Grainne Tynan retweetledi
Grainne Tynan
488 posts
Grainne Tynan
@Gra_Tynan
Sjögren’s Advocate & Senior Occupational Therapist. Views my own.
Dublin City, Ireland Katılım Eylül 2016
581 Takip Edilen164 Takipçiler
Grainne Tynan retweetledi
Fantastic blog post by Gráinne Tynan, patient researcher on the @SYNERG_IE team, sharing details on how their PPI panel was established and how they collaborate. Really useful info for anyone setting up a PPI panel!
SYNERG-IE@SYNERG_IE
“PPI is central to SYNERG-IE, as our programme aims to co-create solutions with people living with Sjögren’s, ensuring that their lived experiences directly shape research priorities, methodologies, and outcomes.” – Gráinne Tynan Read about it here: shorturl.at/6WRWI
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Here’s a new blog post I wrote about our experience of setting up a PPI panel for SYNERGIE-IE research programme.
#Sjogrens #PPI
SYNERG-IE@SYNERG_IE
“PPI is central to SYNERG-IE, as our programme aims to co-create solutions with people living with Sjögren’s, ensuring that their lived experiences directly shape research priorities, methodologies, and outcomes.” – Gráinne Tynan Read about it here: shorturl.at/6WRWI
English
Grainne Tynan retweetledi
We’re really looking forward to discussing our Sjögren’s advocacy journey with @JGabhann at this year’s event.
#SjogrensSynergie
SYNERG-IE@SYNERG_IE
At our knowledge exchange event next month, @SjogrensIrl patient advocacy group founders in conversation with Joan Ní Gabhann Dromgoole from @RCSI_Irl will be discussing their Sjögren’s advocacy journey. Please register to attend via the link in bio. #SjogrensSynergie #Sjogrens
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Grainne Tynan retweetledi
We’re delighted to announce that this year’s Sjögren’s event will be held on 2nd Nov. For the 1st time this will be in online & in person in @RCSI_Irl . We’re really looking forward to meeting as many of you as possible!
Please register your interest: t.ly/8S23H
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Grainne Tynan retweetledi
What is Sjögren’s?
Sjögren’s is a common and serious autoimmune disease that can affect the whole body. The most frequent symptoms are dry eyes, dry mouth, severe fatigue and chronic pain.
🔗For more info visit: sjogrens-synergie.eu/what-is-sjogre…
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Grainne Tynan retweetledi
Delighted to have our Sjögren’s Ireland support group mentioned in this article by Dr Jenny Moffett in @RCSI_Irl
“The group has evolved into a crucial space for patients to share knowledge and experiences.”
The Irish Times@IrishTimes
‘As a researcher in uncertainty, I had reached my threshold of discomfort in not knowing’ irishtimes.com/health/your-we…
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Grainne Tynan retweetledi
Fantastic article by Dr Jenny Moffett in today’s @IrishTimes about #Sjögrens, featuring our cofounder Deirdre Collins talking about the uncertainties of living with a complex chronic illness.
irishtimes.com/health/your-we…
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@Gra_Tynan @SYNERG_IE No better person for it. Huge congratulations 👏 ❤️
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I’m delighted to be part of the new @SYNERG_IE research team in RCSI.
SYNERG-IE is a 5-year multidisciplinary research programme that aims to address longstanding challenges in the recognition, diagnosis and management of #Sjogrens.
#WorldSjogrensDay
RCSI@RCSI_Irl
To mark #WorldSjögrensDay, @SYNERG_IE is opening a call inviting patients and the public to join an advisory panel. SYNERG-IE, based in RCSI, aims to address longstanding challenges in the recognition and management of Sjögren's. More ➡️ tinyurl.com/ewuht9mw #RCSIengage
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Grainne Tynan retweetledi
We are very excited to announce that @SYNERG_IE team at @RCSI_Irl has launched an open call for volunteers to join our new PPI Advisory Panel.
sjogrens-synergie.eu/join-our-ppi-a…
#worldsjögrensday #worldsjogrensday #sjogrens #sjögren #autoimmune #ppi
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Grainne Tynan retweetledi
The Irish Blood Transfusion Service has issued an appeal for an additional 2,000 blood donations over the next four weeks to help the national blood supply, as some blood groups have fallen to less than three days of stock rte.ie/news/ireland/2…
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Grainne Tynan retweetledi
Sjögren's Ireland recently met up with Dr Joan Ní Gabhann-Dromgoole to celebrate winning best poster from patient point of view at the 16th International Symposium for Sjögren’s Disease in the Netherlands. 📷 Thanks @xNVSP!
#Sjogrens #Sjögrens #Sjogrensawareness #autoimmune
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Grainne Tynan retweetledi
Grainne Tynan retweetledi
We sometimes get asked why we don’t call it Sjögren’s Syndrome anymore. This thread sums it up perfectly 👇
Sjögren’s disease research is far behind other rheumatic diseases because it was wrongly dismissed as an unserious & rare syndrome.
Jocelyn J. Fitzgerald MD@jjfitzgeraldMD
Medicine does this infuriating thing with women's health where we all notice a repeating pattern of debilitating symptoms and then call it a "syndrome" and thats where the acknowledgement stops. It's never a "real" disease with an identifiable cause and a treatment. Examples...
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Grainne Tynan retweetledi
Change of the Dental Treatment Scheme is urgently needed in Ireland @DonnellyStephen
“The scheme is haemorrhaging dentists and requires immediate attention. Alarmingly, the number of dentists has dropped by almost 50% in the past 10 years.”
@IrishDentists
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Grainne Tynan retweetledi
Snapped! 📷 Sjögren's Ireland team at the RCSI Public Patient Involvement Knowledge Exchange Event. The team are standing in front of a poster created in collab between @JGabhann and Sjögren's Ireland.
#Sjogrens #Sjögrens #Sjogrensawareness #sjogrenswarrier #peersupport #PPI
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Grainne Tynan retweetledi
Last chance to apply for 2 funded PhD positions in RCSI studying #Sjogrens. The roles will research:
1: Understanding and Improving Sjögren’s Care and Health Professions Education
2: Prescribing and Medicines Optimisation to Enhance Sjögren’s Care
Details below 👇
Michelle Flood@shellflood
Still time to apply for two PhD positions available to research Sjögren's as part of the @hrbireland funded SYNERG-IE programme. Further details available here: tinyurl.com/24ru639s Applications close at 5pm tomorrow, May 23rd. @FrankMoriarty @SjogrensIrl @RCSIPharmBioMol
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