Genetics Policy Hub

On April 23, 2024, #TN @GovBillLee signed a bill to require screening for #genetic, #metabolic, or other heritable conditions, including, but not limited to, those on the Recommended Uniform Screening Panel (#RUSP), effective July 1, 2024. Learn more at: bit.ly/4b7fslZ

The April 8-12th 2024 GPH X Wrap-Up of the Week includes 2 bills enacted in #VA relating to #SickleCell disease; and a bill introduced in #NJ relating to coverage for #BiomarkerTesting. Subscribe to receive the Wrap-Up in your inbox weekly! geneticspolicy.substack.com/p/genetics-pol…

On April 8, 2024, the #NJ Assembly introduced a bill to require health insurers to provide coverage for #BiomarkerTesting. Learn more at: bit.ly/4cQqU77

#VA Governor @GlennYoungkin signed a bill on April 4, 2024, to create a statewide registry of #SickleCell disease patients to be maintained by the VA State Health Commissioner. Learn more at: bit.ly/3vNnLUS

The #VA House introduced a bill on January 4, 2023 to create a statewide registry of #SickleCell disease patients to be maintained by the @VDHCommissioner. Learn more at: bit.ly/3vqk07z

On April 4, 2024, #VA Governor @GlennYoungkin signed a bill to provide for an annual review of medications, services, and forms of treatment available to individuals diagnosed with #SickleCell disease and eligible for coverage under #Medicaid. Learn more: bit.ly/3vLqrm4

The #VA House introduced a bill on January 9, 2024, to provide for an annual review of medications, services, and forms of treatment available to individuals with a diagnosis of #SickleCell disease who are eligible for coverage under #Medicaid. Learn more: bit.ly/3tOeMBQ

The April 1-5th 2024 GPH X Wrap-Up of the Week includes an enacted state bill in #VA; introduced state bills in #Louisiana and #NY; and a Executive Order published in #IL, all related to #SickleCell disease. Subscribe to receive the Wrap-Up in your inbox! bit.ly/3J8BPeQ

On March 29, 2024, #IL @GovPritzker published an Executive Order, effective March 18, 2024, to establish The Advisory Council on Financing and Access to #SickleCell Disease Treatment and Other High-Cost Drugs and Treatment to advise @ILDHFS. Learn more: bit.ly/3TGxUe5

On April 2, 2024, the #Louisiana House introduced a bill which would allow healthcare providers to execute an agreement to allow for the communication of patient information to #SickleCell disease associations. Learn more at: bit.ly/43ITSBG

The #Louisiana House introduced a bill on April 2, 2024, to require physicians and physician assistants practicing emergency medicine to complete a 3-hour continuing education course on the treatment of #SickleCell disease every 3 years. Learn more at: bit.ly/43Icz8C

A bill introduced by the #NY Senate on March 28, 2024, would direct @HealthNYGov to conduct a sickle cell disparity study to determine disparities between treatment accessibility and affordability for persons with #SickleCell disease. Learn more at: bit.ly/43LT5jr

On March 28, 2024, #VA Governor @GlennYoungkin signed a bill which provides that every adult resident of the state may be offered screening tests for #SickleCell disease or sickle cell trait. Learn more at: bit.ly/3JalqGx

The March 25-29th 2024 GPH X Wrap-Up of the Week includes introduced state bills in #AL, #MN, and #NY related to #NewbornScreening; coverage for #GeneticTesting; and #SickleCell disease. Subscribe to receive the Wrap-Up in your inbox weekly! bit.ly/49iAaOz

A bill introduced by the #NY Senate on March 28, 2024, would require #SickleCell disease coursework or training for every medical student, medical resident and physician assistant student in the state. Learn more at: bit.ly/4aAntPW

On March 28, 2024, the #NY Senate introduced a bill to map locations of occurrence of #SickleCell disease; promote screening, detection, and education; and provide counseling and referral services. Learn more at: bit.ly/3J09WWm

The #NY Senate introduced a bill on March 28, 2024, to require the @HealthNYGov Health Equity Council to issue mandates related to the treatment of #SickleCell disease. Learn more at: bit.ly/49fuzZc

The #AL Senate introduced a bill on March 21, 2024, which would require the State Board of Health to add any condition on the Recommended Uniform Screening Panel (#RUSP) to the state’s #NewbornScreening panel. Learn more at: bit.ly/3IZYIAQ

On March 20, 2024, the #MN House introduced a bill which would require health insurance plans to provide coverage for clinical #GeneticTesting for enrollees with a personal or family history of #cancer, effective January 1, 2025. Learn more at: bit.ly/4a8ViIg

The March 18-22nd 2024 GPH X Wrap-Up of the Week includes a newly introduced #MA state bill relating to #SickleCell disease. Subscribe to receive the Wrap-Up in your inbox weekly and read this week's issue at: geneticspolicy.substack.com/p/genetics-pol…

On March 12, 2024, the #MA Senate introduced a bill to establish a statewide Steering Committee on #SickleCell Disease; and the Sickle Cell Disease Detection and Education Program within @MassDPH. Learn more at: bit.ly/4cl1CxM

On February 23, 2024, the US House introduced a bill which would enable State #Medicaid programs to provide comprehensive, coordinated care through a health home to individuals with #SickleCell disease. Learn more at: bit.ly/49ZQHaG