Gill Price

#NunsatPollingStations new polling station for me, very civilised at #weyHill #Haslemere, thank you

@AudieHamilton @EileanIdhe Sorry, Audrey, im not going to make it tonight, running late. Please say a prayer for our justice and peace weekend for religious and friends which starts tomorrow

LECTIO DIVINA 8pm this evening, praying together with the Scriptures for the Sixth Sunday of Easter. Led and hosted by @EileanIdhe

oh the trouble with banks! Even Pope Leo is not recognised!

@Silvanarscj @srjudithl Today's is more straightforward, Alleluia!

@Gillianfc @srjudithl OK, now I can see zip, belt, buttons... But I'm not going to spend all night trying to see more!

Having looked at this evening's Connections, the verdict is that I'm not even thinking of attempting it!

@TheResoluteLife "our goal is to use lived experience to make other's lives better." God bless you all for your diligent research making it possible 'for all to have life and have it to the full' Thank you, Alleluia!!

Team Iron Will Fam, Thought I'd follow-up with a post regarding Iron Will's recent hospitalization. We've had a few days to digest some new realities. I apologize for the length of this post, but it's important. First, Iron Will is doing SO much better. Thank you all for your intentional and powerful prayers! His lungs are still diminished, and we continue to treat him at home, but no one keeps the wee little man confined to barracks for long! Second, a critical observation for families who have children with Down syndrome and breathing issues, or even breathing issues alone: Every time Iron Will's been hospitalized with breathing issues, standard protocol has been to immediately start him on Albuterol treatments. Before we leave home and then round-the-clock in the hospital. And interestingly enough, he always seems to get worse before he gets better. When we asked why, there was no viable explanation beyond, "The (fill in the virus or infection name) has to run its course." BUT THERE IS A REASON. A potentially life-impacting/threatening reason. I said we were blessed this time around with a doctor (Pulmonologist) who applied some intellectual rigor to the problem set. True statement. He read Iron Will's complete medical history before he ever came to talk with us. ALL OF IT. And he noted Iron Will was diagnosed with tracheobronchomalacia (TBM) very early in life. And that no follow-up had been performed to assess the currency or impacts of the condition. That was Issue #1. Issue #2? Albuterol is contraindicated - or at a minimum, should be used with extreme caution (e.g., when a concurrent significant asthma flare is present) - in cases like Iron Will's where TBM is the primary driver. Why? Because it can deepen the collapse of the trachea and bronchi, making breathing harder, not easier. Yeah - you're reading that the same way I'm writing it. WTH?!!! We are Iron Will's most strident advocates. My wife is like the Sherlock Holmes of Down syndrome - relentlessly researching ways to improve Iron Will's health and life. She knows his medical profile like the back of her hand and can recite it in her sleep. In fact, sometimes she does. And guess what we were NEVER told? Despite announcing each visit that he had TBM. And guess which equation no ER staff or hospitalist ever took the time to solve? Including at a Down Syndrome Center... So this time, as he was getting worse, the Pulmonologist (who had already done a thorough INTEL prep of the battlefield) stopped the Albuterol treatments as soon as he came to see Iron Will. And the regression slowed. Then stopped. And then healing began. Listen, this isn't an anti-Albuterol post. In fact, it can be lifesaving - if and when it's administered in the proper context as part of a warranted treatment protocol. New assessment? Iron Will doesn't have asthma. It was always the TBM. There's a lot of guilt on our part. We’ve gotta process feeling like we failed Iron Will for a long while. Guilt that hopefully time and the absence of permanent damage will assuage. Because we live for that little guy. For all our children. And I'm not saying it's the whole answer - we have much more to learn, and a follow-up scope to assess potential damage already done and determine best next steps - but it's a big part of the solution. This visit - heartbreaking as it was because they all are - was providential for us. And now, I hope, for other families with children in the same situation. Because, as with everything we do as people and as Team Iron Will, our goal is to use lived experience to make other's lives better. #TeamIronWill #IronWill #DownSyndrome

Googling found the blue row as total ignorance of this category! Connections Puzzle #1061 🟨🟨🟨🟨 🟦🟦🟦🟦 🟪🟪🟪🟪 🟩🟩🟩🟩

Another phew! Wordle 1,783 6/6 ⬜⬜⬜⬜🟩 ⬜⬜⬜🟨🟨 ⬜⬜🟩🟨🟩 ⬜🟩🟩🟩🟩 ⬜🟩🟩🟩🟩 🟩🟩🟩🟩🟩

@srjudithl @Silvanarscj I surprised myself by recognising the row which included a zip! I gave up after that

@Gillianfc @Silvanarscj I gave up.

Phew! Wordle 1,782 6/6 ⬜🟩⬜🟨🟨 ⬜🟩⬜🟩🟨 🟩🟩⬜🟩⬜ 🟩🟩⬜🟩⬜ 🟩🟩⬜🟩🟩 🟩🟩🟩🟩🟩

Not today! Connections Puzzle #1060 🟩🟩🟩🟩 🟨🟦🟨🟨 🟨🟨🟨🟨 🟪🟪🟪🟦 🟪🟦🟦🟦 🟦🟪🟦🟦

@ssmwalsingham May she rest in peace and rise in glory

Please pray for the soul of Sr Francis Anne SSM who did on 1st May aged 90 and in the 61st year of her Religious Life. She originally joined the Community at Laleham transferring to Walsingham in 1994 and then to Chiswick in 2014. May she rest in peace.

Not a lot to go on today Wordle 1,781 4/6 🟨⬜⬜🟨⬜ ⬜⬜⬜⬜⬜ 🟨🟨🟨⬜⬜ 🟩🟩🟩🟩🟩

But it did fit!.. but not with the purple row which defeated me Connections Puzzle #1059 🟩🟩🟩🟩 🟨🟨🟨🟨 🟦🟦🟪🟦 🟦🟦🟦🟦 🟪🟪🟪🟪

Something is very wrong with the BBC's attitude towards nature here. As we celebrate David Attenborough 100 birthday, yes, BBC needs to do better @curlewcalls

Hate it when that happens Wordle 1,780 4/6 ⬜🟩🟩⬜🟨 ⬜🟩🟩🟩🟩 ⬜🟩🟩🟩🟩 🟩🟩🟩🟩🟩

Lots of googling today! Connections Puzzle #1058 🟪🟪🟩🟨 🟦🟦🟪🟦 🟦🟦🟦🟦 🟨🟨🟨🟨 🟪🟩🟩🟩 🟩🟩🟩🟩 🟪🟪🟪🟪

Woops, nearly Connections Puzzle #1057 🟨🟨🟨🟨 🟪🟪🟪🟩 🟪🟪🟪🟪 🟩🟩🟩🟩 🟦🟦🟦🟦

Woo hoo! Wordle 1,779 3/6 🟩⬜⬜🟨⬜ ⬜⬜⬜⬜⬜ 🟩🟩🟩🟩🟩

@Silvanarscj yep! I hoped i didn't give too much of a clue this morning