FSCDR Foundation for Sickle Cell Disease Research

Community builds connection. Connection builds trust. Trust creates a lasting impact. By meeting people where they are, sharing resources, and amplifying voices, we help strengthen communities and improve lives for those living with sickle cell disease. Together, we can turn awareness into action and support into hope. Learn more at fscdr.org. #CommunityOutreach #SickleCellAwareness #EducationInAction #StrongerCommunities #FSCDR

Before their breakthrough, Kristen and Abraham held on to the stories of other families. Hearing about children who received life-saving bone marrow transplants gave them something powerful: Hope. When you’re walking this journey, knowing it’s possible can change everything. Learn more at fscdr.org #SickleCellAwareness #BoneMarrowTransplant #Hope #FSCDR #SickleCellJourney

The Golden Age is here.  Join us June 5–7, 2026, in Fort Lauderdale, FL, for the Symposium.  Celebrate 20 years of scientific collaboration, clinical breakthroughs, and real progress for Sickle Cell Warriors.  Be part of the conversation and reshape the future of sickle cell care.  Spots are filling fast. Register Now!  fscdr2026.eventscribe.net  #SickleCell #FSCDR #GoldenAge #2026Symposium #SCD #SickleCellWarriors

The Golden Age is here.  Join us June 5–7, 2026, in Fort Lauderdale, FL for the Symposium.  Celebrate 20 years of scientific collaboration, clinical breakthroughs, and real progress for Sickle Cell Warriors.  Be part of the conversation and reshape the future of sickle cell care.  Spots are filling fast. Register Now!  fscdr2026.eventscribe.net  #SickleCell #FSCDR #GoldenAge #2026Symposium #SCD #SickleCellWarriors

What do infusion services include? Infusion therapy delivers medications, vitamins, and nutrients directly into your bloodstream through an IV. Because it doesn’t go through your stomach like a pill does, it can start working faster and be absorbed more easily with fewer stomach-related side effects like nausea and diarrhea. At the Foundation for Sickle Cell Disease Research, our dedicated clinicians provide infusion services tailored for individuals living with sickle cell disease. 📞 Call our practice or book your appointment online today. 🔗 Learn more: fscdrllc.com/service/infusi… #InfusionTherapy #IVTherapy #SickleCellCare #PatientCare #HealthcareServices #WellnessSupport #FSCDR

Caregiving takes strength most people never see. Kristen and Abraham Hollist share their journey of hope, faith, and determination.  Their story is a reminder that refusing to give up can open doors to a cure. Learn more at fscdr.org #FSCDR #SickleCellAwareness #SickleCellDisease #PatientStories #CaregiverStrength #Hope #SickleCellWarrior

The Golden Age is here.  Join us June 5–7, 2026, in Fort Lauderdale, FL for the Symposium.  Celebrate 20 years of scientific collaboration, clinical breakthroughs, and real progress for Sickle Cell Warriors.  Early bird rates for the Symposium registration expire on March 13. Register now to take advantage of early bird pricing. Fees increase by $50 after March 13. fscdr2026.eventscribe.net #SickleCell #FSCDR #GoldenAge #2026Symposium #SCD #SickleCellWarriors

Dr. Adetola A. Kassim will present Rewriting Blood: The Genetic Reset of Sickle Cell Disease Through Hematopoietic Stem Cell Transplant as part of Historic Landmarks in Research and Care of Patients with Sickle Cell Disease (1:45 PM – 3:15 PM ET, June 5, 2026). Hematopoietic stem cell transplantation (HSCT) represents one of the most consequential advances in sickle cell disease (SCD) care. Once considered experimental, transplantation has emerged as curative therapy, redefining expectations for patients and families. This presentation is situated within the broader Historic Landmarks session, which reflects on transformative advances that have reshaped SCD care. The panel also features Wally R. Smith, M.D., and Sophie Lanzkron, M.D., MHS. Another additional speaker will be announced soon — stay tuned for the full lineup. We invite you to join us in Fort Lauderdale for this session. Early Bird rates for the Symposium registration expire on March 13. Register now to take advantage of early bird pricing. Fees increase by $50 after March 13. fscdr2026.eventscribe.net #SickleCell #FSCDR #GoldenAge #2026Symposium #ViolaDavis #SickleCellWarriors

