Sarah Fox

A crossed out date in my diary, Because you're no longer due Dates I will never forget As I always think of you #waveoflight2025 #WaveOfLight #BabyLossAwarenessWeek2025 #blaw2025

October begins Baby Loss Awareness Month. 💙💗 We remember every baby gone too soon and hold all families in our thoughts, your love and grief are seen and honoured. Artwork credit: @Babylemonprints

Advocating for yourself and others as a disability network member is vital. As a disabled person, it also requires planning, pacing, and lying in the back seat of your car during the lunch break! #MECFS #LongCovid #disabilityempowerment #Disability #hiddendisability

The last Sunday in August is #InternationalBereavedFathersDay a day no one wants to meet the criteria for! For all the men who were strong and supported their wives/partners through any kind of loss. We see you, we appreciate you, life would have been so much harder without you💔

People are more than their disability, they have lives, families, life events that just don't allow for the planned and paced approach. This year so far is proving that to me in SO many ways. Stress burns my energy way quicker than anything else! #MECFS #LongCovid #chronicillness

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more. These findings reflect the lived experience of thousands of #pwME. Thanks to all our participants & supporters who made this possible! Read a summary of our results:  shorturl.at/pgsjk

When you KNOW it's not 'all in your head', and theyprove it! decodeme.org.uk/initial-dna-re…

Must be a yearly thing, this caae up on my memories! #MECFS #LongCovid #chronicillness share.snapchat.com/m/WuE75HPb?sha…

#ChronicIllness life is always exciting. Off to an in-person meeting today, so loaded with electrolyte water prior to stepping out of bed - not today POTS..... 😁 so my body decides PAIN is the major symptom for the day instead... - can anyone recommend nice electrolytes?#MECFS

I don't know who needs to hear this, but if your partner is stressing about hiding their hairloss tomorrow to leave the house, 'you could always think about a wig' is not the answer!! #alopecia #femalehairloss #autoimmune #chronicillness #MECFS #LongCovid

@DiaryofaSickGrl Other people's expectations and then them needing to make accommodations/adjustments to their life. It's not just my life it's affecting, it's the ripple effect into everyone elses

What’s the worst part of being chronically ill?

@SouthnPurpleVeg @DiaryofaSickGrl Being given an opportunity, but being too scared or uncertain as to whether or not you can take it

@DiaryofaSickGrl Missed opportunities 😪

I've done all of these in the last week.....🤣 #spoonie #spoonielife #MECFS #LONGCOVID #chronicillness

Chronically ill life-Going to hospital for an unrelated problem, but you can't relax/notstress/just be a patient, because you have to advocate for yourself and protect yourself from paying the price for weeks #MECFS #LongCovid #POTS #chronicillness #spoonielife

Chronic illness is having linked up with a fellow spoonie 5 YEARS ago, we live local to each other, but we haven't both been well enough at the same time to get out and meet up in that whole time. #MECFS #chronicillness #spoonie #spoonielife

@thatmaskedgirly What works for me- be consistent with saying no to things that you know are beyond your limits If they present a scenario- going out etc- I present an option that would work for me, so work on a compromise - if they suggest I'm not trying hard enough, I stop the conversation

1/ Does anyone with #mecfs have tips for getting family members on board? My parents are on board for the most part but my siblings have basically zero interest in believing or understanding that I have been disabled by an energy limiting illness.

My partner thought it was odd that I'd make lists of things I needed to tell him..... now it's a normal part of our routine. Smart speakers in each room mean I can add to and access it from wherever we are #brainfog #MECFS #LongCovid #chronicillness #accessibility

Every colour tells a story. The three hues of the #LongCovid awareness ribbon represent: 🩶 Gray: Loss & grief 🩵 Teal: Hope & support 🖤 Black: Loneliness & isolation Wear your ribbon proudly & join the movement for change. #LongCovidAwareness longcovidsos.org/shop

@wesstreeting @AshleyDalton_MP @paulwaugh @Paula_JKnight Cross-posting from other social media! 📸