spider symptom tool ⁦@WorldPhysio1951⁩ by our wonderful ⁦@EllenEwer⁩ ⁦@uclphysio⁩ ⁦@UCLchildhealth⁩. Thanks to ALL who have helped ⁦@ehlersdanlosuk⁩ ⁦@HMSACharity⁩ ⁦@TheEDSociety⁩ ⁦@CentralHealth⁩

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Prof Jane Simmonds
Prof Jane Simmonds@jvsimmonds01·
This is a very important step in bringing the multisystem Spider measure into practice. We need young people 13-18yrs with and without hypermobility to complete this. Please share. @UCLchildhealth @TheEDSociety @HMSACharity
Ehlers-Danlos Support UK@ehlersdanlosuk

Adolescent participants needed for research study - A new questionnaire called The Spider has been developed to explore how symptomatic #hypermobility affects your daily life. Learn more! redcap.slms.ucl.ac.uk/surveys/?s=CF4…

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Prof Jane Simmonds
Prof Jane Simmonds@jvsimmonds01·
If you are planning to study on the UCL MSc paediatric or musculoskeletal physiotherapy or just want to hear their research sign up for this event. You will hear from fabulous alumni including @DrCMAlexander @christiniedougl @EllenEwer Elaine Chong and Becca Spear
UCL Great Ormond Street Institute of Child Health@UCLchildhealth

Are you a prospective student interested in finding out more about the world-class research we do here @UCLchildhealth? Join our virtual conference on 22 Feb 1-5pm and hear from our postgraduate students as they discuss their innovative research projects: bit.ly/3wuFz3Y

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Keşfet

@VickiBusbyPT @ShoulderAcademy @thecsp @PPEFcharity @ehlersdanlosuk @TheEDSociety @UCLchildhealth @Ingedewandele