HDSA San Francisco Bay Area Chapter

Support HDSA during our upcoming Kendra Scott Gives Back event for Mother's Day. Use the code GIVEBACK-LMFCD at checkout. The code is valid only for purchases made within 12:00 a.m. PST on Saturday, April 18, through 11:59 p.m. PST on Sunday, April 19. buff.ly/pMXBJRn

Day 3 of the HD Therapeutics Conference dives into breakthrough science, new tools, and bold ideas that are pushing HD research toward better treatments. ift.tt/Ubi9Le4

Check out my fundraising page - Each year the Marin Family helps organize the San Jose Team Hope Run/Walk in memory of John's three sisters, Lora, Marcia&Cindy who died of HD complications. Please make a donation to our Team here: give.hdsa.org/fundraiser/694…

Here is Day 2 of the 21st annual CHDI HD Therapeutics Conference in Palm Springs, CA. Learn about new techniques to zoom in on HD biology in extraordinary detail. ift.tt/u6S4mGN

HDBuzz is at CHDI's Huntington's Disease Therapeutics Conference, ready to bring you live updates from the most recent research in the field. Get ready for some exciting science! ift.tt/fz0TBJr

HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. Links HDSA.org facebook.com/HDSofA twitter.com/HDSA instagram.com/hdsanational @HDSA" target="_blank" rel="nofollow noopener">youtube.com/@HDSA @hdsa?si=k5_NZPi9WElbWZIr" target="_blank" rel="nofollow noopener">youtube.com/@hdsa?si=k5_NZ… via @YouTube

DG&JGHDAwarenessMonth'25 #letstalkabouthd #Guthrie youtube.com/shorts/hagYQ0r… via @YouTube

Use HDSA’s ready-to-use advocacy tools to speak up, share your story, and urge decision-makers to support a rare-disease system that advances safe innovation without unnecessary delay. buff.ly/X5UXQIK

The FDA wants more data before approving AMT-130 for Huntington’s disease in the U.S. In March 2026, uniQure shared in an update that the current Phase 1/2 data weren’t enough for the agency. A new randomized, sham-controlled trial may be required. en.hdbuzz.net/the-road-ahead…

Vico Therapeutics’ Huntington’s disease drug VO659 is now being tested just twice a year, and the FDA has cleared the way for US trials to begin later this year. Read details about the article: ift.tt/V9WTwaH

The SF Area Chapter received wonderful news. Star One Credit Union in San Jose will be a Gold Sponsor, ($5000.00) this year for the San Jose Team Hope Run/Walk. hdsa.org/thwsanjose Thank you so much for your generosity. Website: starone.org

SAVE THE DATE — our Annual HD Family Education Day will be Saturday, May 2, 2026, 9-4pm in Sacramento. NEW this year — will be a youth and young adult education track. More event details, such as agenda, hotel room block, etc., will be coming soon.

The 8th Annual San Jose Team Hope 5k Walk and 5k Timed Run is scheduled for Saturday, May 16th, 2026, at Campbell Park. Register here: buff.ly/eeT6zjT See the short video on how to register: buff.ly/hWCJqyP

As an official charity partner of New York Road Runners for the TCS New York City Marathon, HDSA is proud to offer runners the chance to make their 26.2 miles meaningful. Application deadline is March 15th, 2026. buff.ly/7qycD03

SAVE THE DATE — our Annual HD Family Education Day will be Saturday, May 2, 2026, 9-4pm in Sacramento. This is a joint collaboration between the Northern California HDSA Chapter, Bay Area/San Francisco Chapter, HDSA COE at Stanford, San Francisco, UC Davis, and Kaiser.

The 8th Annual San Jose Team Hope 5k Walk and 5k Timed Run is scheduled for Saturday, May 16th, 2026, at Campbell Park. Register here: buff.ly/eeT6zjT See the short video on how to register: buff.ly/hWCJqyP

@HDSA_SF HDSA is now accepting applications for the 2026 Donald A. King Summer Research Fellowship. This competitive fellowship covers funding to complete a summer research Huntington's disease project. For more info: hdsa.org/hd-research/th…

HDBUZZ.NET On March 2, 2026, uniQure says they were told by the FDA that their current data are insufficient for the FDA to approve AMT-130. This is disappointing news for the HD community. Read the full article: en.hdbuzz.net/the-road-ahead…

The brain is an advanced supercomputer. But in HD, a core processor starts to malfunction. A research group at UCLA has taken a close look to visualize the specific circuits that are going haywire – and how they appear differently in HD. ift.tt/HZl8VJo