Something unexpected happened when Kristen, sitting in the audience at the Symposium, shared her story. Her son had a perfectly matched sibling, yet she had been told he was not a candidate for a stem cell transplant. After the session ended, a hematologist approached Kristen. That moment opened the door to a life-changing treatment for her son.  Sometimes hope begins with a conversation.  Join the conversation at the Symposium in 2026. Register Now fscdr2026.eventscribe.net #FSCDR #SickleCell #SickleCellDisease #WarriorStories #SickleCellWarrior #Symposium

Changing the Future for Sickle Cell Warriors Every day, the Foundation for Sickle Cell Disease Research (FSCDR) creates meaningful change in the lives of thousands of Sickle Cell Warriors through specialized, compassionate care at our Sickle Cell Centers of Excellence. But our work does not stop at treatment. We are transforming the narrative around sickle cell disease through dedicated research and education. We amplify voices that have long been unheard. We acknowledge pain that has too often been dismissed. We fight for increased research funding and equip medical professionals with the knowledge needed to better serve our community. Our vision is bold and unwavering: to reshape the future for Sickle Cell Warriors. Learn more at fscdr.org #SickleCellAwareness #SickleCellWarriors #FSCDR #CentersOfExcellence #CompassionateCare #MedicalResearch #PatientVoices #CommunityImpact #ChangingLives

The Foundation for Sickle Cell Disease Research (FSCDR) is accepting applications for its Mentorship Program, a specialized opportunity for individuals who want to learn about sickle cell disease (SCD). This program connects motivated students and professionals with experienced mentors who work directly in SCD care and research. Through guided mentorship, participants develop a deeper understanding of sickle cell disease while building the confidence and practical skills needed to pursue academic and professional pathways in healthcare. Who should apply? • Medical students or healthcare professionals seeking focused experience in SCD care or interested in chronic disease management • Public health students or professionals • Individuals committed to building expertise and impact in healthcare and SCD management What participants gain: • Mentorship and guidance from clinicians, researchers, and public health leaders in SCD • Skill development and real-world insight into SCD Accepting applications for the 2026 Spring Cycle. Apply by April 1, 2026 Learn more & apply app.smartsheet.com/b/form/39377c8… #FoundationForSickleCellDiseaseResearch #FSCDR #MentorshipProgram #SickleCellDisease #FutureHealthcareLeaders #FloridaStudents

The Foundation for Sickle Cell Disease Research (FSCDR) is honored to announce Dr. Wally Smith as a speaker for the Historic Landmarks in Research and Care of Patients with Sickle Cell Disease session at the 20th Annual Sickle Cell Disease Research and Educational Symposium & the 49th National Sickle Cell Disease Scientific Meeting. The care of individuals living with sickle cell disease has evolved through decades of scientific discovery and clinical innovation. This Symposium session looks back at the landmark advances that reshaped understanding of the disease and ahead to the goals that will define the next era of care. Wally R. Smith, M.D. Professor, Virginia Commonwealth University Dr. Wally Smith will examine the measurement, management, and prognosis of pain in sickle cell disease. Dr. Smith has authored over 100 publications and led major federally funded studies, including the Pain in Sickle Cell Epidemiology Study (PiSCES), the largest and most comprehensive adult cohort study of sickle cell pain. Offering both historical perspective and forward-looking insight for clinicians, researchers, and community members alike, this session will explore how research has reshaped clinical practice in sickle cell disease, from a deeper understanding of pain mechanisms to the development of effective strategies for preventing serious neurologic complications. Two additional speakers will be announced soon — stay tuned for the full lineup. We invite you to join us in Fort Lauderdale. Register Now: fscdr2026.eventscribe.net #SickleCell #FSCDR #GoldenAge #2026Symposium #ViolaDavis #SickleCellWarriors

“Whatever time you have here, live life to the fullest, embrace adventure, and choose kindness toward others.” — Andrea Hall #ChooseKindness #EmbraceAdventure #FSCDR #SickleCellWarrior

