HopOnACure

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HopOnACure

HopOnACure

@HopOnACure

Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv

Katılım Nisan 2022
85 Takip Edilen629 Takipçiler
HopOnACure
HopOnACure@HopOnACure·
This year, your donations in honor & in memory of your loved ones helped us keep fighting. Thank you, thank you, thank you. 💙
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HopOnACure
HopOnACure@HopOnACure·
The ALS community is tired and extremely outraged that this damn disease has taken yet another loved one. Eric should still be here. Countless others, whose names we don’t hear all over the news, should still be here too. For them, we fight.
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HopOnACure
HopOnACure@HopOnACure·
A huge thank you is in order— the Sundogs have teamed up with Hop On A Cure for three AWESOME years of The Tom Petty Show, raising over $20k for ALS research! 💙 Here they are, rocking out (as per usual) at their recent show. Thanks, Sundogs 🙏
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HopOnACure
HopOnACure@HopOnACure·
From us & ours to you & yours 💕
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HopOnACure
HopOnACure@HopOnACure·
The fight against ALS is personal. But it’s also universal. And together, we move the fight forward. #AmplifyTheFight
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I AM ALS
I AM ALS@iamalsorg·
We secured $313 million in federal funding for ALS in the FY2026 budget. That means more funding than ever for ALS programs through agencies and programs such as the DoD, NIH, ARPA-H and CDMRP—all thanks to YOUR advocacy!
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HopOnACure
HopOnACure@HopOnACure·
Appropriations bill H.R. 7148 has passed, increasing federal funding for ALS research to $313M – the most we’ve ever had! This happened because of your advocacy. Community is powerful! 🙏Thank your senators and representatives today who voted 'yes' for passing this bill.
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I AM ALS
I AM ALS@iamalsorg·
Let's CELEBRATE! The new budget passed yesterday with an additional $45 million for ALS! Thanks to YOUR hard work, ALS has more funding than ever before, and we're on the cusp of so much research progress. KEEP IT UP, ALS community!
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HopOnACure
HopOnACure@HopOnACure·
We love to see representation of ALS stories in the media. Check out: 🎙️@LorrisPodcast, by Lorri Carey 💻“Embracing My Now,” a three-part article by Juan Reyes 📚Goode and Faithful Servant: The Kerry Goode Story, by Kerry Goode ➡️Plus @iamalsorg's list: iamals.org/books-about-al…
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HopOnACure
HopOnACure@HopOnACure·
Remember the summer of dumping ice water on our heads? The #ALSIceBucketChallenge did something rare: it turned awareness into action. Millions participated. Conversations started. Funding followed. The trend quit before ALS, but proved what’s possible when we show up, together.
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HopOnACure
HopOnACure@HopOnACure·
Tom Pringle wants to try experimental drug Tonabersat, but he’s hit a surprising roadblock: his doctors’ unwillingness to cooperate, despite Colorado's Right To Try law. Tom spoke with @CBSNewsColorado about his experience. Watch the full piece on YouTube: youtube.com/watch?v=3N0YKQ…
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HopOnACure
HopOnACure@HopOnACure·
The Avenue East Cobb Kendra Scott store is located at 4475 Roswell Rd., Suite 940, Marietta, GA 💙
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HopOnACure
HopOnACure@HopOnACure·
Join us for a special #KendraGivesBack event! This Fri, 1/30 from 5-7PM, the Avenue East Cobb #KendraScott Store will donate 20% to Hop On A Cure when you mention us at checkout Not in ATL? Give back 20% at KendraScott.com 1/30 & 31 w/ code 'GIVEBACK-LOVEHOP' at checkout
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HopOnACure
HopOnACure@HopOnACure·
❄️SUNDOGS BENEFIT RESCHEDULED FOR 1/31❄️ Due to the Winter Storm Alert forecast for Atlanta, The Sundogs have rescheduled The Tom Petty Show for next Saturday, 1/31. All tickets for the original date are good for 1/31.  🎟️ Tickets for 1/31 at: axs.com/events/1189433…
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HopOnACure
HopOnACure@HopOnACure·
Want to learn more about brain-computer interface (BCI) technology? Join @synchroninc tomorrow, Wed, Jan. 21 for a webinar covering: 🧠 What it BCI technology? ⚡ How does it work? ♿ And how it's being developed for people w/ severe paralysis? Register ➡️LearnAboutBCI.com
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HopOnACure
HopOnACure@HopOnACure·
#ALScaregivers don’t look one way. They are friends, partners, parents, siblings. They are any of us. All of us. You are not alone. Strength isn’t always about staying positive. It’s also about staying human. To the cALS out there: we honor you. Your courage is part of the cure
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HopOnACure
HopOnACure@HopOnACure·
Hop On A Cure is hiring! We’re looking for someone who shares our commitment to hope, community, and the mission to cure ALS. The Senior Development Director position is open: email your application to development@hoponacure.org. Learn more at workforgood.org/listing-job/se…
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