Hairy Cell Leukemia Foundation

Last year, Kathryn Strobach from Triage Cancer explained common health insurance terms and tips to avoid financial stress. Learn more: hairycellleukemia.org/2025-seminar-s…

HAPPENING THIS MONTH☝️ Join us for a warm and engaging HCL Variant-focused Roundtable hosted by the Hairy Cell Leukemia Foundation on March 25th from 1:00 to 1:50 PM Eastern Time. We look forward to seeing you there! Register through the link below: hairycellleukemia.org/calendar/2026/…

Dr. Jae Park at Memorial Sloan Kettering Cancer Center is leading a study for people with HCL who have not yet started treatment. You can find more details about Dr. Park’s trial at this link. The page has contact information for Dr. Park and his team: clinicaltrials.gov/study/NCT06561…

🟢 TOMORROW, MARCH 17th Join us from 1:00-1:50 pm eastern for an 'Understanding Hairy Cell Leukemia' webinar with Dr. Robert Kreitman from the National Cancer Institute, NIH. It's not too late! Register HERE: hairycellleukemia.org/calendar/2026/…

📨 Stay in the loop! Sign up for the Hairy Cell Leukemia Foundation’s monthly e-newsletter and get the latest updates on research, patient resources, upcoming events, and community news delivered straight to your inbox: lp.constantcontactpages.com/sl/zXgaTYb/lin…

Mark your calendars! 🗓️ On March 17th, join us for our first 'Understanding Hairy Cell Leukemia' webinar of 2026. This webinar will feature Dr. Robert Kreitman from the National Cancer Institute, NIH. Register HERE: hairycellleukemia.org/calendar/2026/…

Dietitians advise patients with HCL and other leukemias to focus on balanced nutrition, preventing malnutrition, and promoting a healthy body. The aim is to eat well while staying aware of foods that might cause issues. hairycellleukemia.org/2025-seminar-s…

💚 Join us TOMORROW for the HCLF Women's Group Roundtable. This is a wonderful opportunity to connect, share experiences, learn from each other and foster support among women in our HCL community. Register for this Zoom-based roundtable HERE: hairycellleukemia.org/calendar/2026/…

Facing the stress of an HCL diagnosis is one of the hardest things anyone can go through. It is okay to lean on trusted caregivers. You do not have to carry everyone else’s feelings while you are dealing with your own. For more, visit: hairycellleukemia.org/2025-seminar-s…

At the Hairy Cell Leukemia Foundation (HCLF), we celebrate the strength of the HCL community on #RareDiseaseDay. Today, we honor every story, every voice, and everyone living with HCL. hairycellleukemia.org

Venetoclax is used to treat CLL. Early studies show promising results for HCL, but it may take some time before the full effects are clear. To learn more about the latest updates, you can read our Seminar Expert Panel transcript at: hairycellleukemia.org/2025-seminar-s…

🟢 Announcing Our March Roundtables! We’re happy to announce our Community Roundtables coming up in March. Come join us for conversations that will inform, inspire, and help bring our community together. You can sign up through our program calendar: hairycellleukemia.org/calendar

🟢 Returning to work after HCL treatment can feel overwhelming, but you are stronger than you think. This message was powerfully echoed in a recent talk by Emily Blackmer on hairy cell leukemia and mental health. You can watch the full talk here: hairycellleukemia.org/2025-seminar-s…

🟢 How to discuss hairy cell leukemia with kids? Use honest, age-appropriate language. Keep details minimal yet truthful to build trust. Watch Emily Blackmer share mental health advice from our 2025 Seminar here: hairycellleukemia.org/2025-seminar-s…

Standard treatment for Hairy Cell Leukemia (HCL) may not be the best option for every patient. That's why through clinical trials, researchers are exploring new options to personalize care. Learn about these evolving treatments: hairycellleukemia.org/2025-seminar-s…

📨 Sign up for our monthly e-newsletter to stay connected with the Hairy Cell Leukemia Foundation. Receive updates on new research, patient stories, and helpful resources straight to your inbox. Click the link below to stay updated. lp.constantcontactpages.com/sl/zXgaTYb/lin…

🟢 A major takeaway from our 2025 HCL Seminar was how much clinical trials continue to change patients’ lives. Thanks to research, most people with HCL can now expect to live full, normal lives. You can learn more from our patient seminar here: hairycellleukemia.org/2025-seminar-s…

At our Patient Seminar, experts discussed tovorafenib, a RAF inhibitor being studied in treatment-resistant hairy cell leukemia. Already approved for some pediatric brain cancers, it shows promise with fewer side effects. Learn more: hairycellleukemia.org/2025-seminar-s…

🟢 Cellular pathways are the complex communication networks inside our cells. Learning about them is helping researchers find new, more effective, and targeted therapies in HCL. Want to learn more? Check out the full discussion at the link below. hairycellleukemia.org/2025-seminar-s…

On #WorldCancerDay, we unite for better care. Each journey is unique, but together we're stronger. For Hairy Cell Leukemia, we raise awareness and support diagnosis and treatment options. The HCLF proudly supports patients and researchers worldwide for improved outcomes.