HSconnect.org - HS Connect

Hey HS warriors- we need your help!! If you have HS or are treating HS patients, we would love if you can fill out this letter template and share your insights with The Oklahoma DUR Commission. docs.google.com/document/d/12d… Please use the link below to fill out the necessary form and send to: DURPublicComment@okhca.org Devin-Wilcox@ou.edu melissa.miller@okhca.org Terry.Cothran@okhca.org

HS or Folliculitis? Believe it or not, HS is commonly misdiagnosed as folliculitis! This typically causes a delay in treatment and HS can continue to worsen while waiting for a proper diagnosis. We hate to see this happen to our fellow warriors! If you would like to learn more about these two conditions just use the link below! hsconnect.org/the-difference… #HidradenitisSuppurativa #HSConnectorg #LivingWithHS #misdiagnosis #HSwarrior

CLn vs Hibiclens. They are both commonly recommended in the HS space, but the difference is, one is safe for daily use! Can you guess which one??  #CLnBodywash #HIbiclens #HSConnectorg #LivingwithHS #HidradenitisSuppurativa

If there is one thing HS and pilonidal cysts have in common, it's that they are no joke. The pain alone will have you unable to sit for long periods and begging to have it drained. Just know you're not alone and it's more common than you think. If you would like to read more information on these please use the link below! hsconnect.org/the-link-betwe… #Pilonidalcyst #HidradenitisSuppurativa #LivingwithHS #HSConnectorg

Pack your bags!! We are taking the HS Show on the road. Check out our pop up locations for the 2026 year! We know that we are better, together! So let us know in the comments, which event will we see you at? For more information on the events listed, use the link below. hsconnect.org/etn/naked-trut… #HSConnectorg #HidradenitisSuppurativa #HSPopup #HSawareness

AAD is the largest dermatology conference in the US, with over 20,000 dermatologists! HS Connect shows up to help bring awareness to understand what an average HS patient goes through and inspire them to treat more HS patients. This year Brindley has the honor to share her story at the Presidents Gala, so stay tuned for her speech -- you will not want to miss it! #HSConnectorg #AAD #HSawareness #HSConnect

Asking for help does not make you weak. It makes you courageous. Especially when so many of us are living with HS in shame or isolation. When you finally get the courage to talk to someone about your HS and let them know what your struggles are, you give them space + permission to show up for you in a way you deserve. #HSConnect #LivingwithHS #Chronicillness #HidradenitisSuppurativa #Mentalhealthmatters

The Papaya app is a great tool for any and all HS Warriors to track their symptoms and help manage their HS. Did you know you can even print a report for your doctor? #PapayaForHS #HSConnectOrg #LivingwithHS #HidradenitisSuppurativa

Hidradenitis Suppurativa does not discriminate. No one is off-limits, as it can happen at any time to anyone, anywhere there is a hair follicle on the body. Be sure to contact a dermatologist near you if you are getting more than a couple boil-like abscesses per year! Use the link below to find a dermatologist near you who is familiar with HS! hsconnect.org/dermatologist-… #LivingwithHS #HSConnect #dermatologist #HidradenitisSuppurativa

When it comes to parenting an HS warrior, there may not be a handbook, but there is incredible support. Be sure to check out our parent support group, and if you have a teen, be sure to let them know about our Teen support group where they can discuss their diagnosis among their peers. For more information on these groups use the links below! zoom.us/meeting/regist… us02web.zoom.us/meeting/regist…

When it comes to food, it may not be a trigger for everyone, but some foods are known to cause inflammation in the body, whether it ignites a flare up or not . Here are 3 simple swaps you can make to help manage your inflammation. #antiinflammatory #simpleswaps #HSConnectorg

Living with Hidradenitis Suppurativa means your care matters and your voice does too! This week is a reminder to: ✔️ Speak up about your symptoms ✔️ Ask questions about your treatment ✔️ Practice safe wound care ✔️ Protect your mental health ✔️ Advocate for respectful, informed care HS is more than a skin condition—it’s a journey that deserves understanding, safety, and support. You are your best advocate. 💜 #PatientSafetyWeek #HidradenitisSuppurativa #HSawareness #HSConnectorg #ChronicIllnessSupport

Living with HS takes more than just a physical toll on us, we seem to constantly be fighting a mental and/or financial battle, too. Just know, if you are in those trenches right now, you're not alone! #mentalhealth #LivingwithHS #HSConnectorg #HSConnect #HidradenitisSuppurativa

In a world full of perfectionists find peace in the imperfections. Having scars or hyperpigmentation from the wounds that HS leaves behind doesnt make you gross or unlovable. its makes you strong, resilient and inspirational! #BeautifyHS #LivingwithHS #HSConnectorg #hyperpigmentation

Researchers at The University of Texas at Austin are developing an affordable apparel solution for individuals living with hidradenitis suppurativa (HS), specifically for underarm and under-breast areas. We believe the most effective solutions come from listening to those with lived experience. Completing this five-minute survey will help us better understand what matters most. Information collected in this survey will be used for research and product development purposes to help inform the design of potential apparel solutions for individuals with HS. If you agree to participate, you will complete a one-time online survey that takes approximately 5 minutes. The survey includes questions about: Your age and gender Clothing sizes Your HS symptoms and flare patterns Drainage experiences Current bandage or garment use Costs related to managing HS Preferences for fabrics and garment features Optional open-ended comments about your experience All information is self-reported. Responses are anonymous and will be used for research and product development purposes. Participation in this survey is completely voluntary. You may stop at any time, or you may skip any question you do not wish to answer. If you have any questions or concerns, please reach out to us at comprevawear@gmail.com. utexas.qualtrics.com/jfe/form/SV_cu…

Did you know that sleep actively reduces inflammation? You heard that right! I know for many of us, sleep feels hard to come by or like our last priority...but listen when I tell you its the best thing you can do for yourself! Give the guilt a rest my friend! #HidradenitisSuppurativa #HSConnectorg #inflammation #getgoodsleep

If you have been wondering what the heck you should be using on your flares, look no further. We know that HS is not one size fits all flares, however these are some great products that work for many warriors like you! Click the link below for our full products suggestions page. hsconnect.org/products/ #HSConnect #HidradenitisSuppurativa #selfcare #woundcare #flarecare

Did you know that there are 3 FDA-approved medications for HS and more in clinical trials? Talk to your doctor about Cosentyx or Bimzelx! It's nice to have options to discuss with your medical team. Learn more about how these work with the link below! hsconnect.org/first-line-bio… #HSConnectorg #TreatmentforHS #LivingwithHS #Biologics

If you find yourself struggling with what you think may be HS and are wondering what to do next -- we're here to help! Hidradenitis Suppurativa is not rare, it's just rarely talked about. But we are breaking the stigma together. If you can relate, be sure to use our dermatologist finder tool to find a derm who knows about HS near you. It's important that if you have not been clinically diagnosed to set that appointment & then go take a dive onto our site where you can find many more resources & know that you are not alone.  hsconnect.org/dermatologist-…

"You don’t have to carry it by yourself 🤝 Join us for our Brotherhood Support Group tomorrow at 11:00 AM EST, a space to connect, share, and be supported by other men who truly understand the HS journey. #HSConnect #HidradenitisSuppurativa #HSSupport #HSCommunity #ChronicIllnessSupport "