HAE International (HAEi)

That’s a wrap for the 2026 Global Angioedema Leadership Conference! Thank you to our 800 participants, speakers & supporters! Missed it? Join our mailing list to read the Global Perspectives write-up when it's ready: haei.org #26GALC #HAEi #ACARE #Angioedema

The 1st Global Angioedema Leadership Conference is underway! Tony Castaldo, Henrik Balle Boysen & Markus Magerl kick off the joint HAEi & ACARE event, welcoming 800 participants from 90 countries to ‘Make a Difference’ for HAE patients worldwide #26GALC #HAEi #ACARE #Angioedema

Are you participating in the 2026 Global Angioedema Leadership Conference in Madrid? We have people in the airport today to welcome you and guide you to the hotel buses 😁 🚌 #26GALC #HAEi #ACARE #Angioedema

We look forward to welcoming 800 Key Patient Opinion Leaders from our member countries, physicians, scientists, researchers, & industry representatives from the angioedema community, to the 2026 Global Angioedema Leadership Conference in Madrid, Spain! #26GALC #HAEi #ACARE

The Manipal Hospital in Bengaluru, India, has been certified as the 3rd ACARE center in the country. Find contact information for all ACARE centers, HAE knowledgeable physicians and other useful resources for India buff.ly/zbVT8vd ACARE info buff.ly/KNAH0uZ

Surfing the ‘wave’: How new & forthcoming treatments could offer benefits for more people with HAE! 2025 was quite the year for HAE treatment. Global Perspectives looks behind the headlines & speaks to advocates & medical experts about what might be next. buff.ly/WqRSa4Z

HAEi's Regional Patient Advocate, Maria Ferron, reports from her region, Mediterranean, North Africa, Benelux, and British Isles, in the latest edition of our Global Perspectives magazine buff.ly/RdMPhpv Read the full edition here buff.ly/DoReZUV

In the latest issue of our Global Perspectives magazine, Patricia Karani, HAEi's Regional Patient Advocate for Sub Sahara Africa, reports from her region buff.ly/DpmhHtp Find the fully online format with translation options at your fingertips here buff.ly/DoReZUV

In the latest edition of our Global Perspectives magazine, Javier Santana, HAEi's Regional Patient Advocate for Central America and the Caribbean, reports from his region buff.ly/4f3ICI3 Find the full magazine with translation options here buff.ly/DoReZUV

In the latest edition of our Global Perspectives magazine, Yong Hao Lim, HAEi's Regional Patient Advocate for East Asia, reports from his region: buff.ly/bG9KFjh Find the full magazine here: buff.ly/DoReZUV

In the latest edition of our Global Perspectives magazine, Fanny Schappler, HAEi's Regional Patient Advocate for South Asia, Germany, Austria, Switzerland, and Israel, reports from her region: buff.ly/FQv6bkX Find the full magazine here: buff.ly/DoReZUV

HAEi's Regional Patient Advocate, Fernanda De Oliveira Martins, reports from her region, South America and Mexico, in the latest edition of our Global Perspectives magazine: buff.ly/qGjNQvS Find the full magazine here: buff.ly/DoReZUV

HAEi's Regional Patient Advocate, Natasa Angjeleska, reports from her region, South Eastern Europe, in the latest edition of our Global Perspectives magazine buff.ly/sFluhaQ Find the full magazine here: buff.ly/DoReZUV

In the latest edition of our Global Perspectives magazine, Michal Rutkowski, who is HAEi's Regional Patient Advocate for Central Eastern Europe and Middle East, reports from his region buff.ly/tW8tudO Find the full magazine here: buff.ly/DoReZUV

It's with great pleasure that we welcome Sri Lanka to the HAEi Family as country #106 under our international umbrella. Congratulations to everyone who contributed to bringing Sri Lanka to the family. Thank you for all you do on behalf of people with HAE. buff.ly/Wz5D4Bh

The 2026 HAEi Regional Conference Americas is for countries in North, Central, and South America only. The conference takes place in Ottawa, Canada, 23-25 October 2026. People with HAE and their caregivers (close relatives) can apply for a Travel Grant: buff.ly/0RSYZGP

HAEi supports HAE research & clinical trials in many ways. A recent example is RPA Fernanda de Oliveira Martins participating in a Study Coordinator Meeting in Brazil & Argentina to present on HAEi & the work of MOs in these countries. HAE clinical trials: buff.ly/p9hqPzI

This year's first edition of Global Perspectives is now available online, allowing you to translate all articles into your preferred language. Read the latest news, features & hear from our global community on their highlights for 2025 & goals for 2026: buff.ly/UvK5Xme

Today is #RareDiseaseDay, which celebrates & raises awareness for people affected by >6,000 rare diseases, including hereditary angioedema (HAE). HAE is not only very rare but also a potentially life-threatening genetic condition. Find out more about HAE: haei.org

HAE (hereditary angioedema) is a very rare, potentially life-threatening genetic disease. Though we are small in numbers, we have >100 Member Organizations worldwide. We are in almost every corner of the world & are very active, creating awareness of HAE. haei.org