Ffion's Gift

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Ffion's Gift

Ffion's Gift

@FfionsGift

We are a registered charity raising awareness of Edwards Syndrome. We also raise money to help mum's who have had a previous Edwards tragedy.

Newport, South Wales Katılım Ocak 2017
534 Takip Edilen286 Takipçiler
Ffion's Gift
Ffion's Gift@FfionsGift·
Today marks the beginning of Trisomy Awareness month. Edwards Syndrome is also known as Trisomy 18, the second most common chromosome disorder after Down Syndrome, Trisomy 21
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Ffion's Gift
Ffion's Gift@FfionsGift·
Fabulous news that the Transporter Bridge is lighting up pink and blue this year. We also have Michael G Ryan, Friars Walk, SSCL and the ONS showing their support #porthour #BLAW2020 #babylossawareness
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Ffion's Gift
Ffion's Gift@FfionsGift·
@Donna_Dunn_ It's a pleasure. The very least we can do to keep our babies memories alive x
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Ffion's Gift
Ffion's Gift@FfionsGift·
Have any of our #porthour friends or do you know of anyone that has lost a child regardless of age or gestation that would like their little one's name added to our remembrance tree ? If so please get in touch #babylossawareness
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Ffion's Gift
Ffion's Gift@FfionsGift·
Hi #porthour, hope you are all well. Its been a while. Just wanted you all to know that regardless of lockdown we are still supporting #babylossawareness next month. We have Micheal Ryan's window again to create a pink and blue display.
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Martin Lewis
Martin Lewis@MartinSLewis·
I note I'm closing in on 900,000 followers. As is my tradition when I'm near boundaries, to say thank you I will. - Donate £900 to a charity chosen by whomever is my 900,000th follower. - Donate £900 to a charity chosen by a randomly picked existing follower.
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Ffion's Gift
Ffion's Gift@FfionsGift·
Good evening to all of our #porthour friends, we hope you are all. We have had to cancel all of our events but would still like to help. Do any of you know of a child (in Wales) with full, partial or mosaic Trisomy 18 that needs help with any thing? Please can you share for us x
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