Gözde Susuzlu Briggs

“AI is math, not magic!” @esutherland272 #DSL5 #datasaveslives @DataSaves_Lives @eupatientsforum

"#EHDS approach to primary use of #healthdata holds a lot of tangible promises for patients. Secondary use will bring results in the longer run, as they won't be immediately visible to the public." says @GozdeBriggs from the @eupatientsforum at #HIMSS24EUROPE.

#RWE and #patientregistries are gaining a momentum as tools to inform regulatory and HTA decision making. @DataSaves_Lives and @IMI_EHDEN host a much needed bootcamp event for patient organisations.

📢 Today, we were at #ESMOGI to kick off our 8th annual Masterclass & we gather leading experts to discuss: 🔹Priorities for Digestive Health Research 🔹Tailored Treatment for Digestive Cancers 🔹Latest Updates from GI Cancer Congresses 2023 #DiCEMasterclass2023 #WCGIC2023

✅Are you a #youngpatient advocate? ✅Are you between the ages of 18 and 29? ✅Are you passionate about building a better future for young patients? Then you may want to consider joining @epfyouthgroup! #Applications remain open until 31 July. ➡️bit.ly/3peL5ru

👉EPF is travelling to Italy today! Why? Together with @PFMDwithPatient, @eupatients, and many others, we join the face-to-face edition of #PEOF, the Patient Engagement Open Forum. Curious to learn about what we are up to in the following days? Stay close for more!

📢@DataSaves_Lives News: "Our Health in the Cloud" report was launched today @HIMSS European Health Conference & Exhibition Read the full report here ➡️bit.ly/42zn386 @iHD_HealthData @HealthPolicyPtp

🇪🇺 Celebrating #EuropeDay by supporting important causes! 🌍🤝 Today, I'm spending my Europe Day by preparing for a presentation and panel discussion representing @DataSaves_Lives, taking place tomorrow. Stay tuned 🛟 #DataSavesLives

"Where there is political will, a lot can happen" @mayacmat mentions the importance of #patientengagement in #HTA during her keynote speech at #EPF20. This gives a nod to our new project #EUCAPA, a joint effort to build patient community capacity in HTA: bit.ly/3NfnsIW

#EPF20 #20YearsStronger #FutureofPatientAdvocacy

Delighted to be in the beautiful city of #Lisbon to host our second #DataSavesLives Bootcamp! We can't wait to meet our #PatientOrganisation ambassadors for 2 days of learning, collaboration and FUN as we discuss key #AI topics in #healthcare. Stay tuned!

📊 Muy contentos de participar en el #bootcamp de @DataSaves_Lives en Lisboa 🇵🇹 sobre datos y transformación digital centrada en #salud. Estuvo coordinado por @GozdeBriggs, Coordinadora de Proyectos de @eupatientsforum #pacientesPOP datasaveslives.eu

🛟 Day 2 of the #DataSavesLives boot camp is underway! ▪️First, hearing from @MTrucl about @eupatientsforum work on #ArtificialIntelligence ▪️Then, playing a serious game via @1visionhealth ▪️ and finally wrapping up these two days with the ambassadors and looking to the future!

[1/6] 📢 Did you read @eupatientsforum's February edition of The Patient Perspective? Stay updated and find the latest in the world of #patientadvocacy here. Read the thread for a roundup!

HIRING | Are you looking for a #newjob? Be our #CapacityBuilding Assistant. The @eupatientsforum team is looking for a new colleague to assist in the roll-out of our Capacity Building activities. More about the #vacancy here: bit.ly/3ImE0ur 🗓️Deadline: 12 March 2023

For any patient group representatives out there – what would be your greatest motivator in establishing a #PatientRegistry? #DSLChat

For any patient group representatives out there – what would be your greatest concern in establishing a #PatientRegistry? #DSLChat

Welcome to today’s #DSLChat, exploring the role of patient #HealthData disease registries in driving knowledge and subsequently, improvements to care. Nowhere is this more important than in the case of #RareDiseases, where patient data is often limited

To mark International Angelman Day, we spoke with Margaux Vanham, whose son, Lucas, was diagnosed with the rare disease. Read about why sharing #HealthData and taking part in research studies is so important to families here. #AngelmanSyndrome #IAD2023 #ASFShowtheLove❤️

Tech Volunteers Rush to Save Turkey’s Earthquake Survivors wired.co.uk/article/tech-v… via @WiredUK