Henri Hart - Querying

If I could have put a *fraction* of the focus and energy that I'm putting into learning about buying a house and home repairs, into my homework and exams at school....I'd have spent less time drunk in parks & writing poetry so I'm glad I didn't.

@BrainAblaze Yes. They were incredibly embarrassed.

Slurred speech, confusion, & unsteady gait? It's easy to assume intoxication, but it could be a seizure. -- Has anyone assumed your #seizure symptoms was intoxication? #EpilepsyAwareness

@BrainAblaze I don't have photosensitive epilepsy, but I do also have NEAD, often triggered by overwhelming sensory experiences, and the right kind of noise & lights can set them off. I definitely like to go in warned, so I can prepare myself for the possibility of an episode.

Myth: All #epilepsy is triggered by flashing lights. Truth: Only 3-5% of people with epilepsy are photosensitive. BUT 5% of the estimated 65M+ worldwide is still a huge number that warrant warnings on videos. #EpilepsyAwareness

@BrainAblaze How extensive side effects can be. Slurring, aphasia, memory loss, cognitive and motor function, emotional instability; epilepsy doesn't stop at seizures. We don't wake up perfectly fine and get on with life. We are always affected.

What is something about #epilepsy you wish more people knew? #EpilepsyAwareness

@BrainAblaze I've been on amitriptyline for migraines for about 13 years, only had epilepsy for 9. I still get migraines pretty frequently, at least two a month, but that is way, way down from before that. Caring for me during migraines prepped my husband for caring for me post-sezuire!

Did you know people with #epilepsy are more likely to experience #migraines, and vice versa? Some studies suggest up to 24% of people have both! -- Do you experience migraines? #EpilepsyAwareness

@BrainAblaze Never been accused of attention seeking, and I do talk about it when it's affecting me. Mine developed at 27, it really changed me and my personality. There are bands I used to hate and now like. Films I loved and now hate. I hate baking now. It comes up in loads of ways.

Has anyone suggested that your seeking attention after you share information about your #epilepsy? -- Do you agree that it is better to talk about what one is going through, than bottling it up? #EpilepsyAwareness

@pippawestauthor A horror, an author who backs himself into a corner with lies about his upcoming published work, only to find out he's only one of five being considered, & in a panic begins to uncover the identity of & hunt down the other 4 authors. Twist, he's 2 of the other 4 & doesn't know.

what if i write a romance between two authors who discover they're in the same maybe pile, and date for distraction to stop checking their inboxes?😂😂

@DiaryofaSickGrl Managed to dislocate my shoulder sneezing. Also woke up with my clavicle not where it should be. I've burned myself so many times bc my wrists didn't wrist. Knees? What are knees? Only jelly.

Why would I fake ehlers-danlos syndrome? Do you know how embarrassing it is to get hurt doing nothing? “What happened to you?” “Oh, I sneezed” ???

@ask_aubry As a pregnancy test frequent-flyer, sometimes you can see it before anyone else. People would say they couldn't see it, but two days later it'd be visible to everyone. If she sees it, I believe it's there, absent any context of why she'd fake a pregnancy.

Whether she is pregnant or not she should break up with this piece of sh*t. Indent lines or water lines are notorious in pregnancy tests and early in the pregnancy these lines can run havoc in your brain. His response to this says everything about him.

No. I was in Star Trek. 😑

@theirishego @DWPgovuk Sometimes, it does feel like the process for claiming and assessing PIP was written by Kafka. It's all such complete nonsense, and they seem to be working actively on making it more ridiculous every year.

8 years ago I was "invited" to a mandatory #PIP assessment after returning the 80-page @DWPgovuk questionnaire with a post-it note saying "As I'm not a salamander my legs haven't grown back." This is what happened next...

@BrainAblaze She was a very strange person. She was also incredibly racist and just generally unpleasant. I used to peek out my window to see when she left to pick her kid up so I could avoid her when I picked mine up. It didn't upset me. Always consider the source.

@HenriHartWrites "really"? Not cool. 💜

Has anyone minimized your #epilepsy experience by comparing it to someone else's? Your struggles are valid. #EpilepsyAwareness

@BrainAblaze No, developed it with no explanation at 27. Christmas day 2015 started seizing while the kids were opening their gifts. We'll likely never know for sure why it happened.

DYKT almost 40% of children with #epilepsy grow out of the condition as their brain matures? -- Were you given an epilepsy diagnosis when you were a child? #EpilepsyAwareness

Respectability in dress is stupid bc it masks the issue. Such judgements are rarely about the clothes, but rather about the bodies underneath. Would Trump and Vance acted politely if Zylenskyy showed up in a suit? Unlikely. No one raised an issue with Elon in t-shirt and topcoat.

@BrainAblaze I don't consider it private or sensitive information. It's actually helpful for the people who do know, to tell others, so the burden isn't solely on me to coordinate my needs, or have the conversation that I have disabilities and may need accommodation.

While we want everyone to be comfortable to talk about their #epilepsy, respect is key. Don't disclose someone's invisible disability. It's their personal information to share, not yours. -- Has anyone shared your invisible disability without your consent? #EpilepsyAwareness

@BrainAblaze I've had migraines for about 15 years, epilepsy for 9. There doesn't seem to be a connection, they've never found correlation between episodes of migraine clusters and epileptic activity.

The relationship between #migraine & #epilepsy is complex and not fully understood, but it's important to be aware of the potential connection. -- Do you experience migraine?#EpilepsyAwareness

@BrainAblaze I mostly use meds, but that is a result of being terminally online with largely American friends who tend to use the word meds, because of the stigma of the word drugs and assumption I meant illicit substances in spite of the context implying otherwise.

The words we use are important. Do you feel that the word "drugs" has been unfairly stigmatized when compared to "meds". For those with chronic illnesses (like #epilepsy) "meds" are essential for managing our conditions. #EpilepsyAwareness

@BrainAblaze @ElleWatts77 It expires in the sense that a driving license expires. You just fill out a form confirming you're still entitled to exemption, and they send you a new one.

@HenriHartWrites @ElleWatts77 It expires? 💜

A question for our friends who live in countries were medical health is nationalized: how much do the prescriptions for your anti-seizure medications cost? #EpilepsyAwareness

@P_Kallioniemi Bucha. I cried for days. My kid had a refugee at her school. I took them out and tried to spoil her, gave her spending money at the mall, using an app to translate. It didn't feel like enough. How do you make up for the horror of fleeing war and death with ice cream and presents?

Three years of brutal war in Ukraine. What is the most memorable photo of the war for you, and why? I’ll start with this iconic one of Zelenskyy’s team after Russia falsely claimed he had fled to Poland.

@ElleWatts77 @BrainAblaze My neuro and GP made sure they helped me fill out the medical exemption certificate when I got my dx. The only problem came when I didn't realise it had expired, I thought I'd get a notice or something, so I had to pay a fine.

@BrainAblaze Nothing but I have to complete paperwork every three years - but it is not advertised that you can get it free - your gp & chemist will not tell you - if you don’t know that £9.90 per 30 days