HopOnACure
543 posts

HopOnACure
@HopOnACure
Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv
Katılım Nisan 2022
85 Takip Edilen629 Takipçiler

The fight against ALS is personal. But it’s also universal.
And together, we move the fight forward.
#AmplifyTheFight



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HopOnACure retweetledi
HopOnACure retweetledi

Thank you for your work spreading hope, Dr. Bedlack!
I AM ALS@iamalsorg
Thank you, Dr. Bedlack & I AM ALS advocate and volunteer Marvin Shaw, for walking us through the latest on promising ALS therapies! Tofersen is working well, but only for a few ALS patients. So we're pushing for progress to spread the hope. Full article @ bit.ly/ALShope
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We love to see representation of ALS stories in the media. Check out:
🎙️@LorrisPodcast, by Lorri Carey
💻“Embracing My Now,” a three-part article by Juan Reyes
📚Goode and Faithful Servant: The Kerry Goode Story, by Kerry Goode
➡️Plus @iamalsorg's list:
iamals.org/books-about-al…

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Remember the summer of dumping ice water on our heads? The #ALSIceBucketChallenge did something rare: it turned awareness into action. Millions participated. Conversations started. Funding followed. The trend quit before ALS, but proved what’s possible when we show up, together.




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Tom Pringle wants to try experimental drug Tonabersat, but he’s hit a surprising roadblock: his doctors’ unwillingness to cooperate, despite Colorado's Right To Try law.
Tom spoke with @CBSNewsColorado about his experience. Watch the full piece on YouTube: youtube.com/watch?v=3N0YKQ…

YouTube
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Join us for a special #KendraGivesBack event! This Fri, 1/30 from 5-7PM, the Avenue East Cobb #KendraScott Store will donate 20% to Hop On A Cure when you mention us at checkout
Not in ATL? Give back 20% at KendraScott.com 1/30 & 31 w/ code 'GIVEBACK-LOVEHOP' at checkout

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❄️SUNDOGS BENEFIT RESCHEDULED FOR 1/31❄️
Due to the Winter Storm Alert forecast for Atlanta, The Sundogs have rescheduled The Tom Petty Show for next Saturday, 1/31. All tickets for the original date are good for 1/31.
🎟️ Tickets for 1/31 at: axs.com/events/1189433…

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The Sundogs are back at Variety Playhouse THIS SATURDAY, 1/24, presenting The Tom Petty Show benefiting Hop On A Cure.
🎟️ Tickets on sale now at: variety-playhouse.com/events/detail/…

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Want to learn more about brain-computer interface (BCI) technology? Join @synchroninc tomorrow, Wed, Jan. 21 for a webinar covering:
🧠 What it BCI technology?
⚡ How does it work?
♿ And how it's being developed for people w/ severe paralysis?
Register ➡️LearnAboutBCI.com

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@zacbrownband's residency in Vegas is flying by (pun intended) – it’s the last weekend! Get your Hop On A Cure tour tees at The Venitian Experience, or online at ZacBrownBand.com
Proceeds go to Hop On A Cure, fueling the fight against ALS!
zacbrownband.com/products/hop-o…


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#ALScaregivers don’t look one way.
They are friends, partners, parents, siblings.
They are any of us. All of us.
You are not alone. Strength isn’t always about staying positive. It’s also about staying human.
To the cALS out there: we honor you. Your courage is part of the cure
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Hop On A Cure is hiring! We’re looking for someone who shares our commitment to hope, community, and the mission to cure ALS.
The Senior Development Director position is open: email your application to development@hoponacure.org.
Learn more at workforgood.org/listing-job/se…
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