HHT Ireland

We need more donations this week to ensure that we can meet hospital needs, so we are running extra clinics this Sunday! Please book your appointment today and invite a friend to attend with you. #WeCountOnYou #GiveBlood #BloodDonation

The need for platelets unfortunately doesn't take time off during the summer and we need more platelet donations! Call 01 432 2833 (Dublin) or 021 480 7429 (Cork) to speak to one of our staff. giveblood.ie/platelets/can_…

POV: You take the #RareBarometer Survey. Us: 🤩 To make sure the #RareBarometer survey findings have as bigger impact as possible, we need as much data as we can get with respondents from different countries and disease groups! 👉 tiny.cc/RB_DailyLife

Please give blood ahead of the August Bank Holiday! Clibeáil cara atá ar an mbaile a bhfuilimid ag dul chuig agus cuidigh linn deontóirí fola nua a earcú.⁣ giveblood.info/Clinics #GiveBlood #WeCountOnYou

Eurordis survey on impact of rare diseases in everyday life is now live! Simply click tiny.cc/RB_DailyLife It takes no more than 10 minutes and is GDPR compliant 👍 #RareBarometer #impact #rarediseases #HHT

@RichaelT Wishing you all the best Richael!👏👏👏

Paris here I Come 🇮🇪🚴‍♀️ . . Delighted to Officially Announce I will be representing @paralympics_ireland at the Paralympic Games in August 🔥 . . So many people to thank I don't know where to start 🥰 I appreciate you all 🙏 . . Can't wait to do you all proud ❤️

Do you live with a rare disease and disability? 💬 Take the new #RareBarometer survey and share your experiences to help us drive change. Available in 25 languages until 8 September. ✅ tiny.cc/RB_DailyLife

Help save 3 lives with just 1 donation - make your appointment today!🩸🩸🩸

Survey now live! Take the new #RareBarometer survey on the impact of rare diseases in everyday life 👉: tiny.cc/RB_DailyLife

Please take the time to complete this questionnaire. You will be helping to bring about much needed change for our Rare families 💪💪💪

Please donate and save up to 3 lives with just one donation 🩸🩸🩸

What are national contact points for rare diseases? How can they help you access medical care abroad? The answers to all this and more feature in the latest episode of #ERNsOnAir, the quarterly bonus series of #EurordisRareOnAir! 🎧 go.eurordis.org/RareOnAir

@Giveblood_ie Thankyou lads for such generosity!!👏👏🩸🩸🩸🩸

A massive thank you to Sean, Michael, Richard, and Philip for their commitment to saving lives! Congratulations on reaching these donation milestones! #GiveBlood #WeCountOnYou

Due to high hospital demand in June, we need more O- , B- and O+ donors to give blood this week and next week! We aim to have 7 days of blood on hand to ensure hospitals can treat all patients Please help us to replenish these vital blood groups. #GiveBlood #WeCountOnYou

Today and throughout the month of June, join @curehht in raising #HHT awareness. HHT can lead to #pulmonaryhypertension. Learn more about the signs and symptoms in our free brochure. ow.ly/iHwf50SijZh

@Giveblood_ie Many thanks to @Giveblood_ie for your support today!💪💪💪

Hereditary Haemorrhagic Telangiectasia (HHT) is a rare genetic blood vessel disorder affecting many individuals in Ireland. Many HHT patients rely on blood donors for their survival and well-being. Learn more at hhtireland.org ❤️ #WorldHHTDay #HHTAwareness #HHTIreland

Join us in celebrating #WorldHHTDay today. We will never tire of raising awareness 💪💪 Donations for our #Moveathon yesterday still very welcome today at tinyurl.com/HHTIre2024

Join us in celebrating #WorldHHTday today June23rd. Happy HHT Day everyone!

#Moveathon this Saturday. Choose your own activity and take a selfie. Share on your social media and tag @hhtireland Simple!!👏👏👏👏 You can also donate at tinyurl.com/HHTIre2024 Deepest appreciation always.