Emily's Entourage
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@EmilysEntourage
Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
We are taking a trip down memory lane as we celebrate our 10th Birthday this year. This was our third edition where we focused on RARE and Corporate and highlighted the incredible partnerships between industry and patient organisations. "This dynamic front cover features our RARE inspiration, Emily Kramer-Golinkoff. Emily has advanced stage cystic fibrosis (CF), a progressive genetic disease which primarily affects the lungs and digestive system—so beautifully illustrated by Emily’s cover outfit. In 2011, Emily launched the non-profit, Emily’s Entourage, to help accelerate research for this ever-advancing rare disease. The organisation has raised millions of dollars for research and built a strong and supportive community. Emily’s unwavering drive and determination, throughout her life, have had a profound and lasting impact on the CF, and wider rare disease, landscape." - Emma Bishop, associate editorial and design Read the full edition here: ow.ly/FVh150XX9MH #RR10 #RARERev10 #RARERevolut10n #ThrowbackThursday
