Endo The World?

I blog about life with #endometriosis and living well despite #chronicillness on my site: 'The Endo The World?': theendotheworld.com.

It's been 8 years of bliss since my surgery, but now my shoulder tip pain is back. I think I'm having symptoms from the #endometriosis on my diaphragm again. Hoping it's just a random fluke 😭

In this @CochraneUK blog about surgery for pain associated with #endometriosis, @martinhirsch100 and @EndoLadyUK explore the benefits and risks and discuss important aspects to consider when thinking about undergoing surgery buff.ly/36TQQ4h #EndometriosisAwarenessMonth

170 million women suffer from #Endometriosis worldwide, yet it can take years to diagnose. We lift the lid on this debilitating & mysterious condition on tonight’s episode of #YourBodyUncovered w/ @KateGarraway. If you’re looking for answers, join us at 8pm on @BBCTwo.

Oh gosh, this is so good. It’s incredible. To visualise the “invisible”. And Miriam is speaking so well. It’s finally breaking into homes! @kategarraway #yourbodyuncovered #Endometriosis @DrGuddiSingh @BBCTwo @EndometriosisUK

In this Evidently Cochrane #blog, @EndoLadyUK shares her experiences of using hormonal contraceptives for her #endometriosis pain, and @martinhirsch100 discusses the latest #Cochrane #evidence bit.ly/3iPF7WY @CochraneUK #EndometriosisAwarenessMonth

Watch BBC2 at 8pm this Wednesday. We used augmented reality to walk around 3D images of one of my patients severe #endometriosis. They followed Miriam’s journey and came to theatres and filmed the surgery too. I haven’t seen the final cut myself. Looking forwards to it.

March is #EndometriosisAwarenessMonth. I was able to share some of my story with Herts Live, along with some other incredible women from Hertfordshire, about my experience with #endometriosis. Article below 👇 (Oh and I am THAT women in the headline!) hertfordshiremercury.co.uk/news/hertfords…

@erinadelle17 @The_MRC Brilliant- well done you 🙌

Absolutely delighted that @The_MRC have agreed to fund my work on #endometriosis and #macrophages for a further 3 years 🥰. Happy #EndometriosisAwarenessMonth everyone!!!

It’s very creepy how some people are saying Turning Red is “inappropriate for kids” because it talks about periods. I was 11 when I had my first period. It was part of my childhood. The biological reality of little girls should not be a taboo.

"I can’t remember what it’s like to wake up not in pain." Thank you to Lauren, a new member of one of our support groups who has been waiting for two years for surgery for #endometriosis, for speaking to Good Morning Britain (@GMB) on ITV on Friday. itv.com/hub/good-morni…

@TheBSGE @CochraneCGF @martinhirsch100 Great work @martinhirsch100 and @BattleWithEndo 🙌

Don’t miss @TheBSGE on Instagram with lots of #endometriosis information and live events for #EndometriosisAwarenessMonth. Q&A at 7pm tonight with @battlewithendo_ox @pietrobortolettomd and @martinhirsch100

This #WorldBookDay please let me recommend this book to anyone who has #endometriosis. A perfect mix of medical and patient personal. It’s blooming great 🙌🏻 @EndometriosisUK @exppect @horne_research #endometriosisactionmonth #EndometriosisAwarenessMonth

During #EndometriosisActionMonth, we call on healthcare practitioners to take the opportunity to learn more about #endometriosis, and share relevant resources with their peers and colleagues.

Endometriosis is one of the most painful health conditions which affects more than 1 in 10 women in the world. More needs to be done for this chronic condition. #EndometriosisAwarenessMonth #Endometriosis

Can't decide whether my worst pre #endometriosis diagnosis story is a consultant telling me my *chronic* pain was likely the result of 'eating a dodgy kebab' or being told by my GP at 13 years old that my symptoms would improve after having a baby 🤪 #EndometriosisAwarenessMonth

@_OhhhKaye_ Thanks very much Kaye x

This is a fantastic thread of tips and stories for #EndometriosisAwarenessMonth. Thank you for sharing @EndoLadyUK

5. Be VERY kind to yourself. A lot of heartache could have been saved for me if someone had told me, or I'd realised, that having #endometriosis is not my fault, I don't deserve it, and I'm not a burden to my loved ones. Do what you need to do to take care of you and keep going.

4. Tell people what you're going though. I promise they won't faint. You can't expect anyone to be supportive or your cheerleader if they don't know what's going on. 10 years post diagnosis it's amazing the people who enquire after my #endometriosis when I'm out in public 🤣

It's #EndometriosisAwarenessMonth. As a sufferer of 20+ years I can tell you #endometriosis is excruciating and can impact every aspect of your life. But please know, especially if you're new sufferer, there is hope and living well with this disease is possible. Tips below 👇🧵