Help4HD

Inspired by the advocates, families, and community members, five Huntington’s disease organizations came together today to champion the future of rare disease innovation at the FDA. Together, we look forward to strengthening our partnership with the FDA to bring renewed hope, urgency, and patient-centered progress to Huntington’s disease. Every day matters for HD families — and we will continue advocating together for a brighter future. 💙 #HuntingtonsDisease #RareDisease #PatientAdvocacy #HDCommunity @POTUS @realDonaldTrump @WhiteHouse @US_FDA @FDACBER @FDACDERDirector @RFKJr_Official

Keep an eye out for your #HDAwarenessMonth package to arrive! We always love to see pictures so share with us using #Help4HDswag!

From Career to Caregiver 🦽 Thank you Brianna Waslien! HD #Caregiver, Brianna discusses how shifting into this role impacted her perspective💙💜💙Let's keep bringing these #HD stories to light! ~#Help4HD #HDAwarenessMonth #Day20 help4hd.org/events-1/hd-aw…

Inspired by advocates, families & community members, 5 #HD orgs came together today to call for a new chapter at the #FDA. Asking for renewed hope, partnership, urgency, & stronger commitment to #RareDisease innovation & patient-centered progress💙

News of Local HDAdvocacy 📰Throughout #HDAwarenessMonth Marie Salvaggio Clay & family are venturing into their #community to educate about #HD💙💜💙How will you raise awareness? ~#Help4HD #Day19 Send a short video: help4hd.org/events-1/hd-aw…

Jamie Holloway reflects on "The Year of Firsts" since her father passed from #HD in this week's article of the Huntington's Post! #Help4HD #Blog #HuntingtonsDisease Read more: help4hd.org/post/the-year-…

A #Resilient Community Creates #Hope🕊️Thank you Whitney for drawing attention to encouragement that connections & friendships in the #HDCommunity can bring💙💜💙Send a short video raising awareness! ~#Help4HD #HDAwarenessMonth #Day18 help4hd.org/.../hd-awarene…

Monday Mixer! Check your time zone & see if you can make this casual social with #HD community members on Zoom! Reach out to jamie@help4hd.org for more details. #Help4HD #MondayMixer #HuntingtonsDisease

Balancing Living For Today & Seeking #Hope For Tomorrow⚖️ @rachelreising96 explains the family silence about #HD until tragedy led to #advocacy. Thank you!💙💜💙Keep educating all May! ~#Help4HD #HDAwarenessMonth #day17 Submit video: help4hd.org/.../hd-awarene…

Thank you so much for sponsoring #HDAwarenessMonth! We are thankful for your #support as we spotlight our #HD/ #JHD community throughout May! 💙💜💙 #Help4HD #HDAwareness #Sponsors

"I will NOT be a #burden to my family because of #HD..."❌ Separating people from the #disease is meaningful as #caregiver & patient! Thanks Jamie for these thoughts! Spread awareness! ~#Help4HD #HDAwarenessMonth #day16 Submit video: help4hd.org/.../hd-awarene…

💙💜#HDAwarenessMonth💜💙 Let's raise awareness together! #Help4HD #HuntingtonsDisease #JuvenileHuntingtonsDisease help4hd.org/events-1/hd-aw…

#Help4HD #LEEP will be exhibiting at CIT International conference, August 10th-12th, 2026! At this immense gathering of #LawEnforcement, we will be working to raise awareness so that compassion might be shown to individuals impacted by #HD when crises arise!

Calming #Chorea 💊#Medication to manage #HD chorea movements is not always a simple choice. Thank you Kathy & Scottie Cox for raising awareness! 💙💜💙Submit your video NOW! ~#Help4HD #HDAwarenessMonth #day15 Submit video: help4hd.org/.../hd-awarene…

"...[FREE] #wheelchairs are designed to enhance the park experience for visitors with mobility issues, allowing them to #explore #nature independently ..."~#AllTerrainWheelchairs at #TN State Parks 💙💜💙 #Help4HD #Resource Database: digitalgrowthfirm.adalo.com/help4hd-databa…

Where do the ducks come in?!🤔🦆Listen to this #Help4HDTV episode to venture into a discussion of #HD & #Romance with this week's guests, D.j. & Jessica! Listen NOW! facebook.com/help4hd/reels/

Don't miss #Help4HDTV this week as DJ & Jessica Rowland sit down with Leah to discuss dating, stress regulation, & more! Tune in TOMORROW at 9am! Watch here: facebook.com/help4hd/reels/

Cognitive Decline & Apathy ⚠️ Brings attention to discouragement of no longer being able to perform at work. Thanks Todd Knaack for bringing up this important discussion. ~#Help4HD #HDAwarenessMonth #day14 Share your HD story: help4hd.org/.../hd-awarene…

Often as #HD progresses... #hope fades. Read this article from #HDCaregiver, @hthurgood, as their family faces this reality. #Help4HD #blog #HuntingtonsDisease Full article: help4hd.org/post/i-will-co…

#Help4HDLive starts TOMORROW 1pm PST! Join Lauren for this episode focusing on mood symptoms & #MentalHealth in #HD! Tune in: spreaker.com/podcast/help-4… Listen later on your streaming service: Spotify, iTunes, iHeartRadio, etc...