G1D Foundation

Science Director, Dr. Sandra Ojeda, represented the G1DF this past weekend at the Parkinson and Movement Disorder Society – Pan American Section Congress in Houston. Raising awareness, sharing resources, and connecting with clinicians and researchers.

📢 Registration is open for the #GLUT1Deficiency Scientific and Family Summit, July 13-15 in Asheville, North Carolina. Early Bird pricing is available through March 15: g1dfoundation.org/2026-summit/

@G1DFoundation has designated WashU Medicine Neurology / St. Louis Children's Hospital as a GLUT1 Collaborative Care Center of Excellence — one of only 25 in the world! Read more about our mission to provide excellent patient care: bit.ly/49GV4Jb

We’re excited to announce the launch of our Collaborative Care Center Network, bringing together 25 designated centers committed to improving care for individuals and families affected by GLUT1 Deficiency. Learn more: g1dfoundation.org/announcing-the…

A powerful story of friendship between GLUT1 Deficiency hero Alaina Shelsta and Denver Broncos Quinn Meinerz. Alaina’s courage helped pioneer diazoxide, now in clinical trials. Quinn’s advocacy has raised awareness for years. Grateful for them both 💙 youtube.com/watch?v=MFj5b7…

Applications are open now through December 1st for our new Collaborative Care Network initiative - an effort to improve care for GLUT1 Deficiency patients and families and recognize centers of excellence. Learn more... g1dfoundation.org/collaborative-…

We’re excited to announce the launch of our Collaborative Care Center program, created to recognize hospitals and clinics that provide outstanding, patient-centered care for the GLUT1 Deficiency community. Learn more and share with your team! g1dfoundation.org/launch-of-glut…

The G1DF was honored to be a charity sponsor of the 9th Global Symposium on Ketogenic Therapies and the 5th European GLUT1 Meeting last week in Paris and congratulate Dr. Jörg Klepper on the John Freeman Award! Read some meeting highlights: g1dfoundation.org/meeting-highli…

We're full of gratitude for all those who helped make the first ever GLUT1 Deficiency Research Workshop such a wonderful and impactful experience - read more about it on the GLUT1 Glimpses blog: g1dfoundation.org/glut1-deficien…

Welcoming our summer intern - so thankful to have Lindsey on board for some special projects she's going to tackle. Learn more on our Glut1 Glimpses blog: g1dfoundation.org/welcoming-lind…

Want to hear lightning talk updates on GLUT1 Deficiency research and participate in working sessions to help improve clinical care and drive progress? Join us at the inaugural Research Workshop July 24th and 25th in New York City. g1dfoundation.org/2025-research-…

Groundbreaking research from G1DF Science Advisor Matt Gentry and colleague Ramon Sun. Two amazing scientists who are also giving time, attention, and expertise to us with the same technology. They've made a lot of great things happen already! ufhealth.org/news/2025/eat-…

SO MUCH gratitude for the team effort to make this possible! Thrilled to announce a $60,367 grant opportunity for Glut1 Deficiency research to drive progress toward earlier diagnosis and easier and better treatments. g1dfoundation.org/million-dollar…

Thrilled to share our first research publication, summarizing our recent efforts to drive patient-centered research progress. Big congratulations to lead author Dr. Sandra Ojeda, and thanks to Chantal Sanchez and Glenna Steele for being part of the team! journals.sagepub.com/doi/epub/10.11…

Sending congratulations and best wishes to Dr. Jong Rho on his new appointment at Yale. He's a treasured member of our Medical and Scientific Advisory Board and an exceptional advocate for ketogenic dietary therapies. We're thankful for him! medicine.yale.edu/news-article/l…

Please join our next Research Roundtable to hear Dr. Juan Pascual and Prof. Dr. Jörg Klepper share some highlights, take-aways, and snapshots from our recent Glut1 Deficiency Summit. Learn more and register at our website: g1dfoundation.org/events/researc…

The MDBR is an incredible opportunity for rare disease communities like ours to drive research and double the impact through matching funds. Team Glut1 rides again on June 8th and we can't to see what's next. Learn more about how you can help: g1dfoundation.org/million-dollar…

Highlights from 2022....and looking ahead with excitement to our 2024 Glut1 Deficiency Summit! Join us June 26-29 at the Omni Dallas Downtown. Registration closes June 12th, hotel discounts end on May 11th, and poster submissions are due by May 1st. youtu.be/LOA97Q9Aj4c?si…

Join our spring Research Roundtable to hear about Dr. Elizabeth Radford's work to better understand the functional impacts of genetic variants and insights on a project from Dr. Abraham Al-Ahmad to model GLUT1 at the blood brain barrier. Learn more: g1dfoundation.org/events/researc…

We had a wonderful weekend of meeting, sharing, and learning during our Research Ready Series Event in Philadelphia. Thankful for all who came to contribute knowledge, experience, and hope.