@blacklab_14 Dalmally is the next village east. It’s in the village of Lochawe which is beside (the 26 mile long) Loch Awe.
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Fraoch (Heather) 🏞️🌌🌅
4.2K posts
Fraoch (Heather) 🏞️🌌🌅
@FraochL
Mainly thoughts on: politics, place & design ; respecting nature & people ; living with IBCancer & #MyalgicE. Once fae Edinburgh, now in Argyll🏴
Argyll, Scotland Katılım Şubat 2020
329 Takip Edilen193 Takipçiler
Next to Loch Awe in Dalmally Scotland , stunning 💙
Beyond Daily@KieuPhan120820
💒St. Conan's Kirk, consecrated in 1930 after its completion by Walter Douglas Campbell's trustees, is about 99 years old in 2025.
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@DecodeMEstudy Recent immunology research (summarised👇) which looks to align with your findings may be be getting sidelined for publication due to the location of the researcher. Might any of the Decode team act as a reviewer or somehow help this inform others work? x.com/JackHadfield14…
Jack | amatica health@JackHadfield14
🔬New @BhupeshPrusty paper breakdown - very cool paper: The study finds that people with ME/CFS & Long COVID have antibodies in their blood that may directly interfere with mitochondria (how human cells create energy and regulate inflammation) In simple language all findings 🧵
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"DecodeME is now calling on researchers worldwide to join us in accelerating ME/CFS research.” - Prof Chris Ponting (DecodeME Investigator).
We encourage researchers to explore and build on our findings. Apply for access to our rich dataset now shorturl.at/F8aOM
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@BhupeshPrusty Have you tried contacting Chris Ponting @DecodeMEstudy ? They’ve got a call out to intensify research after finding DNA results which chime with your immunology findings. I’d hope they’d help you get published
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Publishing a paper on ME/CFS and long COVID in a descent journal without an elite stamp is a nightmare.
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@useless_priest @MECFSNanoneedle @KSchnickelfritz On childhood trauma, more evidence undermining a psych genesis causing disproportionate responses. pmc.ncbi.nlm.nih.gov/articles/PMC57….
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@useless_priest @MECFSNanoneedle @KSchnickelfritz Aye, specifically the finding that the parts of DNA linked to increased susceptibility to anxiety and depression did not feature. This undermines the assumption/assertion it’s down to us all being disproportionately bothered by our symptoms.
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@LongCovidFight @KSchnickelfritz @useless_priest Stress uses a lot of energy- it’s the thinking equivalent of running fast for ages. It could simply be the energy use that knocks us out (I find social energy use almost as draining tho it’s fun), not us being particularly mentally vulnerable as they suggest.
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@KSchnickelfritz @useless_priest I think so too, that stress isn’t the disease or underlying cause.
Where there’s room for CBT it leaves the door open for exercise. Faulty illness beliefs, nervous system stuck in fight or flight, thinking your way better. Exercise is part of the next step, ignoring symptoms.
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@useless_priest @KSchnickelfritz I think it’s got a BioPsychSocial lean, talking about abuse, trauma etc increasing susceptibility - I thought that was disproved a while back. There’s a (rather synical in my view) drive to ‘medicalize’ psych approaches to make them more palatable acpjournals.org/doi/10.7326/00…
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@KSchnickelfritz I'm sure I'm reading too much into it but is there an FND vibe permeating that somehow?
Also no mention of severe. But we'll take the apology.
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@KH118118 @SMC_London I didn’t say he did research on ME, I said he authored a now discredited statement on it, which 👇 confirms webarchive.nrscotland.gov.uk/20250131092306…
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@FraochL @SMC_London What has that got to do with FND? He also confirms in that same thread he doesn’t do ME research. I would like to see the supporting evidence of your claim if possible please.
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expert reaction to unpublished preprint on the DecodeME genome-wide association study of ME/CFS
sciencemediacentre.org/expert-reactio…
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@KH118118 @SMC_London Sure - his recent public response to research on the mechanisms at work in ME & LC x.com/AlanCarson15/s…
Alan Carson@AlanCarson15
Gosh almost as if it was a functional disorder…
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@FraochL @SMC_London “Prof Carson advocates that ME is a Functional Neurological Disorder.” Can you share your sources please?
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@WoollerEmma @DecodeMEstudy Definitely doesn't - he wrote NHSScotland’s good practice guide for ME based on the BSP model (that guide’s only just been thrown out😤) and just last week was posting comment that ME is a functional neurological disorder (a problem in how the brain and body communicates).
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Fraoch (Heather) 🏞️🌌🌅 retweetledi
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s
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@CaroleBruce17 @DecodeMEstudy Handily one of the other experts praises the rigour of DecodeMEs process, undermining AC’s fatuous shuns.
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@FraochL @DecodeMEstudy Thank you for finding this. A C really reaching for his negative bias. It wasn’t all questionaire we spat, we all spat!!
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Fraoch (Heather) 🏞️🌌🌅 retweetledi
ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested.
They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease.
The results still need to be reviewed, but the University of Edinburgh research team hope these results will pave the way for future research and the development of drugs.
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@DecodeMEstudy Can someone please find and gag Prof. Alan Carson so the news articles on Thursday arnt full of him casting shadows over the findings because they arnt based on his pet hypothesis 🙏
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The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
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Thanks so much lovely people. I did it! Came back at lunch and had a sleep then went to a couple more talks online.
Really nice to see people who I normally see online, in person
And no, I didn't take the scooter, but it worked out ok
Anna Wood@Annakwood
Big day today - I'm off to give my first ever keynote speech! I've even put makeup on! Luckily just a mile or so down the road,and I'm getting a lift. Still dithering about whether I need the scooter (more for a guaranteed seat than the distance)
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03.30. I’m excited to reach the western point of my adventure today. I’m cocooned in my wee tent against the rain. I’ve a warm glow of a job pretty well done & there’s more to come. This undertaking is more significant than my others. At the age of 61, I’ve rediscovered joy.
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@BylinesScotland The ones which grind my gears are those who think Access Rights extend to vehicles so off-road their campervan or 4x4&rooftop over other’s land to ‘wild camp’. These vehicles are sold with the promise of freedom but they need to obey the same road/land laws as any other motor.
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