EuMGA

On 12 June, @EuropeanMGA & MEP Tomislav Sokol are bringing together patients, policymakers & health experts at the European Parliament to push for real change in how Myasthenia Gravis (MG) is diagnosed, treated & supported across Europe. eventbrite.com/e/time-to-mobi… #MyastheniaGravis

“Myasthenia Gravis – Treatment & Quality of Life,” organized by the Icelandic MG Association. 👉 Read the full article on our website at the link! eumga.eu/post/myastheni…

Grateful to EAMDA for hosting an insightful webinar on Myasthenia Gravis, featuring key updates from Dr. Francesca Cortese and a personal contribution from our secretary Dimitris Zaftis. #MyastheniaGravis #Awareness #EAMDA #eumga eumga.eu/post/eumga-par…

We’re excited to share that our association and our president, Lut Allard, have been featured in the latest edition of the Portuguese Journal of Neurology! #eumga #myasthenia

Tania, a 35-year-old athlete with Myasthenia Gravis, is representing Greece at the Paralympics! 🔗 Read her inspiring story on our website: eumga.eu/post/living-wi… #myasthenia #myastheniagravis #raredisease #paraathletes #paralympics #paralympics2024

It's wonderful to see the unity and diversity across Europe in raising awareness for myasthenia during June! Discover all the activities we carried out in our latest article. Read here: eumga.eu/post/highlight… #Myastheniagravis #myasthenia #MGawareness

Are you living with a rare disease or caring for someone with a rare disease? 💡EURORDIS - is conducting its new Rare Barometer survey on the opinion of people living with rare diseases in 24 languages You can access it at:tiny.cc/RB_DailyLife

🎉 Exciting News! Our Association has launched its very first newsletter! A big thank you to everyone who has already subscribed. If you haven't signed up yet, Visit our website or click the link below to subscribe today! 🔗 eepurl.com/iDNZmI

Check out the #Myasthenia Gravis patient journey with the easy-to-follow poster from EURO-NMD. It covers 5 steps, from noticing the first symptoms to getting the right support after diagnosis. Find out more: eumga.eu/post/myastheni…

Are you affected by a neurological condition, or are you a carer for someone who is? If so, please take EFNA’s survey exploring the invisible issues of neurological conditions: surveymonkey.com/r/SMX5FNV #invisibleillness #Neurology @EUneurology

Join us for a Myasthenia Gravis (MG) webinar on June 25th at 9:30 CET! Get insights from Dr. Francesca Cortese and Dimitris Zaftis of EuMGA. Hosted by EAMDA. #MyastheniaGravis 🔗 Register here: us02web.zoom.us/meeting/regist…

The ENMC has released a lay report from the workshop on “Seronegative #MyastheniaGravis: This workshop gathered top neurologists and patient advocates to share insights and foster collaboration. The report is available in multiple languages. 🔗 enmc.org/download/seron…

June is Myasthenia Gravis Awareness Month. Let’s spread the word and support those affected by this rare autoimmune disease. #MGAwareness #mgawarenessmonth #myastheniagravis #myasthenia

Exciting news from our AGM! Dimitris Zaftis confirmed as Secretary, Lut Allard confirmed as Treasurer and elected as President, and Maya Uccheddu joins us as a new Board Member. As we approach #Myasthenia Gravis Day, we’re more committed than ever to supporting our community.

Join MG organizations worldwide on Sunday, June 2nd, to light the world teal for #myasthenia gravis awareness! You can illuminate a landmark or simply turn on a teal (green, or blue) porch light. Share your photos with the hashtag #lighttheglobeformg Every light counts!

Exciting News: EUMGA's New Website! Explore our new website, the collective voice of MG patient associations across Europe. Stay Informed: Check out the latest news and updates. eumga.eu

Leading cause of disability and illhealth #ms #nurse #neurologynurse

Sign the petition ✨✍🏻

Show your support for prioritising neurological #health, ensuring innovative treatments and patient-centred care are at the forefront of #EUhealth policy, by signing EFNA’s Call to Action: efna.net/cta2024/
#EUelections

We take facial expression for granted. Without realising it one of my #parkinsons symptoms was possibly #facialmasking as my son remarked the year in which I was diagnosed that “I didn’t smile as much as I used too”. I never noticed. Now I put an extra effort in when I smile 😀