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This is our website for anyone who wants to check us out: gopi3ks.com
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GoPI3Ks (Genetic Overgrowth PI3K Support)
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GoPI3Ks (Genetic Overgrowth PI3K Support)
@GoPI3Ks
A UK registered charity (1176289) for those living with PROS (PIK3CA Related Overgrowth Spectrum)
Lancashire, UK Katılım Ocak 2016
357 Takip Edilen568 Takipçiler
GoPI3Ks (Genetic Overgrowth PI3K Support) retweetledi
It’s amazing the difference a bit of sunshine can make ☀️ You can be the sunshine for others too
Image: instagram.com/happyzodesigns
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acrobat.adobe.com/id/urn:aaid:sc…
Following on from our webinar with Relay Therapeutics here is a brochure for caregivers in the U.K. for those living with Vascular Malformations
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Following on from our webinar with Relay Therapeutics on their new PROS drug. Here is a brochure for adults living with vascular malformations
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweetledi
Sorry to those waiting for the raffle draw for my birthday fundraiser. I’ve been very ill with severe vertigo, sickness & bad cold. Still not 100% but on the mend slowly & will do the draw once my face is ready for the camera again 😉😘
GIF
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For PROS patients in europe: Together with patient organisations, Relay Therapeutics are hosting a webinar on 5 March at 19:00 (Amsterdam time, CET / GMT+1). During the webinar, they will explain the clinical trial in more detail. If you would like the link please let me know ☺️
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IS THERE A TREATMENT FOR PROS?
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
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MANAGEMENT OF PROS
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
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SELECT COMPLICATIONS OF PROS
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
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PIK3CA RELATED NONVASCULAR LESIONS
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
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ILM - ISOLATED LYMPHATIC MALFORMATION
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
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DMEG - DYSPLASTIC MEGALENCEPHALY ENLARGEMENT
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
Dansk
LON - LIPOMATOSIS OF NERVE
#RareDiseaseDay #RareDiseaseDay2026
#PROS #PIK3CA #PIK3CARelatedOvergrowthSpectrum
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