Jon Shaw Foundation

We are absolutely thrilled to be chosen as one of the charity partners for HBL Associates. The return of their Charity 5-a-Side Football Tournament is on July 5th, 2024. If you would like to get involved, contact manchester@hbl.ltd Spread the word #HBLCharityFootball

@LairdOfTheManor Johnny

2 uniforms, 1 equerry. I think his names Bob.. or something or other

Reaching out to siblings and close friends who have lost a love one and struggling to manage the trauma alone. If the loss was due to an accident, trauma, or suicide, was it sudden or after a long illness it doesn’t matter, we are here. @sandbachnews @CreweNub @nantwichnews

The team at The White Lion are in training for this years mega stomp for JSF, 70 miles over 2 days, Manchester to Crewe, via Runcorn, Frodsham, Chester and Nantwich. They have just opened the just giving page for donations. If you can spare ££ thank you, if not then please share

🔔 Important notice 🔔 Due to a significant increase in demand over recent weeks, applications for funding for medical equipment are closed until 01 August. This will allow us time to process the backlog. Please note that applications for bereavement support remain OPEN.

Great news, schools in the Alexandra Academy Trust are raising funds for JSF. Jon was a pupil at @monkscop so we have a close connection. Thank you to all for choosing us to benefit from your sports days. Have lots of fun. #independenceinepilepsy #epilepsyawareness

Feeling inspired by this year’s marathon? Looking for a new challenge? We are now accepting applications to run for Jon Shaw Foundation at next year’s TCS London Marathon. Download your application from our website here: jonshawfoundation.org #awareness #londonmarathon

Reaching out to those who need us but more areas to contact. Help us to spread the word, the word is support. #EpilepsyAwareness #sudepawareness #epilepsysupport @BrainAblaze @EpilepsyAlarms @epilepsy_scot @admodularLTD @CheshireLiveCrw @CreweNub @thecat1079 @Sandbachtownfc

We receive at least 15 applications for support every month which can cost our charity as much as £7500. This fabulous donation from @admodularLTD will ensure that we can continue supporting the many young people who reach out for help. We are all eternally grateful.

Good luck tomorrow Mark

Thank you to everyone who has helped us grow and reach hundreds of young people living with epilepsy. @BBCNWT @BBCRadioStoke @GuyWithEpilepsy @RagNBoneMan @EpilepsyAlarms @BrainAblaze @wesstreeting @thecat1079 @CreweNub @crewealexfc @CheshireLiveCrw @admodularLTD

I am running in this years 62nd world coal carrying championship veteran’s race at 11:30am on Easter Monday raising funds for the @FoundationJon who provided a seizure alert watch for our daughter to allow her Independence. justgiving.com/page/mark-bick…

@markbickerdyke This is fantastic, I grew up in Gawthorpe so the Coal Race is a special race to me. Thank you Mark. Did you have a grandma, great grandma live on Lodge Hill Road, we’re talking 1960s.

@Aizenay95 I’m sorry you have had to suffer the same horrific loss we did. If there’s anything we can do, please shout out

@FoundationJon So sorry. We lost our 19 year old to SUDEP in February this year. Much more awareness is needed.

Jon Shaw Foundation was registered in memory of Jon, he should be 25 today but we lost him to SUDEP in June 2019. We should have known about the risk, we didn’t. #sudep #EpilepsyAwareness @FoundationJon

#independenceinepilepsy #epilepsy #sudep #seizures JSF helping young people gain the confidence to achieve on their own terms with the reassurance that help will arrive when they need it.

To Jon Shaw Foundation, we extend our deepest gratitude. Your assistance has made a profound difference in our lives, and we are so thankful for your support. As a family, we are committed to continuing this journey with love Thank you for helping us keep our family safe.

Although Raven and Hunter are now adults, they still require constant care, especially due to the risk of Sudden Unexplained Death in Epilepsy (SUDEP). Jon Shaw Foundation has been incredibly generous, their kindness has helped ease some of our burdens.

This year our theme is inspiring independence in epilepsy to reflect the bedrock of our charity objectives. Keep watching our socials leading up to the 26th for news about what we’re doing, & how you can help. @BBCRadioStoke @CreweNub @CheshireLive @RagNBoneMan @TommyFreemo15

Three of the 18 young people we supported last month #Epilepsy #sudep @GuyWithEpilepsy @PAMEawareness @BrainAblaze @admodularLTD @BBCNWT @GranadaReports

So proud to be helping Billy Rae to go on to Uni. Good luck in all you do. #EpilepsyAwareness #sudep #seizure @GuyWithEpilepsy @BrainAblaze @PAMEawareness @EpilepsyAlarms @epilepsy_scot @ConnorNaismith @wesstreeting @admodularLTD @MornflakeCereal @GMB @BBCBreakfast @BBCNWT