The Foundation for Sickle Cell Disease Research (FSCDR) is pleased to announce that Dr. Hyeseon Levitsky will present Journavx (Suzetrigine) and Emerging Nonopioid Approaches to Acute Sickle Cell Pain at the Symposium. Dr. Levitsky is an Assistant Professor at Larkin University College of Pharmacy with more than 25 years of experience in pharmacy practice, including leadership roles as Clinical Pharmacy Coordinator, Investigational Drug Services Coordinator, and Director of Pharmacy. Her work integrates clinical trials, health-system practice, and pharmacy education, with a focus on patient education and the safe, effective use of approved and investigational therapies in hematology. This session will focus on practical, evidence-informed approaches to the assessment and management of acute pain in sickle cell disease (SCD), with particular attention to clinical decision-making around newer non-opioid analgesic options such as Journavx (suzetrigine). The presentation will examine real-world challenges encountered in outpatient and transition-of-care settings, including appropriate medication selection, balancing opioid and non-opioid therapies, and interprofessional coordination. Join us in Fort Lauderdale for this session! Register Now: fscdr2026.eventscribe.net  #SickleCell #FSCDR #GoldenAge #2026Symposium #ViolaDavis #SickleCellWarriors

Your greatest strength isn’t always visible — it lives in your spirit. It’s in your mindset, your faith, your courage, and your ability to rise with hope each day. Even when things feel uncertain, your inner strength continues to carry you forward and shape the incredible person you are becoming. #WarriorSpirit #InnerStrength

We are here to support you at our Hollywood location: 1685 S. State Road 7, Unit 4, Hollywood, FL 33023 Open 24/7 As our flagship Sickle Cell Center of Excellence, this facility represents the heart of FSCDR’s mission — delivering expert care, compassionate support, and vital resources for individuals living with sickle cell disease, whenever you need us. 📍 Hollywood, FL 🕘 Open 24/7 Learn more about our services at fscdr.org. #FSCDR #SickleCellAwareness #CenterOfExcellence #HollywoodFL #SickleCellSupport #PatientCare #CommunityCare

“Caregivers need just as much support. The pain of watching your child suffer can be overwhelming — and it stays with you. That’s why self-care isn’t optional, it’s essential.” — Andrea Hall #HealthAwareness #WarriorStrong #FSCDR #CommunityHealth #EmpoweringPatients #sicklecellcare #sicklecellwarriors #sicklecellsupport

FSCDR Sickle Cell Center of Excellence – St. Petersburg, FL Our St. Petersburg location is dedicated to delivering expert care, compassionate support, and essential resources for individuals and families affected by sickle cell disease. 📍 4040 49th Street North, St. Petersburg, FL 33709 🕘 Open Monday–Friday, 8:30 AM to 5:00 PM Learn more about our services at fscdr.org. #FSCDR #SickleCellAwareness #CenterOfExcellence #StPetersburgFL #SickleCellSupport #PatientCare #CommunityCare

The Foundation for Sickle Cell Disease Research (FSCDR) is pleased to announce Dr. Kofi A. Anie as Chair of the Educational Session on Behavioral and Mental Health at the Symposium. Dr. Anie is a Consultant Psychologist at London North West University Healthcare NHS Trust, affiliated with Imperial College London, where he leads psychology services for sickle cell disease (SCD) and thalassaemia. He also serves as Deputy Clinical Director of the West London Haemoglobinopathies Coordinating Centre and is the Clinical Psychology Advisor for NHS England’s Getting It Right First Time (GIRFT) Sickle Cell Disease and Thalassaemia Programme. Dr. Anie has contributed to the development of both national and international clinical guidelines and standards of care for SCD and thalassaemia, and was a co-opted expert for NICE guidelines on acute pain management in SCD. He has collaborated on numerous international initiatives and currently holds a Visiting Faculty position at the West African Genetic Medicine Centre (WAGMC), University of Ghana. His research interests span sickle cell pain, quality of life, treatment adherence, digital health, and the application of artificial intelligence in patient self-management. In recognition of his contributions, he was awarded the Member of the Order of the British Empire (MBE) for Services to People with SCD and Thalassaemia in the 2017 Queen’s Birthday Honours. Behavioral and mental health challenges remain among the most underrecognized aspects of sickle cell care. While advances in treatment continue to improve clinical outcomes, progress is incomplete if the psychological burden of living with SCD is not addressed. Join us in Fort Lauderdale or via global livestream for this important educational session on behavioral and mental Health. Register Now: fscdr2026.eventscribe.net #SickleCell #FSCDR #GoldenAge #2026Symposium #ViolaDavis #SickleCellWarriors

Strength Every Step of the Way Each day with sickle cell takes strength most can’t see. To every warrior — your courage, perseverance, and hope inspire us all. You remind the world that resilience lives in every heartbeat. #SickleCellStrong #SupportSickleCell #FSCDR #WarriorSpirit